Very new here not a clue about being a caregiver

micgrace

yv1214 said:

Checking in...
to see hope you're doing well, as well as ask how the operation went. Well I hope.

hugs from my house to yours,
Yessy

the dx
Its a glioblastoma. The dreaded stage IV. The majority was removed as it was clearly defined but was pressing into the ventricle. She deterioated somewhat on rhs movement and has little knowledge where she is. The have put her on steroids to reduce swelling.

mswijiknyc

micgrace said:

the dx
Its a glioblastoma. The dreaded stage IV. The majority was removed as it was clearly defined but was pressing into the ventricle. She deterioated somewhat on rhs movement and has little knowledge where she is. The have put her on steroids to reduce swelling.

one day at a time
and don't forget to breathe. Sending all the happy thoughts I can.

micgrace

mswijiknyc said:

one day at a time
and don't forget to breathe. Sending all the happy thoughts I can.

thanks
I am still breathing. My wife is still semi comatose after the resection. I hope she regains some functionality soon. I had so little time to prepare prior to dx and hospital and thats hard to take.

Barbara53

micgrace said:

thanks
I am still breathing. My wife is still semi comatose after the resection. I hope she regains some functionality soon. I had so little time to prepare prior to dx and hospital and thats hard to take.

looks can be deceiving
Just wanted to note that post-surgery, everyone looks like they are on death's doorstep. Looks can be deceiving! Your wife will begin to regain strength, slowly, in a few days, and will continue to improve. Don't let what you see today make you afraid of tomorrow, because there is a major plot turn coming up where you get your wife (and your life) back. Chip up!

micgrace

Barbara53 said:

looks can be deceiving
Just wanted to note that post-surgery, everyone looks like they are on death's doorstep. Looks can be deceiving! Your wife will begin to regain strength, slowly, in a few days, and will continue to improve. Don't let what you see today make you afraid of tomorrow, because there is a major plot turn coming up where you get your wife (and your life) back. Chip up!

post op
she is becoming conscious of her surroundings and can communicate. I certainly wish to regain some normality for as long as possible. Or even a cure from this dreaded menace. The glioma is the dreaded glioblastoma multiforme with median lifespan of under 12 months even with agressive therapies. However, some 1% end up living to a ripe old age. And she is a mere 42 years old.

neverquit

micgrace said:

post op
she is becoming conscious of her surroundings and can communicate. I certainly wish to regain some normality for as long as possible. Or even a cure from this dreaded menace. The glioma is the dreaded glioblastoma multiforme with median lifespan of under 12 months even with agressive therapies. However, some 1% end up living to a ripe old age. And she is a mere 42 years old.

I hope your wife becomes
I hope your wife becomes part of that 1% club. Each victory against cancer (no matter the type or stage) is a victory for anyone who has lost a loved one to this dreaded disease. I lost my husband of 31+ years to stomach cancer (7 month battle) on 1/23/11, so I am pulling for your wife and you. Take care and one day at a time.

micgrace

neverquit said:

I hope your wife becomes
I hope your wife becomes part of that 1% club. Each victory against cancer (no matter the type or stage) is a victory for anyone who has lost a loved one to this dreaded disease. I lost my husband of 31+ years to stomach cancer (7 month battle) on 1/23/11, so I am pulling for your wife and you. Take care and one day at a time.

today
An improvement today in cognitive abilities, however the right side limbs remains basically dead. She is supposed to be moved to a ward once a bed is available. My sister seen her for the first time post op and was impressed by her progress. It is good considering how she presented prior to surgery.

karenbeth

micgrace said:

today
An improvement today in cognitive abilities, however the right side limbs remains basically dead. She is supposed to be moved to a ward once a bed is available. My sister seen her for the first time post op and was impressed by her progress. It is good considering how she presented prior to surgery.

hello
I have been reading your posts and am pulling for you and your wife. I hope she continues to improve. All the best to you.

Karen

grandmafay

micgrace said:

today
An improvement today in cognitive abilities, however the right side limbs remains basically dead. She is supposed to be moved to a ward once a bed is available. My sister seen her for the first time post op and was impressed by her progress. It is good considering how she presented prior to surgery.

Also Lurking
I have also been lurking and reading of your wife's progress. In this battle we have to learn to celebrate the small improvements. Like others have said one baby step at a time. When my husband was diagnosed the literature said about a 2 yr survival. He made it six. Buying time is what it is all about. I hope you and your wife can buy many years. Fay

micgrace

grandmafay said:

Also Lurking
I have also been lurking and reading of your wife's progress. In this battle we have to learn to celebrate the small improvements. Like others have said one baby step at a time. When my husband was diagnosed the literature said about a 2 yr survival. He made it six. Buying time is what it is all about. I hope you and your wife can buy many years. Fay

thanks to all
I have been made to realise by all here that I am not alone in a desert going through a nightmare. She has good cognitive function. At least that survived the surgery and not a complaint from my wife. I would be whining like hell if it was me. Again thanks to everyone.