R-Epoch treatment

pumoser

double hit lymphoma

Have finished 6 rounds of Epoch R and am in remission. Does anyone have experience with remission and how long to expect?  No one mentioned a stem cell transplant for me.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

pumoser

JP_NHL said:

Thread
Thanks, Max.

I can do that. My main intent was to offer advice to others on the thread, including Tony.

Double Hit Lymphoma

JP  What has been your experience after remission?

mken03

R-EPOC for DLBCL

I am currently being treated with this protocol.  As others have mentioned, my first treatment was also in the hospital.  I am on my third in home treatment which has been very convenient and much more comfortable than the hospital.  We drive daily for the five days to the center as other have also said for the battery change and refill.  Let me know if i can help with any questions ...these impact all of us differently for sure ... but there are similarities...

Semone12

DA-R-EPOCH for Double Hit DLBCL

My husband just completed the first of 6 dose adjusted R-EPOCH treatments yesterday.  Each treatment will be inpatient and will last 5 days.  He is stage 2A - Bulky.

Please share your experiences with this regimen, if & when you experienced remission and for how long.  Really appreciate your guidance.  

Thank you and best wishes of good health,

Semone

Conway0625

Semone12 said:

DA-R-EPOCH for Double Hit DLBCL

My husband just completed the first of 6 dose adjusted R-EPOCH treatments yesterday.  Each treatment will be inpatient and will last 5 days.  He is stage 2A - Bulky.

Please share your experiences with this regimen, if & when you experienced remission and for how long.  Really appreciate your guidance.  

Thank you and best wishes of good health,

Semone

Best of Luck

Hi Semone- all the best to your husband and yourself. I had a similar diagnosis and underwent 6 rounds of R-EPOCH from mid-May to early September last year. It was definitely a journey but we got through it. Last week I received the results from my last scan and I'm apparently clear. Very relieved. The treatment was as advertised- challenging but manageable. It will wear you down over time but he will bounce back  

Like I said, it is a journey but you will both get through it. Please let me know if you have any specific questions. Best of luck again. 

KimDee

Last round of DA-EPOCH R is underway 6 of 6

I'm a bit worried though.  For rounds 4 and 5, my WBC counts got really low and I developed a fever, and that combo wins you a hospital bed. Was a 5 day stay for round 4 and a 4 day stay for round 5.  Of course I'd very much like to stay out of the hospital this time, any ideas on how I can help myself?

A factor I'm going to talk to my doctor about tomorrow, is that my bloodcounts were at the bottom edge of normal on Monday, even before they started my 5 days of chemo.  I feel doomed, and will I end up in the hospital again much sooner and for possibly longer this time?  Is there anything I can do for myself?  I teased my doc on Monday that I would do garlic supplements and Gingseng supplements as those were what I could remember boosting your immune system.  He said sure, they're harmless.  Wishful thinking is something else I added to my list.  How can I avoid a fever, a maybe there, maybe not there infection? It's no fun being in the hospital.  But maybe I'll just have to roll with it, even if I don't want to. Cancer sucks as we all know.  Wahhhhh....

Conway0625

Semone12 said:

DA-R-EPOCH for Double Hit DLBCL

My husband just completed the first of 6 dose adjusted R-EPOCH treatments yesterday.  Each treatment will be inpatient and will last 5 days.  He is stage 2A - Bulky.

Please share your experiences with this regimen, if & when you experienced remission and for how long.  Really appreciate your guidance.  

Thank you and best wishes of good health,

Semone

How are things going?

Hope all is well!

Conway0625

KimDee said:

Last round of DA-EPOCH R is underway 6 of 6

I'm a bit worried though.  For rounds 4 and 5, my WBC counts got really low and I developed a fever, and that combo wins you a hospital bed. Was a 5 day stay for round 4 and a 4 day stay for round 5.  Of course I'd very much like to stay out of the hospital this time, any ideas on how I can help myself?

A factor I'm going to talk to my doctor about tomorrow, is that my bloodcounts were at the bottom edge of normal on Monday, even before they started my 5 days of chemo.  I feel doomed, and will I end up in the hospital again much sooner and for possibly longer this time?  Is there anything I can do for myself?  I teased my doc on Monday that I would do garlic supplements and Gingseng supplements as those were what I could remember boosting your immune system.  He said sure, they're harmless.  Wishful thinking is something else I added to my list.  How can I avoid a fever, a maybe there, maybe not there infection? It's no fun being in the hospital.  But maybe I'll just have to roll with it, even if I don't want to. Cancer sucks as we all know.  Wahhhhh....

Fever

Sorry Kim- just saw this and hope past two weeks were fever free. 

Same thing happened to me last year after my 5th cycle.  Blood counts crashed + fever = 3 bonus days in the hospital! Ironic thing was that I felt way better that week than my first week out after my 4th round. Plus my blood work from a few days earlier wasn't that bad. Unfortunately I don't think there is much you can do to avoid a fever. You just have to rest and listen to your body. And please, if you get a fever past your threshold call your doctor right away. Don't wait to see if it gets better"

Seriously, a little wishful thinking doesn't hurt either! If you get a chance check back in and let us know how it's going. All the best!

Srt_10

Conway0625 said:

Best of Luck

Hi Semone- all the best to your husband and yourself. I had a similar diagnosis and underwent 6 rounds of R-EPOCH from mid-May to early September last year. It was definitely a journey but we got through it. Last week I received the results from my last scan and I'm apparently clear. Very relieved. The treatment was as advertised- challenging but manageable. It will wear you down over time but he will bounce back  

Like I said, it is a journey but you will both get through it. Please let me know if you have any specific questions. Best of luck again. 

Need some motivation

I am diagnosed with PMBCL, stage 2A and have completed 6 cycles of R- ECHOP last week. Post 4th cycle PET scan shows significantly improved results with earlier bulky mass reduced to only 1cm. However i have been adviced Radiation therapy also. During the chemo, i have become very weak. How long generally it takes to come back to 100% energy?