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conflicting pathology reports

jonnie71
jonnie71 CSN Member Posts: 26
in Ovarian Cancer #1
so get this.... as many of you know i was diagnosed 2 weeks ago with ovca. this was done when the ovary was removed they tested and found cancer. was told it was a grade 3 and that we would do surgery on the 16th to determine the stage.
last week the nurse from the oncol. office wanted me to sign a release form so that they can have their pathologist look at the biopsy
today my dr calls, of course i didn't hear the phone ring and missed the call, but she left on my voicemail that the pathology report has come back and that it better than we first thought!

It's driving me crazy... is it possible for them to misdx cancer all together?

let me know what your thoughts are, thanks\
jonnie
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Comments

  • sitchy57
    sitchy57 CSN Member Posts: 27
    #2
    conflicting reports
    Hi Jonnie it is Sitchy57, I talked to you on CSN Chat a bit ago. I also had conflicting path. reports. I had a D&C and laproscopic surgery and during the surgery my right ovary was removed with a fairly large tumor. They also did a biopsy of my uterus. The path report came back saying endometrial cancer of the uterus and ovary. I was sent to a doctor in another city that would do my hyst and debulking surgery.This doctor is a gyn. and onc., he took the tissues from my uterus and ovary and retested them. The result was that I had 2 different cancers, meaning that my cancer was not a stage 3 but a stage 1 for both cancers. Big difference in path. reports. Call doctors office first thing in the morning. Sharon
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  • jonnie71
    jonnie71 CSN Member Posts: 26
    #3
    sitchy57 said:

    conflicting reports
    Hi Jonnie it is Sitchy57, I talked to you on CSN Chat a bit ago. I also had conflicting path. reports. I had a D&C and laproscopic surgery and during the surgery my right ovary was removed with a fairly large tumor. They also did a biopsy of my uterus. The path report came back saying endometrial cancer of the uterus and ovary. I was sent to a doctor in another city that would do my hyst and debulking surgery.This doctor is a gyn. and onc., he took the tissues from my uterus and ovary and retested them. The result was that I had 2 different cancers, meaning that my cancer was not a stage 3 but a stage 1 for both cancers. Big difference in path. reports. Call doctors office first thing in the morning. Sharon

    thanks
    wow, that is great news for you :)
    yea i will call them, just anxious, trying not to get too excited. but totally num abain on the other hand.
    thanks for your reply
    jonnie
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  • sitchy57
    sitchy57 CSN Member Posts: 27
    #4
    jonnie71 said:

    thanks
    wow, that is great news for you :)
    yea i will call them, just anxious, trying not to get too excited. but totally num abain on the other hand.
    thanks for your reply
    jonnie

    Let me know
    Let me know what you hear from the doctors office. It must be pretty good if they leave a message like they did. Prayers Sharon
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  • mopar
    mopar CSN Member Posts: 1,972 Member
    #5
    PATH REPORTS
    So happy to hear that there is good news coming your way! I sure would be curious to find out why there was a mix-up, at least for the record. In the meantime, keep us informed - I will anxiously awaiting the 'good news'!

    (((HUGS)))
    Monika
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  • EvelynM
    EvelynM CSN Member Posts: 13
    #6
    mopar said:

    PATH REPORTS
    So happy to hear that there is good news coming your way! I sure would be curious to find out why there was a mix-up, at least for the record. In the meantime, keep us informed - I will anxiously awaiting the 'good news'!

    (((HUGS)))
    Monika

    Jonnie, that must have
    Jonnie, that must have thrown you, to say the least. I really hope we hear from you soon with whatever the news was!

    Evelyn xxx
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  • Cafewoman53
    Cafewoman53 CSN Member Posts: 735 Member
    #7
    Pathology
    I think they only get a preliminary report at first. I was going on my third chemo treatment when my Dr. told me I had fallopian tube cancer not ovarian. Huh? The treatment is the same and has similar outcomes. I didn't process what she told me until much later. it s extremely rare other than that it is pretty much the same as ovarian.
    I hope your news is very good !
    Colleen
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  • EvelynM
    EvelynM CSN Member Posts: 13
    #8
    Cafewoman53 said:

    Pathology
    I think they only get a preliminary report at first. I was going on my third chemo treatment when my Dr. told me I had fallopian tube cancer not ovarian. Huh? The treatment is the same and has similar outcomes. I didn't process what she told me until much later. it s extremely rare other than that it is pretty much the same as ovarian.
    I hope your news is very good !
    Colleen

    Hi Jonnie
    Just wondering how
    Hi Jonnie

    Just wondering how you are and if you got a definite diagnosis yet.

    Big hugs

    Evelyn xx
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  • jonnie71
    jonnie71 CSN Member Posts: 26
    #9
    Cafewoman53 said:

    Pathology
    I think they only get a preliminary report at first. I was going on my third chemo treatment when my Dr. told me I had fallopian tube cancer not ovarian. Huh? The treatment is the same and has similar outcomes. I didn't process what she told me until much later. it s extremely rare other than that it is pretty much the same as ovarian.
    I hope your news is very good !
    Colleen

    preliminary, nope
    the origional after the 1st surgery was atypical , then the final report said epithelial mucosist, my dr requested a second report and it said low mal. tumor, so she sent it to mda and i am still waiting on the results. when they come in we will do a (i think it is called a debulking surgery) where they will inspect every organ remove omentum and biopsy everything
    just ready to get the show on the road. the waiting and unknown is hard for me
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  • LaundryQueen
    LaundryQueen CSN Member Posts: 676
    #10
    jonnie71 said:

    preliminary, nope
    the origional after the 1st surgery was atypical , then the final report said epithelial mucosist, my dr requested a second report and it said low mal. tumor, so she sent it to mda and i am still waiting on the results. when they come in we will do a (i think it is called a debulking surgery) where they will inspect every organ remove omentum and biopsy everything
    just ready to get the show on the road. the waiting and unknown is hard for me

    Roller coaster
    Sorry that you are in this uncertain place...I was hoping they misdiagnosed the whole cancer diagnosis, too.

    (((HUGS)))
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  • jonnie71
    jonnie71 CSN Member Posts: 26
    #11
    LaundryQueen said:

    Roller coaster
    Sorry that you are in this uncertain place...I was hoping they misdiagnosed the whole cancer diagnosis, too.

    (((HUGS)))

    pathology report....did
    did this happen to you too?
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  • LaundryQueen
    LaundryQueen CSN Member Posts: 676
    #12
    jonnie71 said:

    pathology report....did
    did this happen to you too?

    Wishful thinking
    No, I was hoping YOUR cancer was misdiagnosed--for me, it was pretty clear from my pathology report that I had cancer. What wasn't clear to me was the surgeon said that I had "carcinomatosis" --I still don't know if that is an extension of OVCA or an additional problem. Whatever it is, it's not good.

    I had looked up carcinomatosis on the Internet & was resigned to a death sentence but I think it is possible to live with it for quite a while.

    I decided to quit worrying about it since everything is quiet in my belly now.

    LQ
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