An option to consider for liver mets: Interventional Radiologist

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  • srwruns
    srwruns Member Posts: 343
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    tick tick tick....do you
    tick tick tick....do you have little Geiger counters around your house? Best of luck with new procedure!
  • lindaprocopio
    lindaprocopio Member Posts: 1,980
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    srwruns said:

    tick tick tick....do you
    tick tick tick....do you have little Geiger counters around your house? Best of luck with new procedure!

    I bought a Glow-in-the-Dark shirt with the 'radioactive' symbol.
    I got a couple of shirts with the 'radioactive' icon on them to wear in my yard as warning to my neighbors and to get a smile from radioembolism team when I go for check-ups. They DID geiger-counter me several times at the hospital, and my surgeon had on a lead apron and plastic bubble suit for the operation, and the entire surgical room was 'haz-matted' with a disposable floor and sealed so that we were in complete lock-down until EVERYONE in the room was geiger-countered and stripped out of their disposable garments, etc. VERY surreal; I felt like "ET". The procedure took 3 hours and I had to be awake for it so that I can hold my breath when directed as they slid things in and out of my liver. It was grueling, and fascinating at the same time. But VERY surreal!
  • I bought a Glow-in-the-Dark shirt with the 'radioactive' symbol.
    I got a couple of shirts with the 'radioactive' icon on them to wear in my yard as warning to my neighbors and to get a smile from radioembolism team when I go for check-ups. They DID geiger-counter me several times at the hospital, and my surgeon had on a lead apron and plastic bubble suit for the operation, and the entire surgical room was 'haz-matted' with a disposable floor and sealed so that we were in complete lock-down until EVERYONE in the room was geiger-countered and stripped out of their disposable garments, etc. VERY surreal; I felt like "ET". The procedure took 3 hours and I had to be awake for it so that I can hold my breath when directed as they slid things in and out of my liver. It was grueling, and fascinating at the same time. But VERY surreal!

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  • guddia
    guddia Member Posts: 1
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    liver mets
    my husband has extensive liver mets from bladder cancer.
    Please could you give more information as you had the internal radiation procedure.
    Thanks and wish you all the best
    Dolly
  • wlkdnose
    wlkdnose Member Posts: 45
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    guddia said:

    liver mets
    my husband has extensive liver mets from bladder cancer.
    Please could you give more information as you had the internal radiation procedure.
    Thanks and wish you all the best
    Dolly

    Amazing
    I hope you are feeling so much better now! What an experience...
  • lindaprocopio
    lindaprocopio Member Posts: 1,980
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    wlkdnose said:

    Amazing
    I hope you are feeling so much better now! What an experience...

    GUDDIA: more on radioembolism
    I found an article that tells more about radioembolism that you may want to read:
    http://www.sciencedaily.com/releases/2011/03/110328092409.htm?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed:+sciencedaily+(ScienceDaily:+Latest+Science+News)

    I recently got an email from a young woman with ovarian cancer (mets to the liver) that just had her 'mapping' done in preparation for the same radioembolism that I had, so this treatment IS being used for other cancers with liver mets, even without FDA approval. This particular radioembolism article mentions Ovarian Cancer:
    http://www.medscape.com/viewarticle/558194

    And if you would like to read my first-hand account of my own experience with it, you (and anyone else posting here) are welcome to register at my CaringBridge blog and read my blow-by-blow descriptions of the various treatments I've had:
    http://www.caringbridge.org/visit/lindaprocopio
  • kayandok
    kayandok Member Posts: 1,202 Member
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    GUDDIA: more on radioembolism
    I found an article that tells more about radioembolism that you may want to read:
    http://www.sciencedaily.com/releases/2011/03/110328092409.htm?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed:+sciencedaily+(ScienceDaily:+Latest+Science+News)

    I recently got an email from a young woman with ovarian cancer (mets to the liver) that just had her 'mapping' done in preparation for the same radioembolism that I had, so this treatment IS being used for other cancers with liver mets, even without FDA approval. This particular radioembolism article mentions Ovarian Cancer:
    http://www.medscape.com/viewarticle/558194

    And if you would like to read my first-hand account of my own experience with it, you (and anyone else posting here) are welcome to register at my CaringBridge blog and read my blow-by-blow descriptions of the various treatments I've had:
    http://www.caringbridge.org/visit/lindaprocopio

    Linda,
    thank you for keeping us up to date on your experience. I hope you are feeling better and this is the magic bullet for you!

    I am just facsinated with this procedure, and at the same time so confused about all the different types of radiation that is actually out there. I met with the professor of radiology last week at my uni hospital and he referred me to a radiation center that does the high ion type directly to the tumor. I am thinking now that it might work for my tumor on the vena cava (has been there for 2 years in spite of chemo and is now about 3cm). I have an appointment next Tuesday after my PET on Monday (they are getting me the results by MOnday evening to take with me) to discuss this with the specialist. You may understand the info better than I do. I hope that I have a better understanding after Tuesday. I will post more about it then.

    k❤

    http://www.hibmc.shingu.hyogo.jp/english/ionbeam.html