A little question about where your NHL was found, what part of your body?

BryanK519

My son
My son is the one with the NHL. It was found in his tonsils. We all thought it was tonselitis at first until we realized that the antibiotics were having absolutely no effect.

JoanieP

bluerose said:

Hey Kellie
We sound alot alike.

I just came back from my one month checkin with my GP and we talked about the cats and she said they are more important to me than many people might think. We were talking about the Vet wanting to put one of mine down as she has had a stroke and maybe even a brain tumour and I have been nursing her. NO way is she going to be put down, she is fine except for the wobble in her walk now.

Pets are such therapy for so many people and a part of the family for sure. Mine are worth a fortune to me.

Take good care.

Bluerose

Bluerose
Hi
I always enjoy reading your posts. I have four cats, one being a himmy. Sidney Frizpatrick is his name and I got him from Pet Finder when he was 9 months. He absolutely loves speghetti. He paws my husband's shoulder when we eat at the coffee table til he feeds him. He's a light grey with darker ears. Not sure what they call him. Take care Bluerose. You are always an inspiration to me:) So glad you had good results!!! Joanie

JacquieK

bluerose said:

Hi Jacquiek
Thanks for your response and congratulations on your one year anniversary surviving the monster and I know you will stand strong for the next 10 months in your battle with it all. With the help of friends and family and this site you will get through it.

I am a 25 year survivor of NHL, considered cured after one recurrance 23 years ago so I do know a little something about survivorship and the strength it takes to get through. You sound like a strong survivor. Keep us posted. It won't be easy but you can do it.

Blessings,

Bluerose

Thank you for the strength
Hi BlueRose,

I am so glad to hear you have survived so long! My biggest fear is that I will not be here for my boys! Tomorrow I am in remission 2 months. It has gone by fast, but it also means that I have to go back in August for my first (3 month) check to be sure everything is still good.

I also wish that my hair would grow back!!!! I finished chemo almost 8 months ago and radiation 4 months ago. While I am grateful to have hair again, it would be great if it grew just a little faster :0)

Thanks for your support!

Jacquie

bluerose

JacquieK said:

Thank you for the strength
Hi BlueRose,

I am so glad to hear you have survived so long! My biggest fear is that I will not be here for my boys! Tomorrow I am in remission 2 months. It has gone by fast, but it also means that I have to go back in August for my first (3 month) check to be sure everything is still good.

I also wish that my hair would grow back!!!! I finished chemo almost 8 months ago and radiation 4 months ago. While I am grateful to have hair again, it would be great if it grew just a little faster :0)

Thanks for your support!

Jacquie

Hi Jacquie
It's good to share our experiences to help to support and validate others on this site so no need for thanks. My pleasure.

My hair grew back pretty slowly too but eventually there it was so give it time. Your whole body has a lot to recover from with all the harsh treatments.

I had two small chidren when I was diagnosed and went through treatment so I understand your worry about your children but know that today cancer treatments are fantastic and even when I was diagnosed so long ago those treatments obviously did the trick cause here I still am - a little damaged from treatments but still here and I have seen my kids grow up.

Intead of worrying about being there for your kids use that dedication as a Mother to survive. That's what I did. I don't know if you are spiritual or not but I prayed to be able to survive for my children harder than I ever prayed for anything else in my life. I personally think a Mother's prayers for her children are some of the strongest prayers around and I do believe it's why I survived, my prayers were heard and answered. I also believe strongly in the immense power of group prayer so if you know any churches call them and ask their prayer chains to put you on the prayer list and they will pray for you - the more prayer for you the better. It worked for me in spades.

All the best, keep truckin, and hold those kids up as your goal - you WILL BE THERE to see them walk down the aisles with their spouses to be and you WILL BE THERE to hold your first grandkids. Remain positive and fight for it. You can do it.

Hugs,

Bluerose

dewdrop52

BryanK519 said:

My son
My son is the one with the NHL. It was found in his tonsils. We all thought it was tonselitis at first until we realized that the antibiotics were having absolutely no effect.

