grade 4 glioma

micgrace

4theloveofmysis said:

temp
Hope they are watching her Lactic acid its a lab test to check for sepsis. Ask them if they ran one. If they have not ask them to check it. Just went through sepsis with my sister and Im a nurse. How high is the temp?

temp
That has been checked out by bloods and they also included an xray for congestion as the cause hasn't been established. The temp was a high 38.9 but has dropped down to 38 since and appears to be subsiding so it is suspected to be a virus of which there are many running around at the moment. Today? I will find out soon.

micgrace

Beckymarie said:

A unique experience
Dealing with brain cancer is a unique experience and I don't mean that in a good sense. It is a day-to-day and sometimes a hour-to-hour roller coaster ride. Having gone through this horrible cancer with my husband, I think of you all always and keep you in my thoughts.
Becky

nightmare
This cancer feels like a nightmare that one day I will just wake up from to find out its just a dream. Its also a real roller coaster ride with 2 steps forward and one back. At least those steps appear to be going in the right direction..... >>

4theloveofmysis

micgrace said:

shunt sucess
Hi all the shunt worked well. The fluid draining away is clear with little trace of protein but is fairly thick. No evidence of uncontrolled growth from the tumor, which is significant. She was suffering numerous seizures prior to the op, but none after. Hopefully have better news to report soon. I

micgrace how's is the wife?
Just wondering how your wife is doing?

micgrace

4theloveofmysis said:

micgrace how's is the wife?
Just wondering how your wife is doing?

wife is going well
Hi my wifes' cognitive functions are returning. The movement in her right side remains very restricted but there appears enough for physio to work on. She is booked in for her first appointment with the oncologist tomorrow. So I will see what they are proposing for treatment. I think it will be the standard radiation plus a margin for now plus chemo. Apparently almost the entire bulk of the tumor was removed.

4theloveofmysis

micgrace said:

wife is going well
Hi my wifes' cognitive functions are returning. The movement in her right side remains very restricted but there appears enough for physio to work on. She is booked in for her first appointment with the oncologist tomorrow. So I will see what they are proposing for treatment. I think it will be the standard radiation plus a margin for now plus chemo. Apparently almost the entire bulk of the tumor was removed.

your wife
glad to here she is recovery well. Hope your appt goes good tomorrow...

micgrace

4theloveofmysis said:

your wife
glad to here she is recovery well. Hope your appt goes good tomorrow...

interfering mother in law.
Hi all, spent most of the day with my wife. I have heaps of problems with a very interfering mother in law who would very much like to transfer her daughter to her home town and has used every means she can devise to interfere. The home town has no treatment options at all. We have never communicated with each other so I am not about to start now.

My sister got busted calling her every name under the sun out of range by her. She is not wanted or liked. My own view is let the mother in who has a very poisonous effect on her daughter for a short period and not say anything but be deliberately abrasive and uncommunicative with her and do anything to encourage her to move on. Luckily she is to say it kindly, not very bright although my wife knows exactly what I do to get her to move on and plays along.

Apart from my intense dislike of her contact with her daughter seems to caste a very negative shadow over my wife who just agrees with them no matter what (out of sight of them that changes very fast to laughter, smiles and general frivolity). It was her coping mechanism to come to terms with this poisonous family. Just shut up and let them say whatever nonsense comes out.

Apart from that, rad will begin about 2 weeks from now along with chemo after the surgery (both lots) has healed up significantly. This has brought to the surface the poisonous relationship my wife has with her mum that everyone has been avoiding for years.

madisonmuzz

micgrace said:

interfering mother in law.
Hi all, spent most of the day with my wife. I have heaps of problems with a very interfering mother in law who would very much like to transfer her daughter to her home town and has used every means she can devise to interfere. The home town has no treatment options at all. We have never communicated with each other so I am not about to start now.

My sister got busted calling her every name under the sun out of range by her. She is not wanted or liked. My own view is let the mother in who has a very poisonous effect on her daughter for a short period and not say anything but be deliberately abrasive and uncommunicative with her and do anything to encourage her to move on. Luckily she is to say it kindly, not very bright although my wife knows exactly what I do to get her to move on and plays along.

Apart from my intense dislike of her contact with her daughter seems to caste a very negative shadow over my wife who just agrees with them no matter what (out of sight of them that changes very fast to laughter, smiles and general frivolity). It was her coping mechanism to come to terms with this poisonous family. Just shut up and let them say whatever nonsense comes out.

Apart from that, rad will begin about 2 weeks from now along with chemo after the surgery (both lots) has healed up significantly. This has brought to the surface the poisonous relationship my wife has with her mum that everyone has been avoiding for years.

Hoping your wife is doing well
My husband of 23 years was diagnosed with a grade 4 GBM December 27, 2010. He had surgery to remove the tumor on Dec 28, 2010. The recovery period was slow, but he is doing better. He went through 30 radiation treatments and Temodar (oral chemo). They had to stop the Temodar due to chemotoxicity, he was very sick.....very scary to watch. We have started Avastin and Iritetucan. Both are IV chemotherapy. Scott is doing very well on these 2 chemos. He has regained his taste and his appetite. He is getting a little stronger each day.

I wish you well with your wife. The person that said this GBM is a rollercoaster of emotion, hit the nail sqaure on the head. It has been a nightmare, I would just like to wake up from. To make matters worse, 6 weeks after my husband had his surgery, my dad passed away unexpectedly from a blood clot in his leg. Devistating.....He was the one person that knew how to keep me positive!!!!

Scott and I take each day seperately and pray for the best. He continues to keep a positive attitude which helps me to keep one also.

I will be watching the progress of your wife. I will keep you all in my thoughts and prayers......It is in god's hands. Keep the faith and live each day to the fullest.