Onco appointment following the bone scan

camul
camul Member Posts: 2,537
in Breast Cancer #1
Today I saw the MO. Was hoping that there would be some other options, but it was the same 2 as the RO had. I am going with the chemo Eribulin. It was approved for BC the end of 2010. I don't know of anyone here that is on it, but if anyone is I would love to hear how it is working. I had never heard of it myself, but it could extend my time and I am running out of options as the tumors are no longer responding to the current treatments and the cancer is spreading.

He told me that it may (which means does) have tougher side effects than the Abraxane and we will have to check my blood levels more often because it is known to lower both the platelets and the white cells, and can lower my blood pressure further which was 90/50 today, along with all of the other lovely chemo side effects.

I will not start this until next Wednesday because UHC needs to approve it, and my port is blocked. They injected a stronger dose of Heparin and hope that will unblock it, if not there is another med that they can try and clear it out with but it takes most of the day, so I am going in at 9a, so we have enough time to clear it. It beats replacing the port!

Sorry that it wasn't better news and I am pretty down tonight. This disease sucks!

~Carol
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Comments

  • Hippiechick58
    Hippiechick58 Member Posts: 320
    #2
    Thinking of you during your
    Thinking of you during your difficult time and saying prayers for you. Hang in there! You are truly a pink warrrior

    Be Well,
    Dianne
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member
    #3
    Hippiechick58 said:

    Thinking of you during your
    Thinking of you during your difficult time and saying prayers for you. Hang in there! You are truly a pink warrrior

    Be Well,
    Dianne

    Carol, Thinking of you also
    Carol, Thinking of you also and sending prayers and positive vibes your way.
    Keep that warrior fight girl!
    HUGS,
    Wanda
  • MAJW
    MAJW Member Posts: 2,510 Member
    #4
    Hippiechick58 said:

    Thinking of you during your
    Thinking of you during your difficult time and saying prayers for you. Hang in there! You are truly a pink warrrior

    Be Well,
    Dianne

    Carol..
    You are so right...this disease sucks! ! I so hoped you' d get better news...but for what ever "we" can do,remember we're here for you..we care.

    Wishing I could give you a real hug...but..so here's a big 'ole cyber hug...((((()))))))
    Nancy
  • Cinkal
    Cinkal Member Posts: 161
    #5
    Sending prayers your way
    Sending prayers your way Carol. Good luck with the new chemo treatment.
  • butterflylvr
    butterflylvr Member Posts: 944
    #6
    Cinkal said:

    Sending prayers your way
    Sending prayers your way Carol. Good luck with the new chemo treatment.

    Carol I have learned so much
    Carol I have learned so much from you already and your fight has given me more added strength in my own personal battle. I too am sending my loving prayers in your direction. Stay strong dear warrior...

    Lorrie
  • sparkle1
    sparkle1 Member Posts: 242
    #7
    Ditto. This really does
    Ditto. This really does suck!! I'm sending you tight hugs and positive thoughts and many many prayers. Hang tough! Try to rest as much as you can. We are all here for you.
    Sparkle
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #8
    butterflylvr said:

    Carol I have learned so much
    Carol I have learned so much from you already and your fight has given me more added strength in my own personal battle. I too am sending my loving prayers in your direction. Stay strong dear warrior...

    Lorrie

    Carol .. You are a WARRIOR in every sense of
    the word. Stay strong, dear Sister. Positive thoughts and prayers coming your way. Good luck with the new chemo, and your port situation.

    Gentle hugs,

    Strength, Courage and Hope.

    Vicki Sam
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #9
    sparkle1 said:

    Ditto. This really does
    Ditto. This really does suck!! I'm sending you tight hugs and positive thoughts and many many prayers. Hang tough! Try to rest as much as you can. We are all here for you.
    Sparkle

    Hugs and hope
    Dear Carol-

    I'm so sorry to read your latest news. I hope the new chemo doesn't take a huge toll on your body. I've never heard of it, but that means absolutely nothing.

    Stupid, ugly, awful, sneeky cancer! I hate it for you, me and everyone else who has done battle with it.

    Sending hugs, hope and prayers to you.


    Suzanne
  • missrenee
    missrenee Member Posts: 2,136 Member
    #10
    sparkle1 said:

    Ditto. This really does
    Ditto. This really does suck!! I'm sending you tight hugs and positive thoughts and many many prayers. Hang tough! Try to rest as much as you can. We are all here for you.
    Sparkle

    Carol, take some time to be upset,
    angry, sad, whatever you need to be. And then, come out with those boxing gloves on, dearheart, and fight, fight, fight like a girl! Even with all the side effects your doctor may tell you about--you may be the one who doesn't get them. Or, they might be much milder than you think. And, just think--this could be the drug that really works for YOU.