First time posting
My husband was just recently diagnosed with NHL. On Mother's Day weekend he told me he was having some rectal bleeding. He had a colonoscopy scheduled right away. The doctor found a large tumor in his intestines. Since then he has had an abdominal surgery and 2 chemo sessions (R-CHOP)out of 8 scheduled. It is so good to read all your postings. I have had so many questions that only people who have gone through the experience can answer.

bluerose

dewdrop52 said:

First time posting
My husband was just recently diagnosed with NHL. On Mother's Day weekend he told me he was having some rectal bleeding. He had a colonoscopy scheduled right away. The doctor found a large tumor in his intestines. Since then he has had an abdominal surgery and 2 chemo sessions (R-CHOP)out of 8 scheduled. It is so good to read all your postings. I have had so many questions that only people who have gone through the experience can answer.

HI dewdrops welcome to the site
I am glad you discovered this site because you will find alot of answers here to your questions and help with some of your emotional issues too, and your husbands too in all likrlihood. It's a fabulous site that helps to validate cancer survivors and their caregivers and as time goes on you will see how important that can be, you are right, only people have gone through the experience really know where it's at.

As I may have mentioned I am a 25 year survivor of NHL and so my treatments were many years ago but even at that I have survived and I know that your husband can too. Be there for each other, he will need your support and make sure that in the process you take care of yourself too because many caregivers tend to burn out trying to do it all for the cancer patient and neglect to care for themselves.

All the best and remember it's a whole new day in cancer treatments, new treatments around the corner and many stories of long survivorships and in fact cures. Try to remain positive and when you feel down don't beat yourself up because we all have those times too.

Write anytime you feel you need to and someone will be here to respond I'm sure. There is a chatroom on this site too for instant chat so you might want to try that too. Sometimes you have to wait in the room a bit for someone to come in but hang in there they will most likely be along shortly and I'm sure they will be glad to chat with you.

Blessings to you and yours,

Bluerose

bluerose

BryanK519 said:

My son
My son is the one with the NHL. It was found in his tonsils. We all thought it was tonselitis at first until we realized that the antibiotics were having absolutely no effect.

Hello Bryan
Thanks for your response. I am sorry to hear that your family is battling NHL but I am here to tell you that it can be beaten. As I have mentioned on this posting I am a 25 year survivor of NHL and although the fight is rough in treatment years long term survival and a cure in fact is not out of the question. When my doctors used the 'cure' word I was so shocked, I never thought it was possible but in fact it most certainly is.

I am gathering that your son is young and hopefully strong to fight this thing and with your support and support of other members of his family and friends you can all get through this.

Post anytime, this site is remarkable in the support you will get from it. We will learn from you too.

All the best.

Blessings,

Bluerose

bluerose

BryanK519 said:

My son
My son is the one with the NHL. It was found in his tonsils. We all thought it was tonselitis at first until we realized that the antibiotics were having absolutely no effect.

Hello Bryan
Thanks for your response. I am sorry to hear that your family is battling NHL but I am here to tell you that it can be beaten. As I have mentioned on this posting I am a 25 year survivor of NHL and although the fight is rough in treatment years long term survival and a cure in fact is not out of the question. When my doctors used the 'cure' word I was so shocked, I never thought it was possible but in fact it most certainly is.

I am gathering that your son is young and hopefully strong to fight this thing and with your support and support of other members of his family and friends you can all get through this.

Post anytime, this site is remarkable in the support you will get from it. We will learn from you too.

All the best.

Blessings,

Bluerose

CountryGal7557

jawline
under my left jawline. two tumors right beside each other. grew so fast in one week, it pulled my skin down and my face looked lopsided.

have been in remission since July 2010. whoo hoo!!

Hugs
Janelle

BryanK519

bluerose said:

Hello Bryan
Thanks for your response. I am sorry to hear that your family is battling NHL but I am here to tell you that it can be beaten. As I have mentioned on this posting I am a 25 year survivor of NHL and although the fight is rough in treatment years long term survival and a cure in fact is not out of the question. When my doctors used the 'cure' word I was so shocked, I never thought it was possible but in fact it most certainly is.

