I met Nancy 591!!!!!!!

Hissy_Fitz
Hissy_Fitz Member Posts: 1,834
in Ovarian Cancer #1
She is just as cute and perky in person as her virtual self is here on the message board. Maybe cuter. And her husband is soooooooooo nice.

I am delighted that I have had the chance to meet 3 of my wonderful teal sisters in the flesh: Joanie (JLo), Annie, and Nancy. It is so nice to put a face and a real voice to the words I have been reading for the last year and a half. It has been the best part about the clinical trial experience, thus far. It would be a real plus if the vaccine turned out to be a winner, but if not, at least I can say that I had the chance to hang out with these amazing ladies for a little while.

I go back to NYC in mid-April. No injection this time, just blood work, a CT scan, and a check over by Dr S (and perhaps one or more members of his posse).

It was rainy and cold. Maybe by my next trip, Spring will have found its way to the Big Apple.

Carlene
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Comments

  • azgrandma
    azgrandma Member Posts: 609 Member
    #2
    Come out to az when you can
    maybe some day you can come to arizona and we can meet
  • kayandok
    kayandok Member Posts: 1,202 Member
    #3
    So jealous!
    And so happy for all of you! I also found out that I will qualify for what I think is the same trial in 6 months at Swedish hospital in Seattle. Details forthcomoing. I am going to have to read up on the details.
    k

    PS Hawaii in June anyone? I'm thinking Honolulu, get our own rooms and hang out for a few days on the beach. I need to stop over then on my way to the States. If there is another central location in the States that a lot of us could go to, it would even be better. I'm open for ideas. I feel stuck over here in japan and want to put faces to all your words and thoughts. YOu have become my virtual famly and i know we have a lot to share and would have so muc fun.
  • LaundryQueen
    LaundryQueen Member Posts: 676
    #4
    kayandok said:

    So jealous!
    And so happy for all of you! I also found out that I will qualify for what I think is the same trial in 6 months at Swedish hospital in Seattle. Details forthcomoing. I am going to have to read up on the details.
    k

    PS Hawaii in June anyone? I'm thinking Honolulu, get our own rooms and hang out for a few days on the beach. I need to stop over then on my way to the States. If there is another central location in the States that a lot of us could go to, it would even be better. I'm open for ideas. I feel stuck over here in japan and want to put faces to all your words and thoughts. YOu have become my virtual famly and i know we have a lot to share and would have so muc fun.

    clinical trial at Swedish Cancer Institute
    I looked at the exclusion criteria for those studies and all I can say is that it's a miracle if you qualified for one of them. There are so many variables that I can understand why the clinical trials are so restrictive. I am hoping for the best outcome for you. May your trip to Hawaii be a healing one...maybe you can find a traditional kahuna healer there.
  • jloe
    jloe Member Posts: 174
    #5
    Sorry I missed you and Bob
    I am in my own wild world of work and nonsense. I hope to see you in mid-April and the weather WILL be better. Thank you for doing this for all of us and for the prevention for others in the future. I feel and I know all of the others do too that no one should have to discover this like we do.

    Thanks for being you!!!!!!
  • lindaprocopio
    lindaprocopio Member Posts: 1,980 Member
    #6
    jloe said:

    Sorry I missed you and Bob
    I am in my own wild world of work and nonsense. I hope to see you in mid-April and the weather WILL be better. Thank you for doing this for all of us and for the prevention for others in the future. I feel and I know all of the others do too that no one should have to discover this like we do.

    Thanks for being you!!!!!!

    I'm so jealous! I would LOVE to meet the gang here in person.
    If I ever get a break from chemo, I may have to take a road trip, because I would so love to meet you all in person!
  • Lisa13Q
    Lisa13Q Member Posts: 677
    #7
    Nancy 591
    Isn't she wonderful? I met her as well, in the waiting room at MSKCC......what a wonderful person.......maybe we can all get together in May in NYC..
  • jloe
    jloe Member Posts: 174
    #8
    Lisa13Q said:

    Nancy 591
    Isn't she wonderful? I met her as well, in the waiting room at MSKCC......what a wonderful person.......maybe we can all get together in May in NYC..

    I'm here in NY 24/7
    I can go to any treatment center to hang out and meet. I must have the special pass card LOL!
  • Lisa13Q
    Lisa13Q Member Posts: 677
    #9
    jloe said:

    I'm here in NY 24/7
    I can go to any treatment center to hang out and meet. I must have the special pass card LOL!

    we will definitely get together
    As caretaker, it is my responsibility to make sure all you girls are ok...so I will make arrangements!!
  • anicca
    anicca Member Posts: 334 Member
    #10
    kayandok said:

    So jealous!
    And so happy for all of you! I also found out that I will qualify for what I think is the same trial in 6 months at Swedish hospital in Seattle. Details forthcomoing. I am going to have to read up on the details.
    k

    PS Hawaii in June anyone? I'm thinking Honolulu, get our own rooms and hang out for a few days on the beach. I need to stop over then on my way to the States. If there is another central location in the States that a lot of us could go to, it would even be better. I'm open for ideas. I feel stuck over here in japan and want to put faces to all your words and thoughts. YOu have become my virtual famly and i know we have a lot to share and would have so muc fun.

