turn for the worse

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  • karenbeth
    karenbeth Member Posts: 194
    #22
    jeani13 said:

    In the same place
    Karen

    My husband was diagnosed 2 years ago with stage IV lung, brain, and now cancer in his spinal fluid. So far in total the poor man had 25 WBR treatments, 30 on chest and 16 on back and 7 round of chemo. He is now on a medaport at home. The medaport manages his pain ( dilaudin). He can no longer support himself walking and has no control of bowels. I am going to the Doctors this morning to discuss hospice. God Bless you as I am also worried that my husband may start to have neurologic behavior changes,

    jeani13
    Wow, that's awesome that he has been a survivor for 2 years. Mine was diagnosed 8 months ago. I wish all the best for you and your family, no matter what happens.
  • 3Mana
    3Mana Member Posts: 811
    #23
    karenbeth said:

    UPDATE
    Unfortunately, the bad news kept on coming yesterday. He didn't have to have the lumbar puncture b/c the MRI showed the cancer had spread aggressively throughout his brain--and these were new, large lesions that weren't there on the MRI he had about a month ago. There is nothing else they can do. They give him only weeks--maybe a month. I took him home last night and set up home hospice. Unbelievable to think he went to work 2 days ago and now he is soiling himself and needs help getting dressed.

    He is also hallucinating and we had a few scary moments yesterday evening. He thought he was being attacked by an intruder and was trying to escape--I had to wrestle him to the ground until he calmed down. I am trying to get a crisis care aide for the weekend before the regular home health aide and other hospice stuff kicks in on Monday. Otherwise we will muddle through on our own. I have Haldol to give him when needed. He is calm and sleeping now.

    I will find the inner resources, like you all have, to deal with it. I broke down last night and probably will again, but right now I am relieved that we have a plan and supports in place.

    Thank you for your wishes--we still need them, for a painless and peaceful journey.

    Karen

    Be strong
    Karen,
    So sorry to hear about your husband. It's so hard to watch this and I'm thinking about you cause I've been there. I lost my husband almost a year ago on March 25th. Take care & just be there for him. Carole

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