HPV Information

Skiffin16
Skiffin16 Member Posts: 8,305 Member
edited March 2014 in Head and Neck Cancer #1
I found a very informative site on HPV Information, thought I'd share for those interested;

HPV Information

One of the articles even mentions a possible cure for HPV...

Best,
John

Comments

  • Hondo
    Hondo Member Posts: 6,636 Member
    Hi John
    Great Educational site Thanks
  • rozaroo
    rozaroo Member Posts: 665
    Hondo said:

    Hi John
    Great Educational site Thanks

    Great Info!
    Thank you for posting this John!
  • Agatha
    Agatha Member Posts: 62
    Thanks for Sharing
    Thanks for sharing the article. It was thought at first that the tumour in my tongue was caused by HPV, since I don't drink or smoke. However, it came back negative for HPV. Even so, I really hope more research can help us find out more about this virus and its link to cancer, and hopefully more awareness can be made about oral cancer as well.
  • Hal61
    Hal61 Member Posts: 655
    BBC vs. Dental Pros
    Thanks John, I read a few of the articles. The one from the dental author and RDH was interesting in that the author poses a lot of the concerns discussed on this board's thread on oral sex, and like our free-for-all discussion, found more questions than answers. The BBC pop type article had no problem stating HPV causes head and neck, and cervical cancer, then saying 80 percent of adults have had, or will have HPV. The abstract on coffee and tea related cancers got away from me. I should have taken a statistics class. I think it said that one cup a day was a pretty safe bet, adjusting for "potential confounders"--I hate those. Then the Oral Cancer Foundation put a disclaimer at the end anyway, saying the study as presented was just a hypothesis, not real science. No wonder my doctors have trouble giving me straight answers sometimes.

    Hal
  • BrianKrashpad
    BrianKrashpad Member Posts: 188
    thanks
    for the post! I need to read that stuff, I have no idea of my hpv status or its possible contribution to my condition.
  • Hal61
    Hal61 Member Posts: 655

    thanks
    for the post! I need to read that stuff, I have no idea of my hpv status or its possible contribution to my condition.

    Welcome Brian
    Hi Brian, you probably already know, but just in case so you don't add to your concerns, HPV yea or nay, will have no bearing on your treatment regimen.

    best, Hal
  • JUDYV5
    JUDYV5 Member Posts: 392
    Hal61 said:

    Welcome Brian
    Hi Brian, you probably already know, but just in case so you don't add to your concerns, HPV yea or nay, will have no bearing on your treatment regimen.

    best, Hal

    HPV
    Back in March we asked the doctors about my HPV status, I was informed that it wouldn't make a difference. Like Hal61 said it makes no difference in the treatment.
  • BrianKrashpad
    BrianKrashpad Member Posts: 188
    Thanks Hal & Judy
    Yeah, my docs told me it didn't make any diff, that's kinda why I haven't spent any time pursuing it.
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member

    Thanks Hal & Judy
    Yeah, my docs told me it didn't make any diff, that's kinda why I haven't spent any time pursuing it.

    Florida
    Brian where in Florida are you, just curious Lakeland here....

    John
  • BrianKrashpad
    BrianKrashpad Member Posts: 188
    Skiffin16 said:

    Florida
    Brian where in Florida are you, just curious Lakeland here....

    John

    Hogtown!
    I'm up the road in Gainesville.

    I went to school here (undergrad and grad) and fell in love with the music scene (not to mention a girl several years younger who still had a year of undergrad to finish after I graduated the second time; she now/still has the dubious distinction of being Mrs. Krashpad), so I never left.
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member

    Hogtown!
    I'm up the road in Gainesville.

    I went to school here (undergrad and grad) and fell in love with the music scene (not to mention a girl several years younger who still had a year of undergrad to finish after I graduated the second time; she now/still has the dubious distinction of being Mrs. Krashpad), so I never left.

    G'Ville
    Oh cool, I use to live there and actually worked for the City of Gainesville for a few years, GRU and RTS....