I am gathering that your son is young and hopefully strong to fight this thing and with your support and support of other members of his family and friends you can all get through this.

Post anytime, this site is remarkable in the support you will get from it. We will learn from you too.

All the best.

Blessings,

Bluerose

Thanks
Thanks BR. Yes, my son is only 13, but he is strong and he has been demonstrating an impressive amount of perseverence and optimism. While I can't empathize with those of you who are enduring this battle - I can most certainly sympathize as I have watched my son suffer with this for the past two months. I rejoice for those of you who have successfully battled this disease and my prayers and hopes go out to all of those still engaged in the fight.

DadysGirl

bluerose said:

Hi Jacquiek
Thanks for your response and congratulations on your one year anniversary surviving the monster and I know you will stand strong for the next 10 months in your battle with it all. With the help of friends and family and this site you will get through it.

I am a 25 year survivor of NHL, considered cured after one recurrance 23 years ago so I do know a little something about survivorship and the strength it takes to get through. You sound like a strong survivor. Keep us posted. It won't be easy but you can do it.

Blessings,

Bluerose

Hi Bluerose, where was yours
Hi Bluerose, where was yours found? Was it large diffuse b cell lymphoma non hodgkins?

bluerose

miss maggie said:

Hey to you too Bluerose
Dear Bluerose.

Thank you so much for your kind words.

Since I was DX and signed onto this site, I have seen so many of your
posts, and your detailed responses to others in need of information.
You are wonderful, and always take such care and time with each response.
I don't want to make you blush, but my words are true.

I should of included this paragraph first, but I got carried away.
I am over the moon with your wonderful News. May you continue each
day, and every year with a DX of GONE>

All my love to you. Maggie GONE Jan 2011

Thank you Maggie
That was kind of you to say but tons of people on here support others as I try to do, something in us after the diagnosis and treatments seem to drive us to give back, have heard that over and over again. And so we should, it's the least we can do to try to help others who are struggling with parts of the cancer journey we have already experienced. A little help and validation from those of us who have been there goes a long way to help others who are facing fear and uncertainty. Information is power.

Back at you Maggie - it's GONE GONE GONE.

Blessings,

Bluerose

bluerose

allmost60 said:

Groin
Hi Bluerose,
January 2010 I had just dried off from my shower and while putting lotion on my body I felt a lump on my groin..(left side). I showed it to my husband and then the following week went in to see my PCP. He sent me for an ultra sound which showed the one medium lump we could feel, but also showed a couple of more smaller enlarged nodes in the same area that we couldn't feel. PCP decided to wait and watch until my yearly physical in May. Come May, I went for another ultra sound which showed growth of the one medium size node and now revealed a total of 6 more enlarged nodes. I also had a very small hard node on the left side of my neck show up during the wait and watch time..Jan-May. PCP sent me for a CT scan of pelvic, stomach and neck, which then showed enlarged nodes in all 3 area's. I didn't have a clue about the tumors in my stomach until the CT scan. In June 2010 I had the largest node in the groin surgically removed and biopsied, along with a BMB to complete the staging(no bone involvement).... the rest is history. Diagnosed having Follicular-NHL-grade2-stage3-typeA. Started chemo(CVP-R) Aug 26th 2010 and finished 6 rounds on Dec 14th 2010. Follow up CT scan on Jan 26th 2011 showed slight activity still in the node under my colar bone. Onc said I wasn't in remission, but considered the cancer to be stable. He started me on Rituxan maint Feb 14th, to be given every other month for the next 2 years. My next scan will be in April 2012, unless something new developes. So far so good...I've done 3 rounds of Rituxan so far and no new developements..(knock on wood). Now I just wait and see and hope for the best. Good luck tomorrow with your biopsy..I'll keep you in my prayers and be thinking good positive thoughts! Much Love...Sue (FNHL-2-3A-6/10)

Hey Sue
You are in my prayers as well and let's hope you will blow that thing out of the water and never look back.

