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Found help to fight neuropathy with Taxol treatments

catlover6
catlover6 CSN Member Posts: 10
in Breast Cancer #1
Hi - I tend to spend a lot of time on the internet before I start a new chemo drug. I found quite a few women who had taken L-Glutamine to prevent the neuropathy that is so common with Taxol. I started it and am 8 treatments in ( 4 more to go ) without any symptoms of nerve problems. You need to take 30 mg / day ( which sounds like a lot, but so far it's worked ). I take 10 mg the night before chemo, and then start chemo morning with that day's 1st dose. I take 30 mg each day for the day of chemo and 2 days following. I hope this info helps !

Hugs to all,
Sue
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Comments

  • jessiesmom1
    jessiesmom1 CSN Member Posts: 915 Member
    #2
    L-Glutamine supplements
    Hi Sue,

    Just curious. Did you consult your oncologist before starting the L-Glutamine supplements? What did he/she have to say? Thanks.
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  • catlover6
    catlover6 CSN Member Posts: 10
    #3
    jessiesmom1 said:

    L-Glutamine supplements
    Hi Sue,

    Just curious. Did you consult your oncologist before starting the L-Glutamine supplements? What did he/she have to say? Thanks.

    Hi. I did check with him ..
    Hi. I did check with him .. he said that it sounded like a large dose, but that it would be harmless to me ( and would not interfere with the chemo ). He also pointed out that there are no definitive studies that show it's effective. I had heard so many bad stories that I decided to give it a try and stick with it. So far so good :-)
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  • joannstar
    joannstar CSN Member Posts: 403 Member
    #4
    jessiesmom1 said:

    L-Glutamine supplements
    Hi Sue,

    Just curious. Did you consult your oncologist before starting the L-Glutamine supplements? What did he/she have to say? Thanks.

    My onc recommended
    L-Glutamine when he replaced taxotere with taxol in my last 2 chemo treatments. In fact, there was a pre-printed sheet of information on how much/when to take it. I bought the powdered form at Whole Foods and took 30mg--1 in the morning, next at about 2pm and the last before bed.
    I still had bone pain (I also had a neulasta shot after each treatment), but it wasn't as bad as I had come to expect, so I guess it helped.
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