Update from the GreenHouse (Year 2? seriously?)

leesag
leesag Member Posts: 621 Member
in Ovarian Cancer #1
Ok...as you know, CA125 had jumped from 13 to 36. Big concern for me as it has more than doubled (however, still nowhere near the almost 10,000 it was at diagnosis!). Saw my med/onc. today. She says it's concerning but could just be a blip. (told me to stop smoking lol). Had another blood draw today and if it's still elevated will do a CT scan Wednesday. For some reason, I'm not freaking. I figure, worst case scenario, I'll do second line chemo, lose some hair and get another year. (Yes, I know that's not worst case, but it's all I'm willing to consider at this point.)

At any rate, keep me in your prayers, you know you're in mine.

Hugs,

Leesa

Comments

  • Christine B.
    Christine B. Member Posts: 137
    #2
    Leesa
    You certainly will be in my thoughts and prayers for a good CT scan and no worst case scenarios for you! Hugs right back to you, Chris
  • kikz
    kikz Member Posts: 1,345 Member
    #3
    Leesa
    I will certainly keep you in my prayers and send nothing but good thoughts your way.

    Karen
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #4
    You are rocking that
    You are rocking that attitude, girlfriend. I was in exactly the same place (not a CA125 rise, but other symptoms of recurrence) and I felt the same way....if it is, it is. I'll just suit up for round two.

    Great advice on the smoking, but not the best time to give up cigarettes. I would ignore that for now, and work on it after everything has settled down. I quit a good 15 years ago, and in moments of stress, I still find myself thinking, "Where did I put my cigarettes?"

    I had my blood drawn today for a new number. I will get the results tomorrow. I keep telling myself not to freak if it's up because today the NYC doctor called and gave me the results of my UA....a raging UTI. That explains the urinary urgency, and the hiatial hernia, which I didn't have before, is behind the abdominal pain.

    Carlene
  • carolenk
    carolenk Member Posts: 907 Member
    #5
    Hissy_Fitz said:

    You are rocking that
    You are rocking that attitude, girlfriend. I was in exactly the same place (not a CA125 rise, but other symptoms of recurrence) and I felt the same way....if it is, it is. I'll just suit up for round two.

    Great advice on the smoking, but not the best time to give up cigarettes. I would ignore that for now, and work on it after everything has settled down. I quit a good 15 years ago, and in moments of stress, I still find myself thinking, "Where did I put my cigarettes?"

    I had my blood drawn today for a new number. I will get the results tomorrow. I keep telling myself not to freak if it's up because today the NYC doctor called and gave me the results of my UA....a raging UTI. That explains the urinary urgency, and the hiatial hernia, which I didn't have before, is behind the abdominal pain.

    Carlene

    Praying for good lab results
    Dear Leesa & Carlene

    I'm praying you both have good lab results. Hope the time flies until the results are in.

    Carolen
  • kayandok
    kayandok Member Posts: 1,202 Member
    #6
    You got it!
    Know I'm praying today Leesa.
    hugs,
    kathleen
  • srwruns
    srwruns Member Posts: 343
    #7
    best of luck...thinking
    best of luck...thinking about you and hoping all comes out well.
  • Tina Brown
    Tina Brown Member Posts: 1,036 Member
    #8
    Learning to live with cancer
    I understand your attitude about not freaking. When I was diagnosed I spend the whole of the following 12 months thinking I had a death sentence and would not be around for much longer. Therefore I acted and behaved like a VICTIM. It ruled my life and looking back I was living a HALF LIFE.

    What an utter waste of a year. When my numbers jumped from 70 - 1,288 and I went back onto chemo I eventually realised that THIS IS MY LIFE NOW. I cannot keep wasting it away feeling sorry for myself and waiting to die. So I have learned to live my life to the full. Yes I have cancer and I will have to manage it for the rest of my life with chemo. That is me now.

    As long as I can stay relatively fit and healthy so I can tolerate chemo then I can continue with my NEW life. I have finally accepted that I can no longer do all of the things I used to do (running & working full time) I have found a way to do some of them (I work part time & swim with a bit of running)

    My dad always says "It is as it is" We can not do anything other than what we are doing so I try not to be too hard on myself any more.

    Love Tina

    By the way my numbers came right down to 122.
  • Rookerbird
    Rookerbird Member Posts: 100
    #9
    Tina Brown said:

    Learning to live with cancer
    I understand your attitude about not freaking. When I was diagnosed I spend the whole of the following 12 months thinking I had a death sentence and would not be around for much longer. Therefore I acted and behaved like a VICTIM. It ruled my life and looking back I was living a HALF LIFE.

    What an utter waste of a year. When my numbers jumped from 70 - 1,288 and I went back onto chemo I eventually realised that THIS IS MY LIFE NOW. I cannot keep wasting it away feeling sorry for myself and waiting to die. So I have learned to live my life to the full. Yes I have cancer and I will have to manage it for the rest of my life with chemo. That is me now.

    As long as I can stay relatively fit and healthy so I can tolerate chemo then I can continue with my NEW life. I have finally accepted that I can no longer do all of the things I used to do (running & working full time) I have found a way to do some of them (I work part time & swim with a bit of running)

    My dad always says "It is as it is" We can not do anything other than what we are doing so I try not to be too hard on myself any more.

    Love Tina

    By the way my numbers came right down to 122.

    Amen!
    Amen, Tina! I too reached a personal awareness that worrying will simply make my life worse. I still get discouraged some days, but try to redirect my thoughts.

    * Do my best today.

    * Enjoy today.

    * Stifle my worries about things that are out of my control (which is EVERYTHING!)

    * Trust that God is in control.
  • Mwee
    Mwee Member Posts: 1,338
    #10
    Dear Leesa
    Wanted to say that I'm thinking of you. I think you're not freaking because you've "been there, done that" and you wear those Big Girl Panties well. Here's hoping for a blip!

    I quit smoking about 16 years ago and I agree that today might not be the best day to try and accomplish that goal.. :). For quite awhile I would have this recurring dream that I was on a beach smoking away!
    (((HUGS))) Maria
  • Rookerbird
    Rookerbird Member Posts: 100
    #11
    Hoping
    Leesa, I'm hoping you won't need the scan, but glad to hear you're not overly stressed either way.

    PS For some reason, I now have Chic's classic disco song "Le Freak" running through my head. Boogie woogie!
  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    #12
    Here's hoping for a best
    Here's hoping for a best case scenario ! Good Luck you are in my thoughts today !
    Colleen

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