help!
Comments
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Hi
That is just devastating
Hi
That is just devastating - Im so sorry. My husband James and I are both 33 and we have a 3 year old - he has just been diagnosed (February) as a stage IV. Unfortunately I dont know too much about those treatments proposed for your husband as James has too many dispersed tumours for radio options. But Im sure there are many people on here who can tell you about those treatments.
What I do know about is the colostomy - as a result of a bowel perforation very recently James has one - which he was very upset about initially - but is quite fine about now. So let me know if you want any advice on that.
Also Ive just finished a book called "Raising an Emotionally Healthy Child When a Parent is Sick" and found it really valuable.
Hang in there. Its a tough road - but you arent alone - there are lots of people out there to help & support you all.
Linda0 -
Yes, and as soon as we get up and get some coffee...LindaJS said:Hi
That is just devastating
Hi
That is just devastating - Im so sorry. My husband James and I are both 33 and we have a 3 year old - he has just been diagnosed (February) as a stage IV. Unfortunately I dont know too much about those treatments proposed for your husband as James has too many dispersed tumours for radio options. But Im sure there are many people on here who can tell you about those treatments.
What I do know about is the colostomy - as a result of a bowel perforation very recently James has one - which he was very upset about initially - but is quite fine about now. So let me know if you want any advice on that.
Also Ive just finished a book called "Raising an Emotionally Healthy Child When a Parent is Sick" and found it really valuable.
Hang in there. Its a tough road - but you arent alone - there are lots of people out there to help & support you all.
Linda
we'll get right on it. All of us usually sleep in on Thursdays..........j/k,.............. re currence is always a kick in the drawers but we have to deal with it just like before. Only thing is at least we have an idea of the journey we most likely will go through, which is never fun, but doable.I have an ostomy (permanent) not a problem at all......There will be thers come in to post on this ..Be patient, help is on the way.....love to all 4 of you......buzz0 -
checking in w/you
Kelly--I was searching the csn content for more info about urostomys when i read your post.
I am a care giver and my wife had a urostomy (permanent) placed after surgery for urethra cancer (surgery as on 4/12). Like you and your husband, we were stunned by the cancer dx and the news that she would have a urostomy, and it was very hard to cope with this news.
Now the surgery is over and the urostomy is in place, and while she is having some initial problems with this (minor leakage and other issues with all the stuff we have to use) it has been better than we thought it would be--not great, mind you, but better than we expected. This is going to take time but apparently they caught the cancer early--meaning there is no follow up treatment for now but the bag is one of the facets of life we will deal with permanently. We are older than you (50's) and our son is long gone from home, but I am very sympathetic. Dealing with all this is tough and I hope you are faring well since last you posted here.
Let us know how things are...if nothing else you can just let it out here. I do that at times and it does help me get by.
Good luck to you!
Conchal0 -
Hey Kelly...Conchal said:checking in w/you
Kelly--I was searching the csn content for more info about urostomys when i read your post.
I am a care giver and my wife had a urostomy (permanent) placed after surgery for urethra cancer (surgery as on 4/12). Like you and your husband, we were stunned by the cancer dx and the news that she would have a urostomy, and it was very hard to cope with this news.
Now the surgery is over and the urostomy is in place, and while she is having some initial problems with this (minor leakage and other issues with all the stuff we have to use) it has been better than we thought it would be--not great, mind you, but better than we expected. This is going to take time but apparently they caught the cancer early--meaning there is no follow up treatment for now but the bag is one of the facets of life we will deal with permanently. We are older than you (50's) and our son is long gone from home, but I am very sympathetic. Dealing with all this is tough and I hope you are faring well since last you posted here.
Let us know how things are...if nothing else you can just let it out here. I do that at times and it does help me get by.
Good luck to you!
Conchal
I had Cyberknife in Oct, 2010. I had a met in my lung that would not die with chemo...so they zapped that thing with Cyberknife.... took 4 treatments and it's 100% gone! I did get a radiation pneumonia 4 months later as a result of the Cyberknife but meds cleared it up. Hope that tells ya a little. Best of all to you guys! Take care
Jennie0 -
Kellyidlehunters said:Hey Kelly...
I had Cyberknife in Oct, 2010. I had a met in my lung that would not die with chemo...so they zapped that thing with Cyberknife.... took 4 treatments and it's 100% gone! I did get a radiation pneumonia 4 months later as a result of the Cyberknife but meds cleared it up. Hope that tells ya a little. Best of all to you guys! Take care
Jennie
I have no experience of these particulars.....just want to say i am stage 4 colon with many mets and still alive and doing well
important to know....(I hope) that cancer is doable....
understand that you are both devastated....reocurrence is such a shocker....
hang in....stay in touch
maggie0 -
hi kelly
hi kelly
sorry you had to come for for your husband.
7 years NED and now the drama continues.
I have not had a reoccurence, I hope and pray I never do.
I have faith it will not happen to me. Real confidence in my treatment approach.
Real faith unlocks the power of our minds, a huge untapped resource.
An old friend told me ATTITUDE, ATTITUDE and ATTITUDE.
You are wise to be scared, I am scared just reading your story. They told me, if your NED for 2 years your pretty well through it. Not from what I have learned here.
So we all have to live with this constant fear. My approach is to treat death with humour, to accept its reality, one day we will all die. Until then try and be the beauty of your children. they will keep you both focused and strong.
I have a 5 and a 9 year old, two kids also. I am 44.
Maybe get some second opinions if you need to, ask lots of questions.
Lots of research to do, so many positive things can be done. Each in themselves washes away your fears and replaces them with confidence.
best of health to you,
hugs,
pete0 -
Hey I am so sorry this is
Hey I am so sorry this is all happening. I am still in treatment for my diagnosis 6/10. I don't have any suggestions, just wanted to pass along some comfort! Good thoughts, prayer, and vibes to you and your husband.
Love and hugs, Gail0
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