    I'll be in the Bay Area
    I'll be in the Bay Area (Oakland & Berkeley) from May 29th to June 14. Not central, but that's where I'll be. Swruns & I are hoping to meet then, and it would be great to meet as many as possible.
  • jloe
    jloe Member Posts: 174
    #11
    Lisa13Q said:

    we will definitely get together
    As caretaker, it is my responsibility to make sure all you girls are ok...so I will make arrangements!!

    OK
    I would prefer to meet at few more fun places and I know we can swing that.
  • clamryn
    clamryn Member Posts: 508
    #12
    Would love to meet all of you
    I would love to meet all of you. All of you are such brave strong women. I am currently still under treatment and I really don't see an end in site. It sounds like it would be so much fun. I am so jealous!!!!

    Linda
  • azgrandma
    azgrandma Member Posts: 609 Member
    #13
    clamryn said:

    Would love to meet all of you
    I would love to meet all of you. All of you are such brave strong women. I am currently still under treatment and I really don't see an end in site. It sounds like it would be so much fun. I am so jealous!!!!

    Linda

    wish i could meet you all
    i live at arizona if any are ever out this way
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #14
    kayandok said:

    So jealous!
    And so happy for all of you! I also found out that I will qualify for what I think is the same trial in 6 months at Swedish hospital in Seattle. Details forthcomoing. I am going to have to read up on the details.
    k

    PS Hawaii in June anyone? I'm thinking Honolulu, get our own rooms and hang out for a few days on the beach. I need to stop over then on my way to the States. If there is another central location in the States that a lot of us could go to, it would even be better. I'm open for ideas. I feel stuck over here in japan and want to put faces to all your words and thoughts. YOu have become my virtual famly and i know we have a lot to share and would have so muc fun.

    The closest one to the
    The closest one to the vaccine trial at MSKK is GOG212. Both are limited to women in their first remission. The GOG212 trials are being done all over the country. It is virtually identical to the trial I am doing, but you must have completed your first line chemo within the last 12 weeks.

    What's the number for your trial, Kathleen?

    PS....the official identifier for my trial is GLOBO-H-GM2-STN-TF-TN
  • kayandok
    kayandok Member Posts: 1,202 Member
    #15
    Hissy_Fitz said:

    The closest one to the
    The closest one to the vaccine trial at MSKK is GOG212. Both are limited to women in their first remission. The GOG212 trials are being done all over the country. It is virtually identical to the trial I am doing, but you must have completed your first line chemo within the last 12 weeks.

    What's the number for your trial, Kathleen?

    PS....the official identifier for my trial is GLOBO-H-GM2-STN-TF-TN

    You are right,
    Carlene. There is no way that it is the same one you are on, what was I thinking? It must have been very late when I wrote that. Will post when I get the detailed info. I don't see anything on the Swedish site either.
    k
  • kayandok
    kayandok Member Posts: 1,202 Member
    #16
    lindaprocopio said:

    I'm so jealous! I would LOVE to meet the gang here in person.
    If I ever get a break from chemo, I may have to take a road trip, because I would so love to meet you all in person!

    Linda,
    where do you live?
  • kayandok
    kayandok Member Posts: 1,202 Member
    #17
    lindaprocopio said:

    I'm so jealous! I would LOVE to meet the gang here in person.
    If I ever get a break from chemo, I may have to take a road trip, because I would so love to meet you all in person!

    Not
    sure how these double posts happen.....
  • kayandok
    kayandok Member Posts: 1,202 Member
    #18
    clamryn said:

    Would love to meet all of you
    I would love to meet all of you. All of you are such brave strong women. I am currently still under treatment and I really don't see an end in site. It sounds like it would be so much fun. I am so jealous!!!!

    Linda

    LInda/clamryn
    I am in treatment too, and don't see any end very soon either! I thnk that is why I need the break and feel driven to try and meet this wonderful group of ladies.
    Where do you live?
    k
  • VictoriaSF
    VictoriaSF Member Posts: 165
    #19
    anicca said:

    I'll be in the Bay Area
    I'll be in the Bay Area (Oakland & Berkeley) from May 29th to June 14. Not central, but that's where I'll be. Swruns & I are hoping to meet then, and it would be great to meet as many as possible.

    to Annica
    hi,
    i am in SF and we can meet in oakland or berkeley
    if all is ok i should be done with my chemo.

    best
    V
  • nancy591
    nancy591 Member Posts: 1,027 Member
    #20
    thanks Carlene
    I've been sick since Wednesday with a virus and have been for several days!

    It was wonderful meeting you and your hubby too. You are just as beautiful and sweet in person as well. Hopefully we can meet up again when I have my next scan.
  • Christine B.
    Christine B. Member Posts: 137
    #21
    azgrandma said:

    wish i could meet you all
    i live at arizona if any are ever out this way

    azgrandma
    Where are you in AZ? We have a little place in Lake Havasu that we go to when we can. We were just there on Thurs. & Friday, first chance since this whole nightmare started!
    PS Congratulations on your good news!
    Christine

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