When I had my treatments one million years ago, or so it seems, we didn't have Rituxan. Looks like it's a super drug from all I am hearing about it. Do you know that when I was diagnosed and went through my first chemos they didn't have anti nausea drugs either? Yikes, that sucked. When I had the recurrance a year and a half later they had come up with the anti nauseas and yikes what a difference. I am telling you this because it goes to show how from year to year or less there are always new treatments right around the corner to make things a little easier and let's hope that soon there will be new research that will blow this thing away, never to be seen or heard of again for anyone.

Blessings,

Bluerose

bluerose

homegirl said:

Body part
Bluerose, I found mine in my right armpit. Raised my arm to shave one evening in the shower when I noticed large lump. My pits have never been very hairy so do not know when I shaved last, but when I had my ultrasound 2 weeks later one was measured at 5.4 cm, and there were couple more smaller ones. Even today I have to raise my arm and put my hand behind my head and push out the pit to really feel it because it is so deep. I probably have a little extra fat tissue there as I am not a thin person. Also have enlarged nodes in other pit, but cant feel, nor any of my others through out my body.
Martha

Hi Martha
Are you all through treatments now?

All the best,

Bluerose

bluerose

CountryGal7557 said:

jawline
under my left jawline. two tumors right beside each other. grew so fast in one week, it pulled my skin down and my face looked lopsided.

have been in remission since July 2010. whoo hoo!!

Hugs
Janelle

Hi Janelle
Ya my lump in the groin area came up super fast. The oncologist called it 'blow up lymphoma' because it comes up out of nowhere quickly. Sounds like that happened to you too, it's quite a shock isn't it?

Glad to hear you have been NED since 2010, let's keep it that way !!!!

Blessings,

Bluerose

bluerose

DadysGirl said:

Hi Bluerose, where was yours
Hi Bluerose, where was yours found? Was it large diffuse b cell lymphoma non hodgkins?

Hello DadysGirl
My first diagnosis was from a lump on the top of my leg in the groin area and the second occurance was under my left breast. I have totally forgotten the type of non hodgkins lymphoma I had and keep meaning to look it up again, old chemo brain here forgets everything, lol, but I will find it later this week and post it. I think it was large and small cleaved follicular but not entirely sure, it was 25 years ago. I can barely remember what I had for breakfast today. lol. Hmmm, what did I have? Sheeesh. lol

Hugs,

Bluerose

Keith1961

dewdrop52 said:

First time posting
My husband was just recently diagnosed with NHL. On Mother's Day weekend he told me he was having some rectal bleeding. He had a colonoscopy scheduled right away. The doctor found a large tumor in his intestines. Since then he has had an abdominal surgery and 2 chemo sessions (R-CHOP)out of 8 scheduled. It is so good to read all your postings. I have had so many questions that only people who have gone through the experience can answer.

What type of lymphoma
What type of NHL does your husband have? I have a small tumor in my small intestine near the terminal ileum. Mine is follicular small b cell. I am currently on watch and wait since I have no symptoms. Mine was found by accident during a colonoscopy. Did your husband have any other symptoms?? How is he doing now? - Keith

dewdrop52

Keith1961 said:

What type of lymphoma
What type of NHL does your husband have? I have a small tumor in my small intestine near the terminal ileum. Mine is follicular small b cell. I am currently on watch and wait since I have no symptoms. Mine was found by accident during a colonoscopy. Did your husband have any other symptoms?? How is he doing now? - Keith

