fatigue
Comments
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MindCOBRA666 said:FATIGUE AND THE MIND
Michele,
Your post is is ditto for me as well. The short term is gone.I will have a flashback and think something was said today and it was actually last week. John(FNHL-1-4A-5/10)
Isn't almost scary?I even went so far as ask my docs if maybe I was coming down with Alzheimer's.I do everything I can to keep my mind working.Many times my brain and hands don't connect and what I want to say isn't what I write or say.Makes me crazy!!!!0 -
MindMichele23 said:Mind
Isn't almost scary?I even went so far as ask my docs if maybe I was coming down with Alzheimer's.I do everything I can to keep my mind working.Many times my brain and hands don't connect and what I want to say isn't what I write or say.Makes me crazy!!!!
Hi Michele,
I think what bothers me the most is that I can't handle multi-tasking like I use to. I was like the lady on the t.v. commercial holding the baby on her hip, frying the bacon and doing 10 things at one time. Now when I'm faced with a multitude of tasks I have to break it all down, think it through, and then decide which things I'm going to do and which things I'm just NOT going to do. The "NOT" list appears to be winning out more often than the "going to do" list!..ha! I also knowticed I get frustrated when someone asks me a string of questions. I'm like.."ok, start over, what was the first question?" Steve will ask me "where is this" or where is that" and I immediately go into a panic mode because I literally have to stop and focus where I've put something. In the past, I knew in a flash exactly where things were at. I'm a very organized person (thank goodness), because eventually I DO remember where things have been stored, and being organized helps BIG TIME when the memory finally kicks in. I'd be @#*! up the creek without a paddle if I didn't stay organized...ha! Now the flip side...I don't get as excited as much anymore when a crisis occurs. I use to get all crazy and hyped out when the kids had a problem, or if friends were dealing with a bad situation...but not now. I don't have that sense of urgency to jump in and try to "fix" things, or be the "controller". This I "LIKE", because it finally taught me that I'm not suppose to be the "fixer", or "solver" of everyones problems in the first place. Some things people just have to take care of on their own...(DUH) after 40 years of thinking it was MY job!...ha! Anyways...the mind thing after chemo seems to affect all of us in one way or another,but it's always nice to hear others stories so that we don't feel like we are the only crazy person running around...haha!
Love...Sue...(FNHL-2-3A-6/10)0 -
The lame brainallmost60 said:Mind
Hi Michele,
I think what bothers me the most is that I can't handle multi-tasking like I use to. I was like the lady on the t.v. commercial holding the baby on her hip, frying the bacon and doing 10 things at one time. Now when I'm faced with a multitude of tasks I have to break it all down, think it through, and then decide which things I'm going to do and which things I'm just NOT going to do. The "NOT" list appears to be winning out more often than the "going to do" list!..ha! I also knowticed I get frustrated when someone asks me a string of questions. I'm like.."ok, start over, what was the first question?" Steve will ask me "where is this" or where is that" and I immediately go into a panic mode because I literally have to stop and focus where I've put something. In the past, I knew in a flash exactly where things were at. I'm a very organized person (thank goodness), because eventually I DO remember where things have been stored, and being organized helps BIG TIME when the memory finally kicks in. I'd be @#*! up the creek without a paddle if I didn't stay organized...ha! Now the flip side...I don't get as excited as much anymore when a crisis occurs. I use to get all crazy and hyped out when the kids had a problem, or if friends were dealing with a bad situation...but not now. I don't have that sense of urgency to jump in and try to "fix" things, or be the "controller". This I "LIKE", because it finally taught me that I'm not suppose to be the "fixer", or "solver" of everyones problems in the first place. Some things people just have to take care of on their own...(DUH) after 40 years of thinking it was MY job!...ha! Anyways...the mind thing after chemo seems to affect all of us in one way or another,but it's always nice to hear others stories so that we don't feel like we are the only crazy person running around...haha!
Love...Sue...(FNHL-2-3A-6/10)
Sue,
I read your post and like most of them that are more than a paragraph long I have to go back and read them again. Thats how short my memory is. Its no joking matter thats for sure. Somebody calls me on the phone and if the conversation lasts more than 10 minutes I can not remember the main reason they called. I don't know if you are that bad or not. John(FNHL-1-4A-5/10)0 -
Somewhat..COBRA666 said:The lame brain
Sue,
I read your post and like most of them that are more than a paragraph long I have to go back and read them again. Thats how short my memory is. Its no joking matter thats for sure. Somebody calls me on the phone and if the conversation lasts more than 10 minutes I can not remember the main reason they called. I don't know if you are that bad or not. John(FNHL-1-4A-5/10)
Yes...I do find that I have to re-read things at times to fully comprehend and retain the content. Phone calls? Nope, not at all. I can still talk for hours and remember everything..(7 sisters...remember)ha! Sorry my prior post rambled..I'm a yapper..ugh!
