Allergic to Tamoxifen

mrioll

Hi,

I developed a severe itch after a week on the Tamoxifen. Benadryl and Zertec didn't help.
Finally my onc told me to stop and she sent me to the Derm. Now I am starting today with the Tamoxifen, Prednisone and Doxepin.

Has anyone had this situation. The itching was really bad. I have the scars to prove it.
The Onc said there was something called Lupron (spelling?) but most patients get severe mood swings, hot flashes and sweats.

Mrioll

Boppy_of_6

Welcome Mrioll
Sorry for your need to be here but you will get so much help and support here. I am on Tamoxifen but have not had any problems with itching. I have heard of people who have and I am sure someone will chime in with their support soon. I just wanted to welcome you here. God Bless
(((Hugs))) Janice

disneyfan2008

Boppy_of_6 said:

Welcome Mrioll
Sorry for your need to be here but you will get so much help and support here. I am on Tamoxifen but have not had any problems with itching. I have heard of people who have and I am sure someone will chime in with their support soon. I just wanted to welcome you here. God Bless
(((Hugs))) Janice

no issues with itching either
I have a few other side effects of course...but not itching

let us know how you make out..

Denise W

tgf

disneyfan2008 said:

no issues with itching either
I have a few other side effects of course...but not itching

let us know how you make out..

Denise W

I haven't had anything like that from tamoxifen ... but when I started chemo (taxol/herceptin) the tops of my hands broke out in a terrible rash that itched like crazy. It felt like I was scratching the skin off ... and the tops of my hands were sooooo red. Then the red/itching started on my upper back. My oncologist sent me to a dermatologist ... and she gave me something to put on the area ... and it was clear in just a few days.

Good luck.

hugs.
teena

tgf

disneyfan2008 said:

no issues with itching either
I have a few other side effects of course...but not itching

let us know how you make out..

Denise W

oops double post ...

mrioll

tgf said:

oops double post ...

Allergic to Tamoxifen
Hi all,

So far so good. It's day 5 and no itching. It seems the prednisone and Doxipen is working let's see what happens on day 11 when I'm done with the prednisone.

Thank you for all your responses. I am a little concerned. All of a sudden I seem to be losing my eyelashes. Could that be a side affect of the Doxipen? Not the tamoxifen nor prednisone. I've taken those before.

Have a good night, and God Bless.

manicmonday1

TAMOXAFEN
hello
I had severe allergic reaction to tamoxafen. was on it for almost a yr, leg cramps, blisters, rashs, headaches. was horrible. Finally I went to GYN ONCO, he is going to do a hysterectomy to stop the hormones, I am hormone receptive. But taking the med and stopping it has all my hormones messed up bad. Doc told me Tamoxafen is a great pill if not allergic. He also told me they started using it in 1970, and prior to that pill they did hyterectomy. Hope u find a good balance with the meds. report everything that dont feel right. I have hysterectomy Feb 10,211 and I cant wait. TC and keep on Keeping On

disneyfan2008

just over year and half
NO itching at all...my only issue is thickening of uterus! so far...(other then night sweats, mild hot flashes and bad leg cramps)

DianeBC

mrioll said:

Allergic to Tamoxifen
Hi all,

So far so good. It's day 5 and no itching. It seems the prednisone and Doxipen is working let's see what happens on day 11 when I'm done with the prednisone.

Thank you for all your responses. I am a little concerned. All of a sudden I seem to be losing my eyelashes. Could that be a side affect of the Doxipen? Not the tamoxifen nor prednisone. I've taken those before.

Have a good night, and God Bless.

Glad that you aren't itching
Glad that you aren't itching now. Seems the meds are working for you. Hoping they continue and you have no more problems.


Diane

mrioll

manicmonday1 said:

TAMOXAFEN
hello
I had severe allergic reaction to tamoxafen. was on it for almost a yr, leg cramps, blisters, rashs, headaches. was horrible. Finally I went to GYN ONCO, he is going to do a hysterectomy to stop the hormones, I am hormone receptive. But taking the med and stopping it has all my hormones messed up bad. Doc told me Tamoxafen is a great pill if not allergic. He also told me they started using it in 1970, and prior to that pill they did hyterectomy. Hope u find a good balance with the meds. report everything that dont feel right. I have hysterectomy Feb 10,211 and I cant wait. TC and keep on Keeping On

I am on day 3 without the
I am on day 3 without the prednisone, so far no itching. I am losing my eyelashes, doc says it does happen on the tamoxifen, but since I was on it for about a month with nothing other than itching she feels the eyelashes will come back. My hormones probably got out of wack. Suggested going on Lutrees (?) for the eyelashes...no thanks heard that has lots of side affects.

Good luck tomorrow, you're in my prayers.

kt1127

So sorry you have gone
So sorry you have gone through this. I had a severe itching issue they stopped tamox for a week and will cut my effexor. (see post severe reaction really scary) Onc told me that side iffects will get taken care of its a game of try and try again Everyone is different so hang in there
Kim

kt1127

HANG IN THERE my Onc said
HANG IN THERE my Onc said its a fine balance of what will work for side effects I just had a bad itching episode ( see post for side effect reaction really scary) they stopped tamox for a week and lowered my effexor. They are hoping it is the effexor. Does it really matter s/e are s/e. Hang in there you will be okay...We all will be
Kim