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First oral chemo yesterday..

MAJW
MAJW CSN Member Posts: 2,510 Member
in Breast Cancer #1
Okay ladies...I'm officially on oral chemo for my recurrence of TNBC......A clinical trial that is in phase II ... went to my cancer center yesterday to receive my first dose of 5 capsules..Oh they were the prettiest color....chocolate brown! Interesting how they do this...I took a Zofran then had to wait 30 minutes... then after 4 people checked the drug, they handed me a glass of water and dispensed the capsules..can't touch them, they were in a prescription bottle..swallowed 2 then chugged the remaining 3.... They have to have two people witness my taking them...Then I was on my way!

So far so good! This drug is called Tesetaxel...It is for recurrence of bc and two other types...this is in conjunction with Sloan Kettering...this is NOT a blind study as some one asked...I am receiving the drug...my oncologist says this is one of the best, new drugs since sliced bread! We shall see...the expected side effects are supposed to be so much less than with IV chemo....They're not even reporting hair loss, perhaps just thinning..even though I never experienced any nausea with the IV chemo this is supposedly even less likely to cause it...no steroids required and no Neulasta unless my counts really drop which is unexpected....I underwent, I think, every test in the book to qualify...

Now....let's pray it works! I'm hoping this can help those down the road who will and are facing this nightmare....
I'll keep you all posted....and again, thank you all for your continued love, care and prayers....you mean the world to me!

Hugs, Nancy
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Comments

  • grams2jc
    grams2jc CSN Member Posts: 756
    #2
    thanks for your bravery
    Hope it is better than sliced bread!

    Good luck and keep us updated,

    Jennifer
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  • butterflylvr
    butterflylvr CSN Member Posts: 944
    #3
    grams2jc said:

    thanks for your bravery
    Hope it is better than sliced bread!

    Good luck and keep us updated,

    Jennifer

    Nancy,
    You are the trailblazer. Keep us posted on how you are doing, side effects and all. This is new territory that none of us have traveled, we can all learn so much from you. You know you have a huge cheering section behind you every time you swallow those pills. How often do you have to go for treatment, is it every week?

    Strength and prayers coming your way,
    Lorrie
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  • lynn1950
    lynn1950 CSN Member Posts: 2,570
    #4
    Thank you for trying this
    Thank you for trying this new drug. I am praying for you and for this new drug. xoxoxo Lynn
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  • Marcia527
    Marcia527 CSN Member Posts: 2,729
    #5
    ?
    Why can't you touch them?
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  • sparkle1
    sparkle1 CSN Member Posts: 242
    #6
    I applaud your bravery.
    I applaud your bravery. Good luck and please keep so informed on how you are doing and what you are feeling.
    Sparkle
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  • Mitzi333
    Mitzi333 CSN Member Posts: 511 Member
    #7
    sparkle1 said:

    I applaud your bravery.
    I applaud your bravery. Good luck and please keep so informed on how you are doing and what you are feeling.
    Sparkle

    Yes... You're a Trailblazer
    Thank YOU!!! Wishing you all the best with this

    new treatment.

    God Bless~
    Mitzi ;0)
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  • LoveBabyJesus
    LoveBabyJesus CSN Member Posts: 1,679 Member
    #8
    Dear Nancy - Thank you so
    Dear Nancy - Thank you so much for trying this new drug. I want to wish you GOOD LUCK, and please know I'll be praying for you. Everything will be OK. Let us know how you're doing.

    Hugs.
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  • chenheart
    chenheart CSN Member Posts: 5,159 Member
    #9
    How is it you have managed
    How is it you have managed to make me feel excited about chemo???? Here's wishing you an uneventful, no SE, successful clinical trial!!!! You are inspiring!

    Hugs,
    Chen♥
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  • Bella Luna
    Bella Luna CSN Member Posts: 1,578 Member
    #10
    Nancy glad to hear you have
    Nancy glad to hear you have started with your treatment. Will pray the side effects will be minimal. Take care.
    Ines
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  • Chickadee1955
    Chickadee1955 CSN Member Posts: 356
    #11
    Bella Luna said:

    Nancy glad to hear you have
    Nancy glad to hear you have started with your treatment. Will pray the side effects will be minimal. Take care.
    Ines

    Nancy,
    You are bathed in our
    Nancy,

    You are bathed in our thoughts, prayers and admiration. Be strong as you can and weak as you need to be to get through!

    More cyber hugs,

    Chickadee
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  • Gabe N Abby Mom
    Gabe N Abby Mom CSN Member Posts: 2,413
    #12
    Thank you for sharing your
    Thank you for sharing your experience with us. Please let us know how you do with this drug.

    Hugs,

    Linda
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  • Double Whammy
    Double Whammy CSN Member Posts: 2,832 Member
    #13
    Gabe N Abby Mom said:

    Thank you for sharing your
    Thank you for sharing your experience with us. Please let us know how you do with this drug.

    Hugs,

    Linda

    If it looks like chocolate,
    it's gotta be good! Thank you for educating us about and participating in a clinical trial we might not otherwise not know about. I hope and pray everything goes smoothly for you and the chocolate drops get the drop on the stupid cancer.

    Best,
    Suzanne
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  • ms.sunshine
    ms.sunshine CSN Member Posts: 707 Member
    #14
    Double Whammy said:

    If it looks like chocolate,
    it's gotta be good! Thank you for educating us about and participating in a clinical trial we might not otherwise not know about. I hope and pray everything goes smoothly for you and the chocolate drops get the drop on the stupid cancer.

    Best,
    Suzanne

    Nancy
    You mean the world to us. I will continue to pray, wish, and hope this will work. I believe it will. Stay strong. Much love for you and your family.

    Jennifer
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  • DebbyM
    DebbyM CSN Member Posts: 3,289 Member
    #15
    lynn1950 said:

    Thank you for trying this
    Thank you for trying this new drug. I am praying for you and for this new drug. xoxoxo Lynn

    Praying it works!
    Hugs,
    Praying it works!


    Hugs, Debby
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  • kapeterson
    kapeterson CSN Member Posts: 6
    #16
    Thank you
    Thank you for being a trailblazer.
    Wishing you all the best!
    Karen
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