Sue..(FNHL-2-3A-6/10)0 -
Phone callsallmost60 said:Somewhat..
Yes...I do find that I have to re-read things at times to fully comprehend and retain the content. Phone calls? Nope, not at all. I can still talk for hours and remember everything..(7 sisters...remember)ha! Sorry my prior post rambled..I'm a yapper..ugh!
Sue..(FNHL-2-3A-6/10)
Sue,
The only way I can remember everything is if someone is listening and ask what were you ralking about when this or that was said. That triggers it. Other wise I am lost in the 50's. Its so weird I can remember stuff from when I was a little kid right down to what I was wearing,but can't remember what I had for dinner last night. John(FNHL-1-4A-5/10)0 -
ArticleCOBRA666 said:Phone calls
Sue,
The only way I can remember everything is if someone is listening and ask what were you ralking about when this or that was said. That triggers it. Other wise I am lost in the 50's. Its so weird I can remember stuff from when I was a little kid right down to what I was wearing,but can't remember what I had for dinner last night. John(FNHL-1-4A-5/10)
Hi,
There is an article in the new Cure mag on chemobrain, brain fog, what ever you want to call it. The article is pretty good and lists all the symptoms we have mentioned here. If you get the mag, currently the on-line issue take a look. It even brings up multi-tasking which was never a problem for me before but is now after RCHOP. Also word finding, math, reading and so much more. And it does say that the older you are the slower you seem to be at getting it back, if you do.
Leslie0 -
Chemobrainyesyes2 said:Article
Hi,
There is an article in the new Cure mag on chemobrain, brain fog, what ever you want to call it. The article is pretty good and lists all the symptoms we have mentioned here. If you get the mag, currently the on-line issue take a look. It even brings up multi-tasking which was never a problem for me before but is now after RCHOP. Also word finding, math, reading and so much more. And it does say that the older you are the slower you seem to be at getting it back, if you do.
Leslie
That's such a good magazine have been getting it for many years now.I'll look forward to my copy.So what shall we call our little group here the "space cadets",seems we are all doing the same things?Funny how the docs don't tell us these things.They just sorta give us the look when we mention this.Thanks for sharing,Michele0 -
Space CadetsMichele23 said:Chemobrain
That's such a good magazine have been getting it for many years now.I'll look forward to my copy.So what shall we call our little group here the "space cadets",seems we are all doing the same things?Funny how the docs don't tell us these things.They just sorta give us the look when we mention this.Thanks for sharing,Michele
That sounds as good as any name I can think of. I remember back in the the day thats what we called the Druggies.You think maybe its a payback for some of us? LOL.0 -
Chemobrain here also...Michele23 said:Chemobrain
That's such a good magazine have been getting it for many years now.I'll look forward to my copy.So what shall we call our little group here the "space cadets",seems we are all doing the same things?Funny how the docs don't tell us these things.They just sorta give us the look when we mention this.Thanks for sharing,Michele
I am a year and 5 months out of my last radiation treatment and before that I had 6 months of ABVD before that. When they did ABVD i was at the clinic for like 5 hours for treatments. I cant remember which part of the ABVD my doctor took me off after 4 treatments because I was showing severe nerve damage in my hands and arms. I had no idea I had problems with my memory until I started back to school last semester and now I am being treated for chemobrain. Sucks being half way through a semester in school to find out I might have to drop the classes for this semester because my grades have suffered some because I simply cant remember info for tests and such even after studying for hours and days before the tests.
Now I am trying to get into the Brain Fittness center program here in our City at Saint Lukes. 
Hopefully they can help me.
Cobra I have the same problem as you do... I can remember everything up until I had chemo but now I have issues remembering what I did the other day or said to someone or what someone said to me. I have a friend that is a nurse and her and I hang out a lot and she would always ask me things or tell me things and then like the next day I would ask her what she was doing and she would be like. I told you what I was doing today.. and we would argue that she never told me but apparently she would tell me upwards of 4-5 times and I wouldn't remember what she told me.0 -
chemo brainZarx said:Chemobrain here also...
I am a year and 5 months out of my last radiation treatment and before that I had 6 months of ABVD before that. When they did ABVD i was at the clinic for like 5 hours for treatments. I cant remember which part of the ABVD my doctor took me off after 4 treatments because I was showing severe nerve damage in my hands and arms. I had no idea I had problems with my memory until I started back to school last semester and now I am being treated for chemobrain. Sucks being half way through a semester in school to find out I might have to drop the classes for this semester because my grades have suffered some because I simply cant remember info for tests and such even after studying for hours and days before the tests. Now I am trying to get into the Brain Fittness center program here in our City at Saint Lukes. Hopefully they can help me.
