kind of embarassing to ask on here

disneyfan2008
disneyfan2008 Member Posts: 6,583 Member
edited March 2014 in Breast Cancer #1
Has anyone had bleeding- after many years of no period?(almost 4 yrs) I had Lumpectomy almost 3 yrs ago, 8 wks radiation and 18 mths tamoxifen-2 ultrasounds followed by D & C (last one 5 wks ago) I was a bit alarmed-went to gyno monday -he dindt' seem overly concerned-did some tests & I should be getting a call back today with results?! I have not been worried at all waiting-but just curious if anyone else has had this issue. Perhaps side effect of the tamoxifen!??? (menopause for years now)

WE KNOW NOT cancer since I just had 2 D & Cs with in 6mths...!!!

Comments

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    Nothing to be embarassed about, interest question
    and subject. Not, myself - however, I think it may be your bodys way of re-generating tissue, and removing toxic matter from your body. Your body is restructing itself back to your 'norm' before breast cancer, and the drugs we take.

    I don't know the side efforts of tomoxifen - however, there are many website to review -- What I would do .. is go to your pharmacy and get a print out which lists all side efforts.

    Just a suggestion.

    Strength and Courage,

    Vicki Sam
  • pinkflutterby
    pinkflutterby Member Posts: 615 Member
    how old are you? I am 44
    how old are you? I am 44 and have not had a period since treatment started in March 09 but have been warned that I am not "of menopausal age" and that IF I'm ever off treatment I would probably resume my periods. I will however, probably never be off treatment :(
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    VickiSam said:

    Nothing to be embarassed about, interest question
    and subject. Not, myself - however, I think it may be your bodys way of re-generating tissue, and removing toxic matter from your body. Your body is restructing itself back to your 'norm' before breast cancer, and the drugs we take.

    I don't know the side efforts of tomoxifen - however, there are many website to review -- What I would do .. is go to your pharmacy and get a print out which lists all side efforts.

    Just a suggestion.

    Strength and Courage,

    Vicki Sam

    I forgot to add ....
    I would get a 2nd opinion, and seek advise from another Gyno, if you have insurance! A peace of mind - is worth its weight in GOLD.

    Good Luck,

    Vicki Sam
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    VickiSam said:

    Nothing to be embarassed about, interest question
    and subject. Not, myself - however, I think it may be your bodys way of re-generating tissue, and removing toxic matter from your body. Your body is restructing itself back to your 'norm' before breast cancer, and the drugs we take.

    I don't know the side efforts of tomoxifen - however, there are many website to review -- What I would do .. is go to your pharmacy and get a print out which lists all side efforts.

    Just a suggestion.

    Strength and Courage,

    Vicki Sam

    I am not worried
    VICKI: thanks for reply...I am not worried..but it did catch me off guard while out to dinner with 3 long time friends...

    Has anyone here not taken post surgery meds like Tamoxifen? are there any statistics I wonder of those who dont' and those of us who do! health, side effects or lack of our side effects!
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member

    how old are you? I am 44
    how old are you? I am 44 and have not had a period since treatment started in March 09 but have been warned that I am not "of menopausal age" and that IF I'm ever off treatment I would probably resume my periods. I will however, probably never be off treatment :(

    I am 51
    Pink: went through early menopause like my mother (who did not have cancer). It had been about year prior to surgery (period) & I got if for ONE day week prior then not since...SO really close to 4 yrs...

    Denise W
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    VickiSam said:

    I forgot to add ....
    I would get a 2nd opinion, and seek advise from another Gyno, if you have insurance! A peace of mind - is worth its weight in GOLD.

    Good Luck,

    Vicki Sam

    2nd opinion
    I LOVE LOVE LOVE my gyno...my daughter even goes to him-as well..

    I dont' think I have ONCOLO appt for sometime-since I was just upped from every 3 mths to now every 4mths since things have been good!

    MY gyno has been in phone contact with oncologist-said had nice long conversation recently
  • Marcia527
    Marcia527 Member Posts: 2,729
    I had spotting too and after
    I had spotting too and after onc did a blood test to make sure I was in menopause (I was chemo induced) then sent me to OBGYN who did tests and finally a D&C. My onc took me off the Tamoxifen because I had family history of uterine cancer. He said just incase. He put me on Aromasin and I've had no further problems.
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member
    Hope this helps
    Postmenopausal vaginal bleeding is concerning because it can be a sign of endometrial (precancer)or endometrial cancer. I don't know if your bleeding is a recent symptom or if you had D&C's after bleeding to look for cancer? And I am assuming endometrial biopsies were done?

    Being on tamoxifen and having any unexpected vaginal bleeding is worrisome--make sure that your Gyn knows the below possible adverse reactions from tamoxifen.

    I went through menopause shortly after being on tamoxifen and had irregular bleeding. It is normal ot have irregular bleeding shortly before menopause, but my Gyn chose to do several endometrial biopsies along the way anyway--better to be safe than sorry.