    I lived out by SFCC NW side of town, I love Gainesville. Especially the younger art and music portions, shows, pubs.... Of course also fishing Newnan's Lake and over to Cedar Key on the week-ends.

    I had a friend that owned an Art & Frame Store downtown for many years, called the Hogtown Collector.

    Great to have you aboard....

    Best,
    John
  • nifty
    nifty Member Posts: 12
    A few stats from pharmacist husband...
    Hi - Approx. 60% of the population with cancer has HPV. Mouth and neck cancer, anal and cervical cancer are the most common cancers in which people test positive for HPV. It is entirely possible to go your entire life with HPV and have no symptoms and/or not get cancer. It is a risk factor, but not a guaranteed cause by any stretch. A very large part of the population has HPV, and does not get cancer. From what I have read, if you do test positive for HPV the outcome of your treatment is more optimistic in many cases - however it does not alter the recommended treatment plan.
  • nifty said:

    A few stats from pharmacist husband...
    Hi - Approx. 60% of the population with cancer has HPV. Mouth and neck cancer, anal and cervical cancer are the most common cancers in which people test positive for HPV. It is entirely possible to go your entire life with HPV and have no symptoms and/or not get cancer. It is a risk factor, but not a guaranteed cause by any stretch. A very large part of the population has HPV, and does not get cancer. From what I have read, if you do test positive for HPV the outcome of your treatment is more optimistic in many cases - however it does not alter the recommended treatment plan.

    The real facts about HPV and oral cancer
    After reading all of the above posts, I'm glad I came across this thread to help spread some correct information on HPV and real risks involved as well as the links to cervical and oral cancers. Before I begin all of this information is from reliable sources and is to date the current facts that we know about these viruses. That's right, virus(es). There are 120 current identified strains of HPV in which all are sub-typed. So with the statistic that 80% of all Americans will have some strain of HPV in their lifetime that pertains to all 120. However, there are only just a few known strains that we have found to be linked to certain cancers. The certain cancers are cervical, oral, anal, and penial. The specific strains-are not of any importance at this time. That is because even if (let's say) that you have strain "x" and that specific strain is linked to cause oral cancer- in no means does that guarantee that you will get oral cancer. In fact, the odds are against you. Only a small percentage of people that are exposed to the cancer causing strains of HPV will actually get cancer. It is possible, most likely in those whom have weak immune systems and a genetic pre-disposition (that you will never know) to not be able to rid that strain of HPV. So what's the real answer to this question? Well if you do get oral cancer it is beneficial to know if it is obtained from tobacco or hpv. Because, studies have shown that those with oral cancer from hpv have a higher success rate of survival. At the same time, it may just because they are typically younger in age and therefore more likely to complete treatment. Nonetheless, HPV is going to happen to the mass of us, some will get the cancer causing strains, and some will not, and some will get the cancer causing strains and never get cancer. Since we now know that HPV can be transferred even with passionate kissing then we can all pretty much assume that its possible that we could all be at risk, are we not? But have no fear- we are in no means at doom if we become proactive about our well beings and make sure that we are properly screened for these types of cancers on an annual basis. Women get pap smears, and both women and men should also ask their dentists for an oral cancer exam at each yearly teeth cleaning. We now live in a time and place that if cancer is caught early on, survival is at its highest point.
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member