Cobra I have the same problem as you do... I can remember everything up until I had chemo but now I have issues remembering what I did the other day or said to someone or what someone said to me. I have a friend that is a nurse and her and I hang out a lot and she would always ask me things or tell me things and then like the next day I would ask her what she was doing and she would be like. I told you what I was doing today.. and we would argue that she never told me but apparently she would tell me upwards of 4-5 times and I wouldn't remember what she told me.
i have that problem to my ex husband had to start heping me a lot because we have a 13 year old daughter together and i dropped all child support for his help but now he blames everything on me and now my daughter does the same thing whenever i ask her if she did somthing itold her to she really gets upset becaause i cant remember my three older children laugh at me and the fatigue no o e understands ihad no one to talk to but my homrcare giver its so nice to find other people who feel like me and i know its not all in my head.thanks for being there. denise hope you can make sense out of this its so hard to think about what im writing.0 -
perfectlyscuttlebug said:chemo brain
i have that problem to my ex husband had to start heping me a lot because we have a 13 year old daughter together and i dropped all child support for his help but now he blames everything on me and now my daughter does the same thing whenever i ask her if she did somthing itold her to she really gets upset becaause i cant remember my three older children laugh at me and the fatigue no o e understands ihad no one to talk to but my homrcare giver its so nice to find other people who feel like me and i know its not all in my head.thanks for being there. denise hope you can make sense out of this its so hard to think about what im writing.
I understand perfectly.They have the problem,not you. John(fnhl-1-4a-5/10)0 -
fatiguescuttlebug said:Loss
dear Michele how do you cope? I was like you strong now whenever I get up I find myself sitting for two or three hours before I even feel like moving, everyone around me thinks that its just in my head, and no one understands how tiered I really am.
~denise
Hi Denise and everyone:
I am reading my stuff. I had my last treatment for follicular non-hodgkins lymphoma stage 4 with bone marrow involvement.
I feel the same way just darn tired and not myself at all. I just went through a scan and it was good. But I do not fee the best.
I know it is not in my head. We may never be the same. You can not tell me you get radiation and chemo then Zevalin and you should feel the same as you did.
Not in my book.
I also sit for a few hrs at a time. But have tried to walk 30 min. every other day at least.
Hilde0 -
almost hoplesstCOBRA666 said:perfectly
I understand perfectly.They have the problem,not you. John(fnhl-1-4a-5/10)
thanks for your support and understading i just felt at the end of my rope until i talked to the cancer society and they told me about this support line and going back to church with god knowing that i am not alon in feeling this way helps. denise0 -
Not Alonescuttlebug said:almost hoplesst
thanks for your support and understading i just felt at the end of my rope until i talked to the cancer society and they told me about this support line and going back to church with god knowing that i am not alon in feeling this way helps. denise
Denise,
Believe me you are not alone in this battle. I think everybody on here can relate with you in some way. We have all been thru it and some still are. It doesn't matter if you have all kinds of support from your family and friends or not,although it makes it easier,you still have that alone feeling. We are going thru something that we have never experienced before. Sadly there will be thousands of others that will go thru this at some time. I looked up the number of new cases of lymphoma one time and there are thousands diagnosed every year. Remember that is diagnosed cases. There are thousands more that go undiagnosed. It is scary to say the least and also a serious condition to be in. The way you feel is normal and you will have up and down days as you go along. Just stick with us and we will give you the support you need. This is a great place to be even though not your most favorite. John(FNHL-1-4A-5/10)0 -
feeling hoplessCOBRA666 said:Not Alone
Denise,
Believe me you are not alone in this battle. I think everybody on here can relate with you in some way. We have all been thru it and some still are. It doesn't matter if you have all kinds of support from your family and friends or not,although it makes it easier,you still have that alone feeling. We are going thru something that we have never experienced before. Sadly there will be thousands of others that will go thru this at some time. I looked up the number of new cases of lymphoma one time and there are thousands diagnosed every year. Remember that is diagnosed cases. There are thousands more that go undiagnosed. It is scary to say the least and also a serious condition to be in. The way you feel is normal and you will have up and down days as you go along. Just stick with us and we will give you the support you need. This is a great place to be even though not your most favorite. John(FNHL-1-4A-5/10)
john thanks for your reply i need totalk to people who understands since the people around me dont undrtstand my exhusband acts like he thinks its no big deal and now its rubbed off on my 13 yesr old daughter and she tells me she doesnt care if im sick and argues with me all of the time they both of them tells me i can get up off the couch if i wanted to they act like i enjoy been like this whenever i used to work a lot and stayed active. mabey your right they need the help or mabey god. denise0 -
feeling alonehilde451 said:fatigue
Hi Denise and everyone:
I am reading my stuff. I had my last treatment for follicular non-hodgkins lymphoma stage 4 with bone marrow involvement.
