erbitux not working :(

Buzzard

tootsie1 said:

So sorry
I hope you enjoy your weekend pass and do something great for your birthday. Mine was yesterday! I'm very sorry about your news. Praying that a great solution will be found.

*hugs*
Gail

Anne........
its time to get angry........and persistent with your onc...he needs to come up with a plan, or find one that will...now is not the time to be passive sweetheart...please take an aggressive run at this....I don't want to lose anymore people I love......I've lost enough, your Canuuk buddy....buzz

pete43lost_at_sea

pepebcn said:

Dear Marie!
I think hospital food has no remedy in any country !.
I agree with you as far it's been around couple of years since last round ,chemo use to work again! at least that's what I have been told!.

come to sydney saint vincents hospital has great food
hi pepe and marie

I am serious, I gained weight in hospital. I was pushy with the menu but
found lots of plant based food and lean protein.

but i know this is the exception not the rule.

hugs,
pete

pete43lost_at_sea

how to get strong ?
dear anne,

so sorry to hear about this dam crc being difficult.

i'll let the stage4 gurus comment about chemo options.

its probably time to pull out all stops.

you know what i have been into diet, vitamins, meditation, TCM, exercise etc etc

if you ever want to know where to start PM me. but you could just as well review the anticancer video and lecture i put up a month ago.

I can guarantee a healthy diet and lifestyle while seeming extreme will help you to feel better, will make you stronger and give your body and mind the best chance to fight and defeat crc.

its an extreme challenge so extreme counter measures made sense to me as I am extremely desperate not to meet my departed friends to soon.

but as always follow your heart and head, they will lead you on the best path for you. I did find going to seminars and reading and then a little surfing the net helped me evolve my treatment strategy.

happy birthday as well. if you want to read a mans search for reason by victor frankel just pm me with your email and I'll email you a copy as your birthday present. its a very thougth provoking read!

love and hugs,
pete

kluong

Erbitux stopping working for my hubby too
We got this news about 2 weeks ago and now the onc is going to put my hubby on Vectibux (similar to Erbitux). Have your doc mentioned this drug to you?

My hubby has colon cancer with mets to liver and bone. He is like you, in the hospital because of the horrible pain to his bone and it is a treat when he gets to come home. Anyway, he will be in the hospital tomorrow to start the new chemo. We are hopefully but cautious.

I would like to pm you for further talks if you are willing. I know how you are feeling and I respect your right if you do not want to share your pain with anyone. We felt like the world gave up on us when we got the news. There is not much joy in our life and it is hard to be around other people so we keep to ourself since we found out this news. Maybe one day we will be strong enough to share our experiences but for now, we just try to stay afloat.

All my best to you,

Kim

Patti1

Hugs to Anne
Anne,

1st Happy Birthday, we know your plight all to well. Since December we have had Nanoknife, did not work, IRE (did not work), 75% liver removal resection, then developed an abcess, ended back in hospital 2 more time for 21 days. CT last week showed more tumors back in the liver, guess what we are not giving up either, we just celebrated out 42nd anniversay on May 3rd. We started Vectibix last Thursday, and we pray that this will work. We decided on a feeding tube to help hubby try to gain weight and stop the weight loss, its a pain but we have again 1 pound, does not sound like a lot but we will take it vs a weight loss.
My prayers are with you and your family. Keep that feisty attitude up....and may you get a extended pass.Keep us posted

Love ya
Patti

Aud

Happy belated birthday,
Happy belated birthday, Anne. just letting you know I'm thinking about you.
~Aud

bigCrandy

never give up
Hi Anne, sorry this chemo is not working for you. I tried erbitux about a year ago and had a bad reaction to it so the onc put me on vectibix and irinotecan. After 6 months my tumors shrunk by one half then went into remission for 6 months. After a 3 month lay off from chemo it started growing again so I'm back on folfox part 2. The tumors are once again shrinking. Please Anne do not give up, fight this horrible disease with everything you have, everyone wants you to enjoy many more Happy Birthdays. God Bless you, Randy

AnneCan

Everyone
Thanks for the thoughtful, caring responses, and the suggestions; I really appreciate everything. I am headed back into the hospital tomorrow after a lovely birthday weekend. I am not sure when I will be out + able to answer questions but I definitely will. Take good care everyone!

PhillieG

AnneCan said:

Everyone
Thanks for the thoughtful, caring responses, and the suggestions; I really appreciate everything. I am headed back into the hospital tomorrow after a lovely birthday weekend. I am not sure when I will be out + able to answer questions but I definitely will. Take good care everyone!

Anne Can
get through this...
Yesterday would have been my Dad's 93rd Birthday. I hope you enjoyed yourself even with all that's going on.
hugs
-phil

lesvanb

Hugs to you, Anne
and many many more birthdays.

love, Leslie

maglets

lesvanb said:

Hugs to you, Anne
and many many more birthdays.

love, Leslie

Hi Anne
sorry to have missed your birthday.....been off in those northern woods....

happy belated....I too pray for many more birthdays.....on you go girl

hugs, mags

Erinb

Thinking of you Anne. I hope
Thinking of you Anne. I hope you enjoyed your birthday.
Erin