    My strongest positive energy is being sent to you today, Carol. Keep us informed and come here to talk.

    We care. Hugs, Renee
  • Lynn Smith
    Lynn Smith Member Posts: 1,264 Member
    #11
    sparkle1 said:

    Ditto. This really does
    Ditto. This really does suck!! I'm sending you tight hugs and positive thoughts and many many prayers. Hang tough! Try to rest as much as you can. We are all here for you.
    Sparkle

    Carol
    Just knowing there is something that could possibly work and gives you more time is good. The more time the more chances of it getting wiped out.I am praying for a miracle.Miracles happen all the time.So prayers and thoughts to you.

    I know what you mean about BP.Mine was very low last night.I had a tick in on ear(they are bad this year). I couldn't get it out.I went to Urgent Care.My BP was 98/80. It has been many many years since my BP has been that low.I felt like it was going to be up I was so upset trying to get the tick.

    "I BELIEVE!!!!" Things will work out for you.

    Lynn Smith
  • Megan M
    Megan M Member Posts: 3,000
    #12
    Cinkal said:

    Sending prayers your way
    Sending prayers your way Carol. Good luck with the new chemo treatment.

    Praying for you Carol!
    Praying for you Carol! Wishing you good luck with chemo.


    Hugs, Megan
  • jessiesmom1
    jessiesmom1 Member Posts: 915 Member
    #13
    More chemo
    Oh Carol, I am so sorry to hear about what is going on with you. You are truly a fighter and I get a lot out of reading your posts. This disease most certainly does suck big time!I wish you good luck with both your insurance company and your port problem. Please keep us posted. IRENE
  • susie09
    susie09 Member Posts: 2,930
    #14
    missrenee said:

    Carol, take some time to be upset,
    angry, sad, whatever you need to be. And then, come out with those boxing gloves on, dearheart, and fight, fight, fight like a girl! Even with all the side effects your doctor may tell you about--you may be the one who doesn't get them. Or, they might be much milder than you think. And, just think--this could be the drug that really works for YOU.

    My strongest positive energy is being sent to you today, Carol. Keep us informed and come here to talk.

    We care. Hugs, Renee

    I'm so sorry to read this
    I'm so sorry to read this Carol. You have every right to be mad or have a pity party, I would for sure. The pink sisters are here to support you in any way that we can.

    Always remember that!

    Prayers and hugs,

    Susie
  • cahjah75
    cahjah75 Member Posts: 2,631
    #15
    Carol
    I'm so sorry to hear your latest news. I hope this chemo works. Know that you are in my thoughts and prayers.
    {{hugs}} Char
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    #16
    jessiesmom1 said:

    More chemo
    Oh Carol, I am so sorry to hear about what is going on with you. You are truly a fighter and I get a lot out of reading your posts. This disease most certainly does suck big time!I wish you good luck with both your insurance company and your port problem. Please keep us posted. IRENE

    Sending prayers, hope and
    Sending prayers, hope and lots of hugs to you Carol.
  • lynn1950
    lynn1950 Member Posts: 2,570
    #17
    I've never heard of
    I've never heard of Eribulin, but I am hoping and praying that it kicks your cancer's butt! xoxoxoxoLynn
  • Noel
    Noel Member Posts: 3,095 Member
    #18
    cahjah75 said:

    Carol
    I'm so sorry to hear your latest news. I hope this chemo works. Know that you are in my thoughts and prayers.
    {{hugs}} Char

    Carol, you are in my
    Carol, you are in my thoughts and prayers.
  • jnl
    jnl Member Posts: 3,869 Member
    #19
    MAJW said:

    Carol..
    You are so right...this disease sucks! ! I so hoped you' d get better news...but for what ever "we" can do,remember we're here for you..we care.

    Wishing I could give you a real hug...but..so here's a big 'ole cyber hug...((((()))))))
    Nancy

    Wishing you the best of luck
    Wishing you the best of luck with your new chemo!


    Praying for you,


    Leeza
  • camul
    camul Member Posts: 2,537
    #20
    Thanks everyone for all the
    Thanks everyone for all the support. It certainly has been a rough road and I keep hoping and praying..... I keep learning more and more about the disease and myself. I am almost done with rads so that should help with the fatigue.
    Hoping everyone else is doing ok.

    ~Carol
  • sausageroll
    sausageroll Member Posts: 415
    #21
    camul said:

    Thanks everyone for all the
    Thanks everyone for all the support. It certainly has been a rough road and I keep hoping and praying..... I keep learning more and more about the disease and myself. I am almost done with rads so that should help with the fatigue.
    Hoping everyone else is doing ok.

    ~Carol

    Without a doubt!
    Carol, you have evry right to be upset and down....but then come out fighting!!!

    Lots of hugs and take care. Pat

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