What Ammunition for The Big Cannon?

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  • Callaloo
    Callaloo Member Posts: 135
    #22
    unknown said:

    This comment has been removed by the Moderator

    Why no radiation for so many then?
    Thanks Sherri, that's good to know. I just wonder why radiation seems to be withheld in so many cases.
  • paul61
    paul61 Member Posts: 1,392 Member
    #23
    megmacmd said:

    Decisions
    I was diagnosed March will stage 3 but nodes above and below the diapragm lungs and intraabdominal I am 57 yo female never smoked or drank did have GERD I am a Pediatrician so adult medicine is not my forteit. Iwas told surgery and radiation were not an option I trust my docs because they are all friends and collegueas and know this is very bad and are giving me the straight scoop I started foxflur regime am on my 6th treatment every other week had some initial response but the side effects of numbness and tingling not feeling well and nausea and tiredness and no appetite everything tastes awfull And I love to cook and eat. Lost my husband of 30 years to a freak cerebral anuersym one beautiful summer morning here in Va Beach my children are grown the last one a 3rd year at University of Virginia I am thinking I would rather live my last months or year or so in quality and am thinking of stopping the chemo many people have different reactions but I have lost my dad to bladder cancer 4 years ago he was 82 and had a great life ,my sister died 3 years ago of breast cancer she fought it tooth and nail and was pretty miserable her last 2 years my mom died last year of breat cancer at 83 she choose to let nature take it course and played crouquet and bridge sang in the church choir until thelast 2months theyhad given her 6 months she lasted 2 years SoI am debating whether to stop chemo and really believe after reading all the postings it doesnt matter it is just random luck and a matter of attitude as long as you feel Ok why not live life and take your chances? Myhusband used to say we are all dying the minute we take our firstbreath noone know howlong so live life on lifes terms to the fullest Meg

    I would give chemo a chance
    Meg,

    I know chemotherapy is difficult. I am not sure why, as a Stage III, that surgery is not an option but I would suggest that giving a full run of your treatment regimen is worth the difficulties. I know that when I was undergoing chemo, there were times when I questioned if it was worth it. I sometimes asked myself, “what if I am going through all this for nothing?” One day I said to my wife, “If this is an example of how the rest of my life is going to feel I would just as soon be gone”.

    Well; I have finished chemo, and have been fortunate enough to have clear scans and endoscopies since then. I am now a year out from finishing my chemo and am feeling as good as I felt before I was diagnosed with EC.

    My oncologist told me that one of the side effects of some of the chemotherapy drugs is depression. And of course dealing with a diagnosis of cancer is reason enough to be depressed anyway. I would not fully trust my ability to make a rational decision while undergoing chemotherapy without lots of input from my friends, particularly input from people who have been where you are now.

    Meg, this friend says “Give the full range of your chemo treatment a chance”. Then if the tests show it did not have the expected effect you can decide at that point.

    With great concern,

    Paul Adams
    McCormick, South Carolina

    DX 10/22/2009 T2N1M0 Stage IIB
    12/03/2009 Ivor Lewis
    2/8 through 6/14/2010 Adjuvant Chemo Cisplatin, Epirubicin, 5 FU
    6/21/2010 CT Scan NED
    3/14/2011 CT Scan NED

    Life may not be the party we hoped for, but while we are here we might as well dance!
  • Unknown
    Unknown
    #24
    Callaloo said:

    Why no radiation for so many then?
    Thanks Sherri, that's good to know. I just wonder why radiation seems to be withheld in so many cases.

    This comment has been removed by the Moderator
  • sandy1943
    sandy1943 Member Posts: 824
    #25
    Callaloo said:

    Why no radiation for so many then?
    Thanks Sherri, that's good to know. I just wonder why radiation seems to be withheld in so many cases.

    I had stage 111. My dr. did
    I had stage 111. My dr. did not do radiation. After I came on this site and learned all that I have, I asked him why. He and some other dr's did a several year study. He said that they determined rad. did more harm than good for the long term. I don't know if this is right or wrong, but I have been NED for three years. Keep in mine I was stage 111, not IV.
    Sandra
  • fredswilma
    fredswilma Member Posts: 185
    #26
    ecourtney said:

    Hi Ann
    Just remembered that another cause of throat problems can be scarring caused by radiation. Apparently scars heal just like surface scars might with crusty like surfaces etc. If radiotherapy has been involved this could be a cause
    Good luck
    Maurice

    Hi Maurice
    Thanks for that,
    Hi Maurice
    Thanks for that, Mark was never given radiation as the tumor spread was to great and they thought the radiation could have had worse affects on other major organs. We had the endoscopy on Friday where they discovered that the tumor had not closed the eosaphagus, but the tumor had stopped the muscles in his oesaphagus working right so it is not forcing the food down, and they think the effect of saliva coming back us is what is irritating his throat. We have decided to go ahead with another round of chemo, starting Tuesday, hoping for the best, this is a road that I'm sure will have many bumps but we are hoping he handles it well, Thanks for all you advice. Thinking of you all.
    Ann
  • ecourtney
    ecourtney Member Posts: 39
    #27
    fredswilma said:

    Hi Maurice
    Thanks for that,
    Hi Maurice
    Thanks for that, Mark was never given radiation as the tumor spread was to great and they thought the radiation could have had worse affects on other major organs. We had the endoscopy on Friday where they discovered that the tumor had not closed the eosaphagus, but the tumor had stopped the muscles in his oesaphagus working right so it is not forcing the food down, and they think the effect of saliva coming back us is what is irritating his throat. We have decided to go ahead with another round of chemo, starting Tuesday, hoping for the best, this is a road that I'm sure will have many bumps but we are hoping he handles it well, Thanks for all you advice. Thinking of you all.
    Ann

    Hi Ann
    Thanks for letting us all know how Marks endoscopy went. It helps everyone understand the numerous " reasons" there are for suffering with digestion issues.I have a great deal of admiration for the positive way that you and Mark are taking on this battle and now that you have opted for more chemo, I know that Sherri and William along with others on the site can best advise on "battle readiness" i.e. packing in the calories, hydration, latest developments in the J-tube.
    Good luck on Tuesday and going forward
    Maurice

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