I had taken some time off from forums
I don't have much in the way of specifics, except it is bad. Involvement in the sacrum, the intramedullary space, presacral region, both pelvic side walls, encasement of the distal ileal loop and a "massive tumor" to boot.
The CT films look amazing. Sadly, now I know what I am looking at and I did not need to see the radiologist's report to know I was in trouble.
Both my surgeon and oncologist are working toward getting me to see a doctor at MSKCC. I forget his name - begins with a P I think. The day was pretty traumatic over all, so I can't recall for sure.
On the upside I get to watch a CT guided percutaneous biopsy of a sacral mass. Then downside is, of course, it is my mass.
Oh, and I get a new PET scan - those things are so cool. The software for viewing them is kind of crappy and only allows you to export the images one at a time and considering the number of them and the options for viewing them, it is just not practical.
It looks a lot like I will have an ileostomy again (permanent this time), assuming I survive long enough to get to that point. I do not mean to sound alarmist or pessimistic, I just don't know enough details yet and I am of course nervous, since much of the area is not operable, just treatable. I assume treatment is largely radiation, but it is still early and as I said, I don't have much information yet.
At least this all explains why my post takedown recovery has been going so poorly.
On an up note, we have had my daughter and grandson visiting for the better part of ten days now and it has been such a happy time. I really hated to have to tell my daughter the news and add some rain clouds to the visit, but I thought that batter than telling her after she got back to Colorado. She leaves tomorrow and we just had my appointment today and I would rather tell her face to face than over the phone. The calls to the boys were very hard to make.
If you are a praying type, I covet your prayers - selfishly for me, but mostly for my wife, Sally.
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