    The real facts about HPV and oral cancer
    After reading all of the above posts, I'm glad I came across this thread to help spread some correct information on HPV and real risks involved as well as the links to cervical and oral cancers. Before I begin all of this information is from reliable sources and is to date the current facts that we know about these viruses. That's right, virus(es). There are 120 current identified strains of HPV in which all are sub-typed. So with the statistic that 80% of all Americans will have some strain of HPV in their lifetime that pertains to all 120. However, there are only just a few known strains that we have found to be linked to certain cancers. The certain cancers are cervical, oral, anal, and penial. The specific strains-are not of any importance at this time. That is because even if (let's say) that you have strain "x" and that specific strain is linked to cause oral cancer- in no means does that guarantee that you will get oral cancer. In fact, the odds are against you. Only a small percentage of people that are exposed to the cancer causing strains of HPV will actually get cancer. It is possible, most likely in those whom have weak immune systems and a genetic pre-disposition (that you will never know) to not be able to rid that strain of HPV. So what's the real answer to this question? Well if you do get oral cancer it is beneficial to know if it is obtained from tobacco or hpv. Because, studies have shown that those with oral cancer from hpv have a higher success rate of survival. At the same time, it may just because they are typically younger in age and therefore more likely to complete treatment. Nonetheless, HPV is going to happen to the mass of us, some will get the cancer causing strains, and some will not, and some will get the cancer causing strains and never get cancer. Since we now know that HPV can be transferred even with passionate kissing then we can all pretty much assume that its possible that we could all be at risk, are we not? But have no fear- we are in no means at doom if we become proactive about our well beings and make sure that we are properly screened for these types of cancers on an annual basis. Women get pap smears, and both women and men should also ask their dentists for an oral cancer exam at each yearly teeth cleaning. We now live in a time and place that if cancer is caught early on, survival is at its highest point.

    Spreading Correct Information....
    While you have a lot to say on the subject and being this is your first post and I know nothing of you, or your background. You refer a lot to we as if you are with some organization...are you in treatment, a survivor, did I miss that in your posting somewhere....

    If you have followed this forum or have read any of the past postings. You will see that everythibng that you refer to as "helping spread correct information" has already been iterated many times. So while what you say has merit, it definitely is not new to us within this forum.

    Even the part where you refer to statistically having HPV might have the possibilty of responding favorably to treatment. When it still comes down to it, cancer is cancer...and HPV or not. At this time, the treatment is the same regardless.

    Also, you state this as being the "real facts about HPV and oral cancer"....I don't necessarily agree that they are totally indeed real facts. I think this all is still relatively unstudied, but that there is more and more education, history and results that are now being looked at and considered....

    I'm sorry to come across they way that I have, but it chaps me a little when someone posts things that start out stating these are the real facts, or this is the gold standard.

    There are no certainties with this. If it were as simple as it seems to be stated, they would know for certain the cause, prevention, transmission, gestation, cure...etc. Simple put, they don't totally understand any of that currently.

    There is no gold standard for treatment either. Depending on the locale or facilities that you are going. They have a protocul they favor because through trial error, and results over time, that's what has worked best for that facility or organization.

    If it were the cure all, or absolute as for real facts. Every facility within the medical community would be following it. While several of us have/had similar disease and treatment protoculs. I can't really think of but a few if that which have had identicial treatments.... they are all different in some minute way, just as each of us are different.

    Best,
    John
  • Hal61
    Hal61 Member Posts: 655
    Skiffin16 said:

    Spreading Correct Information....
    While you have a lot to say on the subject and being this is your first post and I know nothing of you, or your background. You refer a lot to we as if you are with some organization...are you in treatment, a survivor, did I miss that in your posting somewhere....

    If you have followed this forum or have read any of the past postings. You will see that everythibng that you refer to as "helping spread correct information" has already been iterated many times. So while what you say has merit, it definitely is not new to us within this forum.

    Even the part where you refer to statistically having HPV might have the possibilty of responding favorably to treatment. When it still comes down to it, cancer is cancer...and HPV or not. At this time, the treatment is the same regardless.

    Also, you state this as being the "real facts about HPV and oral cancer"....I don't necessarily agree that they are totally indeed real facts. I think this all is still relatively unstudied, but that there is more and more education, history and results that are now being looked at and considered....

    I'm sorry to come across they way that I have, but it chaps me a little when someone posts things that start out stating these are the real facts, or this is the gold standard.

    There are no certainties with this. If it were as simple as it seems to be stated, they would know for certain the cause, prevention, transmission, gestation, cure...etc. Simple put, they don't totally understand any of that currently.

