ca125

bleyed

I am aware that a normal ca125 is <35 .... when I was diagnosed in Jan 2011 my initial reading was 5882. Has anyone else had such a high reading?

Tethys41

CA-125
Mine was 4,600 when I was diagnosed in Aug. 2009. I know a woman who's number was 14,000 at diagnosis, and I've heard of some higher.

poopergirl14052

Tethys41 said:

CA-125
Mine was 4,600 when I was diagnosed in Aug. 2009. I know a woman who's number was 14,000 at diagnosis, and I've heard of some higher.

mine was very high too
before surgery I was in the 6000 range now I am 17 after chemo so 3 do go way down..val

poopergirl14052

Tethys41 said:

CA-125
Mine was 4,600 when I was diagnosed in Aug. 2009. I know a woman who's number was 14,000 at diagnosis, and I've heard of some higher.

mine was very high too
before surgery I was in the 6000 range now I am 17 after chemo so 3 do go way down..val

bleyed

I completed my 6 rounds of
I completed my 6 rounds of taxol/carbo every 21 days which have done wonders with my readings and prior to my last chemo my # was 135. I understand that it is only a "Marker" yet it is "Hope" to me.

Hissy_Fitz

bleyed said:

I completed my 6 rounds of
I completed my 6 rounds of taxol/carbo every 21 days which have done wonders with my readings and prior to my last chemo my # was 135. I understand that it is only a "Marker" yet it is "Hope" to me.

Mine was 4,000 at diagnosis,
Mine was 4,000 at diagnosis, and my nadir (low point) was 4.8. It is presently 13 and I have been NED for over 14 months.

Carlene

stella65

Hissy_Fitz said:

Mine was 4,000 at diagnosis,
Mine was 4,000 at diagnosis, and my nadir (low point) was 4.8. It is presently 13 and I have been NED for over 14 months.

Carlene

Abbreviations
Hi Carlene,

Could you please give me some info on abbreviations, I have seen several while looking on the forum that I don't understand NED being one of them, thank you so much X

Hissy_Fitz

stella65 said:

Abbreviations
Hi Carlene,

Could you please give me some info on abbreviations, I have seen several while looking on the forum that I don't understand NED being one of them, thank you so much X

Stella, I apologize for my
Stella, I apologize for my rudeness. I forget sometimes that there are new people here.

NED stands for "no evidence of disease". It's a term that originally was used on pathology reports, etc and we have adopted it, and sometimes call it "dancing with NED."

The other terms I can think of are:
DFI Disease Free Interval
DFS Disease Free Survival - time without disease prior to relapse or last follow-up
OS Overall Survival
PFS Progression Free Survival
QOL Quality of Life
DX Diagnosis
RBC Red blood cell / red blood count
WBC White blood count
CBC Comp0lete blood count
ACS American Cancer Society
NOCC National Ovarian Cancer Coalition
And of course, OVCA, which stands for ovarian cancer.

Carlene

LaundryQueen

Hissy_Fitz said:

Stella, I apologize for my
Stella, I apologize for my rudeness. I forget sometimes that there are new people here.

NED stands for "no evidence of disease". It's a term that originally was used on pathology reports, etc and we have adopted it, and sometimes call it "dancing with NED."

The other terms I can think of are:
DFI Disease Free Interval
DFS Disease Free Survival - time without disease prior to relapse or last follow-up
OS Overall Survival
PFS Progression Free Survival
QOL Quality of Life
DX Diagnosis
RBC Red blood cell / red blood count
WBC White blood count
CBC Comp0lete blood count
ACS American Cancer Society
NOCC National Ovarian Cancer Coalition
And of course, OVCA, which stands for ovarian cancer.

Carlene

One more abbreviation
Here's one more abbreviation: ANC -- absolute neutrophil count
I had to take a 3 week break from chemo because my ANC was too low. Neutrophils are the "new white blood cells" and reflect how suppressed the bone marrow is (from the platinum chemo). So if you want to impress your oncologist, you could ask "How's my ANC?" but if you do that, then you probably should know what's considered good! Hahahaha!

LQ

kikz

LaundryQueen said:

One more abbreviation
Here's one more abbreviation: ANC -- absolute neutrophil count
I had to take a 3 week break from chemo because my ANC was too low. Neutrophils are the "new white blood cells" and reflect how suppressed the bone marrow is (from the platinum chemo). So if you want to impress your oncologist, you could ask "How's my ANC?" but if you do that, then you probably should know what's considered good! Hahahaha!

LQ

My first CA 125
was 6900 and it escalated to 9000+ before my first chemo. 3200 after first chemo and 1600 before surgery. 13 after surgery then 7, 7, 5 and the most current was 3.

Karen

stella65

Hissy_Fitz said:

Stella, I apologize for my
Stella, I apologize for my rudeness. I forget sometimes that there are new people here.

NED stands for "no evidence of disease". It's a term that originally was used on pathology reports, etc and we have adopted it, and sometimes call it "dancing with NED."

The other terms I can think of are:
DFI Disease Free Interval
DFS Disease Free Survival - time without disease prior to relapse or last follow-up
OS Overall Survival
PFS Progression Free Survival
QOL Quality of Life
DX Diagnosis
RBC Red blood cell / red blood count
WBC White blood count
CBC Comp0lete blood count
ACS American Cancer Society
NOCC National Ovarian Cancer Coalition
And of course, OVCA, which stands for ovarian cancer.

Carlene

Thank you
Thank you Carlene, that is most helpful X

kellyh33

Ca 125
First you have to remember that most doctors don't focus on the numbers, what is important is the CT scans. Mom's number at diagnosis was 14.301.