    Here is a link:

    Post-menopausal bleeding — what does it mean?

    or if you can't get the above link copy and paste the link below in your address browser.

    http://www.womentowomen.com/menopause/postmenopausalbleeding.aspx

    Serious Uterine Reactions from Tamoxifen (from epocrates)
    endometrial hyperplasia/polyps
    endometrial CA
    endometriosis
    uterine sarcoma
    uterine fibroids
    ovarian cysts
  • CypressCynthia
    CypressCynthia Member Posts: 4,014 Member

    Hope this helps
    Postmenopausal vaginal bleeding is concerning because it can be a sign of endometrial (precancer)or endometrial cancer. I don't know if your bleeding is a recent symptom or if you had D&C's after bleeding to look for cancer? And I am assuming endometrial biopsies were done?

    Being on tamoxifen and having any unexpected vaginal bleeding is worrisome--make sure that your Gyn knows the below possible adverse reactions from tamoxifen.

    I went through menopause shortly after being on tamoxifen and had irregular bleeding. It is normal ot have irregular bleeding shortly before menopause, but my Gyn chose to do several endometrial biopsies along the way anyway--better to be safe than sorry.

    Here is a link:

    Post-menopausal bleeding — what does it mean?

    or if you can't get the above link copy and paste the link below in your address browser.

    http://www.womentowomen.com/menopause/postmenopausalbleeding.aspx

    Serious Uterine Reactions from Tamoxifen (from epocrates)
    endometrial hyperplasia/polyps
    endometrial CA
    endometriosis
    uterine sarcoma
    uterine fibroids
    ovarian cysts

    P.S.
    Vaginal bleeding is also listed as a common adverse effect from tamoxifen--just to really confuse the matter. So, if biopsies are ok, I would just have close follow up and see your gyn often.
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member

    P.S.
    Vaginal bleeding is also listed as a common adverse effect from tamoxifen--just to really confuse the matter. So, if biopsies are ok, I would just have close follow up and see your gyn often.

    cypress
    yes biopsies were just taken misc areas on MOnday...I should get a call today...MY last D & C was 5 wks ago so too long for it to be from that.

    HE took me on (MY DR) monday am without an appt-I happened to be at a business side by side and walked in and he took me. (I THOUGHT he would) Mainly I stopped in since my job is in middle of lobby and can't TALK to a doctor privately anyhow.

    both D & C biopsies came back GOOD-so not really worried or concerned and as I said above my ONCOLO & GYN have been talking on the phone!


    Thanks,,

    Denise W
  • mwallace1325
    mwallace1325 Member Posts: 806

    I am not worried
    VICKI: thanks for reply...I am not worried..but it did catch me off guard while out to dinner with 3 long time friends...

    Has anyone here not taken post surgery meds like Tamoxifen? are there any statistics I wonder of those who dont' and those of us who do! health, side effects or lack of our side effects!

    Tamoxifen etc
    I tried femera and anastrozole and had to stop both because of side effects, little things like not being able to breathe.

    I've decided that I'm just putting it in God's hands (where it is anyway) and just keep praying that I don't have a recurrence. But I've also told myself that if I do, I'll have no one to blame but myself. I just couldn't stand the side effect though.

    marge
  • chenheart
    chenheart Member Posts: 5,159

    cypress
    yes biopsies were just taken misc areas on MOnday...I should get a call today...MY last D & C was 5 wks ago so too long for it to be from that.

    HE took me on (MY DR) monday am without an appt-I happened to be at a business side by side and walked in and he took me. (I THOUGHT he would) Mainly I stopped in since my job is in middle of lobby and can't TALK to a doctor privately anyhow.

    both D & C biopsies came back GOOD-so not really worried or concerned and as I said above my ONCOLO & GYN have been talking on the phone!


    Thanks,,

    Denise W

    There has been so much drama
    There has been so much drama and recurrance news, tests and sadness, that I have decided to
    diagnose you! From your symptoms, and being that you have had every conceivable test and you love and trust your doctors, I say there is only one reason for this bleeding....you ready to hear what it is? Drum roll please!!!!!
    You are reversing the aging process, regaining your youth and along with that, comes your period! You will have what we all want~ the experience and loss of gullibility which age brings, coupled with the sex drive, supple skin and glorious hair of a 30 something!

    No charge for this medical evaluation; just knowing you are smiling is payment enough!( you are smiling, aren't you????)

    Hugs,
    Chen♥
  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
    chenheart said:

    There has been so much drama
    There has been so much drama and recurrance news, tests and sadness, that I have decided to
    diagnose you! From your symptoms, and being that you have had every conceivable test and you love and trust your doctors, I say there is only one reason for this bleeding....you ready to hear what it is? Drum roll please!!!!!
    You are reversing the aging process, regaining your youth and along with that, comes your period! You will have what we all want~ the experience and loss of gullibility which age brings, coupled with the sex drive, supple skin and glorious hair of a 30 something!