I feel the same way just darn tired and not myself at all. I just went through a scan and it was good. But I do not fee the best.
I know it is not in my head. We may never be the same. You can not tell me you get radiation and chemo then Zevalin and you should feel the same as you did.
Not in my book.
I also sit for a few hrs at a time. But have tried to walk 30 min. every other day at least.
Hilde
dear hilde thank you for your understanding and support i am really feeling alone tonight my family doest seem to understand ileave books lying around but no one is intersted in reading them they are to busy telling me how i shoud feel i guess im really feeling sorry for myself tonight just had a huge argument with my exhusband and my daughter which is aconstant with my daughter and on the days hes off work shes worse. this seems odd talking talking on line since i have never really used a computer much thanks for listening and understang i wll pray that you will feel better. mabey in time we will both feel better let me know how you are feeling or if you need someone to talk to. denise0 -
feeling alonehilde451 said:fatigue
Hi Denise and everyone:
I am reading my stuff. I had my last treatment for follicular non-hodgkins lymphoma stage 4 with bone marrow involvement.
I feel the same way just darn tired and not myself at all. I just went through a scan and it was good. But I do not fee the best.
I know it is not in my head. We may never be the same. You can not tell me you get radiation and chemo then Zevalin and you should feel the same as you did.
Not in my book.
I also sit for a few hrs at a time. But have tried to walk 30 min. every other day at least.
Hilde
dear hilde thank you for your understanding and support i am really feeling alone tonight my family doest seem to understand ileave books lying around but no one is intersted in reading them they are to busy telling me how i shoud feel i guess im really feeling sorry for myself tonight just had a huge argument with my exhusband and my daughter which is aconstant with my daughter and on the days hes off work shes worse. this seems odd talking talking on line since i have never really used a computer much thanks for listening and understang i wll pray that you will feel better. mabey in time we will both feel better let me know how you are feeling or if you need someone to talk to. denise0 -
How have you been today?scuttlebug said:feeling hopless
john thanks for your reply i need totalk to people who understands since the people around me dont undrtstand my exhusband acts like he thinks its no big deal and now its rubbed off on my 13 yesr old daughter and she tells me she doesnt care if im sick and argues with me all of the time they both of them tells me i can get up off the couch if i wanted to they act like i enjoy been like this whenever i used to work a lot and stayed active. mabey your right they need the help or mabey god. denise
Denise,
Just wondering how things are going for you today. Keep hanging in there with us. You do not need people that do not understand you being around you. Like i was saiyng before they will make you worse with the way you feel about yourself. Its awful how people do people sometimes. they treat them bad,but why? They do not understand what you are going thru and in some cases they just do not care. Sometimes its a defense mechanism that people throw up because they are scared themsrlves. I do not feel it is the case here. I do not really know you or your family so it is kind of difficult to tell one way or the other at what is going on here. Just stick with us and we will see you thru this because everyone of us has been thru it with the diagnosis and treatments. Take care,John(FNHL-1-4A-5/10)0 -
Take careCOBRA666 said:How have you been today?
Denise,
Just wondering how things are going for you today. Keep hanging in there with us. You do not need people that do not understand you being around you. Like i was saiyng before they will make you worse with the way you feel about yourself. Its awful how people do people sometimes. they treat them bad,but why? They do not understand what you are going thru and in some cases they just do not care. Sometimes its a defense mechanism that people throw up because they are scared themsrlves. I do not feel it is the case here. I do not really know you or your family so it is kind of difficult to tell one way or the other at what is going on here. Just stick with us and we will see you thru this because everyone of us has been thru it with the diagnosis and treatments. Take care,John(FNHL-1-4A-5/10)
Well said John! Kellie0 -
Unbelievablescuttlebug said:feeling hopless
john thanks for your reply i need totalk to people who understands since the people around me dont undrtstand my exhusband acts like he thinks its no big deal and now its rubbed off on my 13 yesr old daughter and she tells me she doesnt care if im sick and argues with me all of the time they both of them tells me i can get up off the couch if i wanted to they act like i enjoy been like this whenever i used to work a lot and stayed active. mabey your right they need the help or mabey god. denise
Hello Denise,
I hope you are holding up considering your lack of support from those around you.
As far as your 13 year old daughter. Perhaps she is in denial, and unable to cope with your DX. 13 is a very rough age anyway, but still I wish eventually she will understand. Sadly to say, the teens is a terrible time for everyone around them. Even in the good times. They are completely absorbed with themselves.
I received treatment of Rituxan in Dec 2009. The onclology department had the most wonderful social worker. Is there a social worker available to you?
Please always post your thoughts and fears. We are hear for you.
Love Maggie0
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