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Has anyone been on just Xeloda?

Friendinpenn
Friendinpenn CSN Member Posts: 70
edited March 2014 in Colorectal Cancer #1
This may be an option for my "eternal preventative maintenance" I was told I should do....

Just checking to see what I can expect with side effects....

Thanks

Friend In Penn
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Comments

  • Annabelle41415
    Annabelle41415 CSN Member Posts: 6,744 Member
    #2
    Yes
    When first starting treatment Xeloda was used when getting radation. Really didn't have any side effects from it at all, but then my dose was only 2000 mg a day. Hope you do well on it. There are others on the board that can give you their symptoms.

    Kim
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  • grannyc
    grannyc CSN Member Posts: 63
    #3
    just Xeloda
    I was on Xeloda only after my recurrance and surgery as "mop up" chemo, I had such bad reaction to the Oxali that I couldn't take it. My dose was small and I really didn't have any side effects and after 6 months my scan was NED and my CEA was down to 1.9

    I hope this helps
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  • karguy
    karguy CSN Member Posts: 1,020 Member
    #4
    Xeloda
    The only side effects I had with Xeloda was a numbing of my hands.I hope this helps.
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  • herdizziness
    herdizziness CSN Member Posts: 3,624 Member
    #5
    Xeloda
    I really didn't have any side effects with the Xeloda, I had 3000 mg dose per day. And I'll be going back on it, in a week. I'm starting "mop up chemo" which will consist of Avastin and Xeloda. Doesn't hurt my feelings one bit.
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  • grannyc
    grannyc CSN Member Posts: 63
    #6
    herdizziness said:

    Xeloda
    I really didn't have any side effects with the Xeloda, I had 3000 mg dose per day. And I'll be going back on it, in a week. I'm starting "mop up chemo" which will consist of Avastin and Xeloda. Doesn't hurt my feelings one bit.

    that was treatment
    I had the same treatment for my "mop up" treatment after my last surgery which was Jan 2009. Stayed on it for 6 months and have been NED ever since but now my CEA is rising and am having a PET scan next week. I am hoping the scan will not show anything new. I hope my CEA levels rose because because I had hernia surgery on Nov 1.
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  • grannyc
    grannyc CSN Member Posts: 63
    #7
    herdizziness said:

    Xeloda
    I really didn't have any side effects with the Xeloda, I had 3000 mg dose per day. And I'll be going back on it, in a week. I'm starting "mop up chemo" which will consist of Avastin and Xeloda. Doesn't hurt my feelings one bit.

    that was treatment
    I had the same treatment for my "mop up" treatment after my last surgery which was Jan 2009. Stayed on it for 6 months and have been NED ever since but now my CEA is rising and am having a PET scan next week. I am hoping the scan will not show anything new. I hope my CEA levels rose because because I had hernia surgery on Nov 1.
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  • taraHK
    taraHK CSN Member Posts: 1,952 Member
    #8
    yes
    Yes, I was on xeloda alone as maintenance chemo for several months.

    Unfortunately I had a relapse and am now on xeloda plus other stuff.

    My regime is 3000mg per day (three pills, twice a day). But not every day (eg right now I'm doing 4 days on, 3 days off -- there are various schedules people try)

    I have had some problems with my hands (very dry skin) and feet (dry skin, some skin cracking, some blistering on soles of feet). I've had to give up high heels and hiking, two of my favorite things (not at the same time though!). But, it's manageable...I've been on it for over 8 months now and it's going fine....

    I haven't noticed any other side effects. Maybe a bit of fatigue -- but I take a nap every day --regardless of drug regime!!

    Good luck!
    Tara
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  • belindahill
    belindahill CSN Member Posts: 144
    #9
    xeloda
    my husband just started his 6th cycle of xeloda, his is taking 5 in the morning and 4 at tea time, a high dose, doing very well so far, but unable to work because of tierdness and loose stools.
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  • loveandhope
    loveandhope CSN Member Posts: 52
    #10
    hi friend in penn
    my dad
    hi friend in penn

    my dad started that treatment on wednesday 19th. four days on, and his only symptoms are a tingling sensation in his hands and nothing else. r u due this treatment?

    gabs x
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