    No charge for this medical evaluation; just knowing you are smiling is payment enough!( you are smiling, aren't you????)

    Hugs,
    Chen♥

    Chen
    So good to see YOU and your humor back on the boards!!
  • fauxma
    fauxma Member Posts: 3,577 Member
    chenheart said:

    There has been so much drama
    There has been so much drama and recurrance news, tests and sadness, that I have decided to
    diagnose you! From your symptoms, and being that you have had every conceivable test and you love and trust your doctors, I say there is only one reason for this bleeding....you ready to hear what it is? Drum roll please!!!!!
    You are reversing the aging process, regaining your youth and along with that, comes your period! You will have what we all want~ the experience and loss of gullibility which age brings, coupled with the sex drive, supple skin and glorious hair of a 30 something!

    No charge for this medical evaluation; just knowing you are smiling is payment enough!( you are smiling, aren't you????)

    Hugs,
    Chen♥

    Disney,
    Chen's diagnosis

    Disney,
    Chen's diagnosis does sound interesting and rather nice except for one thing, you will have to think birth control. LOL
    I am glad that your doctor did a D&C as that is the best way to check for uterine/endo cancer and that the gyn and onc are in contact. Don't know if it could be from the tamoxifen or not.
    I will keep good thoughts that this is just a weird random event or the beginnings of rejuvenation. LOL
    Stef
  • Rague
    Rague Member Posts: 3,653 Member

    how old are you? I am 44
    how old are you? I am 44 and have not had a period since treatment started in March 09 but have been warned that I am not "of menopausal age" and that IF I'm ever off treatment I would probably resume my periods. I will however, probably never be off treatment :(

    44 is not too young
    44 is within the age that 'you' can go through menopause naturally. I did at 44 - that was 18 years before my IBC. It is on the younger side but definately not unheard of.

    Susan
  • cahjah75
    cahjah75 Member Posts: 2,631
    fauxma said:

    Disney,
    Chen's diagnosis

    Disney,
    Chen's diagnosis does sound interesting and rather nice except for one thing, you will have to think birth control. LOL
    I am glad that your doctor did a D&C as that is the best way to check for uterine/endo cancer and that the gyn and onc are in contact. Don't know if it could be from the tamoxifen or not.
    I will keep good thoughts that this is just a weird random event or the beginnings of rejuvenation. LOL
    Stef

    I love Chen's dx
    I was 11 years post menopausal when dx with bc and I told my gyn that I had been spotting for the previous week. He did an endometrial biopsy and sent me for ovarian ultrasound. All was ok. So, for you it sounds as if it may be a Tamoxifen side effect???? BTW - nothing is embarrassing on this board. lol
    Char
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    chenheart said:

    There has been so much drama
    There has been so much drama and recurrance news, tests and sadness, that I have decided to
    diagnose you! From your symptoms, and being that you have had every conceivable test and you love and trust your doctors, I say there is only one reason for this bleeding....you ready to hear what it is? Drum roll please!!!!!
    You are reversing the aging process, regaining your youth and along with that, comes your period! You will have what we all want~ the experience and loss of gullibility which age brings, coupled with the sex drive, supple skin and glorious hair of a 30 something!

    No charge for this medical evaluation; just knowing you are smiling is payment enough!( you are smiling, aren't you????)

    Hugs,
    Chen♥

    CHEN...thanks...so so much
    what a booster for me....where did you get your degree...

    OK ON good news..I JUST got a call from my Dr...he sent out more biopsies on monday..he said ALL OK...con't with tamox and ok to wait to see my oncologist early March...

    he has been in contact by phone and sent all lab info to her...!


    so my youth is coming back..YIPPPPPE
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    cahjah75 said:

    I love Chen's dx
    I was 11 years post menopausal when dx with bc and I told my gyn that I had been spotting for the previous week. He did an endometrial biopsy and sent me for ovarian ultrasound. All was ok. So, for you it sounds as if it may be a Tamoxifen side effect???? BTW - nothing is embarrassing on this board. lol
    Char

    Char: I am sure you are right
    It just cuaght me off guard the night it started quickly and heavy....


    YES I TOO LOVE CHEN'S DX....
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    fauxma said:

    Disney,
    Chen's diagnosis

    Disney,
    Chen's diagnosis does sound interesting and rather nice except for one thing, you will have to think birth control. LOL
    I am glad that your doctor did a D&C as that is the best way to check for uterine/endo cancer and that the gyn and onc are in contact. Don't know if it could be from the tamoxifen or not.
    I will keep good thoughts that this is just a weird random event or the beginnings of rejuvenation. LOL
    Stef

    @stef
    too funny....this is boosting my day...I must start thinking birth control again..TOOO FUNNY you are...

    NOW to get rid of my gray and not from a box...i'd be good...and save $

    Denise W