sorry for not getting back to you
We have had a recent hospitalization and are getting back on track here at home. My husband has Large B Cell Lymphoma Stage IV. He is 83 and has always been a strong and vital man. I have remained hopeful knowing that he started out from a fairly strong place. He did have a problem with ITP for about 10 years. I haven't seen anyone post comments about this autoimmune problem. It stands for ideopathic thrombo cytopenia purpura. He took predisone for this condition for many years. I'm wondering if this left him susceptible to the lymphoma. From about the time he was diagnosed with the tumor he had been feeling very weak and tired. We thought it was the ITP and didn't pay too much attention to the symptoms because periodically this would happen to him. He would take a few weeks to start feeling normal again. We are thankful that the bleeding symptoms appeared because I immediately started making phone calls and doctors appointments. Since the colonoscopy in May he has had 3 hospital stays. The first one was for the removal of the tumor after which we had to wait for the abdominal wound to heal before chemo could start. Unfortunately, the lymphoma started hitting hard and he was going downhill quickly. He was admitted to City of Hope and had his first chemo treatment. That stay lasted 2 1/2 weeks. He was home for a couple of weeks and became dehydrated with fever and sore throat so we went back. All his numbers were off so he stayed for 4 days more while they gave him platelets, red blood cells, potassium, magnesium, antibiotics and probably more. He is home now and has had a lot of weakness and just a few good days where he felt normal enough to do some light chores around the house. His abdominal wound is still trying to heal and I'm thinking that a lot of his weakness is just from recuperating from the surgery. Poor guy. The doctor's say he has had a rough time. He's a trouper and doesn't complain, but my sweet good natured husband is often depressed..something I have seldom seen in our 32 years of marriage. I'm up with insomnia and decided to check the site. So, thank you for your warm welcome and I promise to check in more often.

Go_go_Gi_gi

bluerose said:

Hi Jacquie
It's good to share our experiences to help to support and validate others on this site so no need for thanks. My pleasure.

My hair grew back pretty slowly too but eventually there it was so give it time. Your whole body has a lot to recover from with all the harsh treatments.

I had two small chidren when I was diagnosed and went through treatment so I understand your worry about your children but know that today cancer treatments are fantastic and even when I was diagnosed so long ago those treatments obviously did the trick cause here I still am - a little damaged from treatments but still here and I have seen my kids grow up.

Intead of worrying about being there for your kids use that dedication as a Mother to survive. That's what I did. I don't know if you are spiritual or not but I prayed to be able to survive for my children harder than I ever prayed for anything else in my life. I personally think a Mother's prayers for her children are some of the strongest prayers around and I do believe it's why I survived, my prayers were heard and answered. I also believe strongly in the immense power of group prayer so if you know any churches call them and ask their prayer chains to put you on the prayer list and they will pray for you - the more prayer for you the better. It worked for me in spades.

All the best, keep truckin, and hold those kids up as your goal - you WILL BE THERE to see them walk down the aisles with their spouses to be and you WILL BE THERE to hold your first grandkids. Remain positive and fight for it. You can do it.

Hugs,

Bluerose

Where was NHL found on your body
Hi everyone--today is my first day posting---just diagnosed. Found incidentally when cat scan done to r/o diverticulitis---bulky, enlarged lymph nodes in abdome--Had Pet Scan 2 days later; w/ hot spots Left scapula, breast bone, near aorta, on on colon, lower part--
Colonoscopy: no disease inside, though a stricture due to pressure from ? (probably nodes) outside---Needle biopsy of lymph node showed NHL, follicular, grade 1, I think stage 3--a question to verify with my doc tomorrow--

I'm on the east coast--Monday--NHL; Tuesday-earthquake; Sat-Sunday-Hurricane Irene-- definitely memorable--- I posted a new thread a short time ago--I supposed to start chemo Wed. this week. Teaching tomorrow---(Bendamustine/Rituxan) Thanks Susan-2

COBRA666

Go_go_Gi_gi said:

Where was NHL found on your body
Hi everyone--today is my first day posting---just diagnosed. Found incidentally when cat scan done to r/o diverticulitis---bulky, enlarged lymph nodes in abdome--Had Pet Scan 2 days later; w/ hot spots Left scapula, breast bone, near aorta, on on colon, lower part--
Colonoscopy: no disease inside, though a stricture due to pressure from ? (probably nodes) outside---Needle biopsy of lymph node showed NHL, follicular, grade 1, I think stage 3--a question to verify with my doc tomorrow--

I'm on the east coast--Monday--NHL; Tuesday-earthquake; Sat-Sunday-Hurricane Irene-- definitely memorable--- I posted a new thread a short time ago--I supposed to start chemo Wed. this week. Teaching tomorrow---(Bendamustine/Rituxan) Thanks Susan-2

Forgot 1
Susan,
You forgot to add in the HEAT we've had all summer. I am in NC. John