    There is no gold standard for treatment either. Depending on the locale or facilities that you are going. They have a protocul they favor because through trial error, and results over time, that's what has worked best for that facility or organization.

    If it were the cure all, or absolute as for real facts. Every facility within the medical community would be following it. While several of us have/had similar disease and treatment protoculs. I can't really think of but a few if that which have had identicial treatments.... they are all different in some minute way, just as each of us are different.

    Best,
    John

    Hear Hear!
    I had the same response. I'm ready to be edified by anyone, new or not, but all that's been covered several times, recently.

    Hal
  • HPVAwakening
    HPVAwakening Member Posts: 2
    That site is awesome! I run
    That site is awesome! I run a nonprofit for HPV and am always looking for links to share with people and this one is by far one of the best! Thank you for sharing ans I look forward to sharing it as well with my volunteers, twitter followers, and on our website www.hpvawakening.org . Again thank you :)
  • HPVAwakening
    HPVAwakening Member Posts: 2

    The real facts about HPV and oral cancer
    After reading all of the above posts, I'm glad I came across this thread to help spread some correct information on HPV and real risks involved as well as the links to cervical and oral cancers. Before I begin all of this information is from reliable sources and is to date the current facts that we know about these viruses. That's right, virus(es). There are 120 current identified strains of HPV in which all are sub-typed. So with the statistic that 80% of all Americans will have some strain of HPV in their lifetime that pertains to all 120. However, there are only just a few known strains that we have found to be linked to certain cancers. The certain cancers are cervical, oral, anal, and penial. The specific strains-are not of any importance at this time. That is because even if (let's say) that you have strain "x" and that specific strain is linked to cause oral cancer- in no means does that guarantee that you will get oral cancer. In fact, the odds are against you. Only a small percentage of people that are exposed to the cancer causing strains of HPV will actually get cancer. It is possible, most likely in those whom have weak immune systems and a genetic pre-disposition (that you will never know) to not be able to rid that strain of HPV. So what's the real answer to this question? Well if you do get oral cancer it is beneficial to know if it is obtained from tobacco or hpv. Because, studies have shown that those with oral cancer from hpv have a higher success rate of survival. At the same time, it may just because they are typically younger in age and therefore more likely to complete treatment. Nonetheless, HPV is going to happen to the mass of us, some will get the cancer causing strains, and some will not, and some will get the cancer causing strains and never get cancer. Since we now know that HPV can be transferred even with passionate kissing then we can all pretty much assume that its possible that we could all be at risk, are we not? But have no fear- we are in no means at doom if we become proactive about our well beings and make sure that we are properly screened for these types of cancers on an annual basis. Women get pap smears, and both women and men should also ask their dentists for an oral cancer exam at each yearly teeth cleaning. We now live in a time and place that if cancer is caught early on, survival is at its highest point.

    For whatever reason the FDA
    For whatever reason the FDA keeps choosing to not approve testing for men for HPV. Right now the only way that they test men are through a form of anal pap smears that can only be applied to men whom take part in anal sex with other men.

    They are not screening blood for this virus by the way. Yet the FDA approved a DNAtest in 2009. And there are test out there for men but you have to go throughprivate bio labs and even them most still won't even talk to you about it let alnoe test you.

    if you call 5.5 million Americans a small number than you think big. the fact that almost 14,000 women alone die from cervical cancer yearly and our oral cancer rates caused by HPV will out-number that of cervical cancer ones. and we don't even have an exact number of who has what for the sipmle reasons
    1- we aren't doing bllod test for it
    2 - it's not a reportable illness so those who have it don't have to inform thier partners they are at risk for infection
    3 - ignorance.... most people don't even know what HPV is
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member

    That site is awesome! I run
    That site is awesome! I run a nonprofit for HPV and am always looking for links to share with people and this one is by far one of the best! Thank you for sharing ans I look forward to sharing it as well with my volunteers, twitter followers, and on our website www.hpvawakening.org . Again thank you :)

    OCF
    I agree, I think the OCF site is pretty informative concerning HPV.

    Best,
    John