CEA from 2.4 to 547 in 6 months

grannyc
grannyc Member Posts: 63
edited March 2014 in Colorectal Cancer #1
Saw my oncologist last Thursday and he had them do the blood work over as he thought there might be a mistake in the lab...I am hoping that is the case.
I have been out of treatment for over a year and have check ups He also siad he would go ahead and schedule me for a 6 month check up. He didn't seemed too concerned but I am a nervous wreck, I want to know but I don't want to know.
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Comments

  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #2
    Must be something wrong there I'm sure about !
    I understand your worries but must be a kind of mistake .
    Cheer up!
  • Unknown
    Unknown
    #3
    This comment has been removed by the Moderator
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #4
    grannyc
    Sorry you have this to worry about! Please let us know what happens.
  • CherylHutch
    CherylHutch Member Posts: 1,375 Member
    #5
    Must be a mistake!
    The fact you are on no treatments and just doing regular checkups every 6 months... I agree with the others, someone goofed with the results. I don't know how the reports are done but I'm guessing after the tests are done and the blood technician or doctor has got the results, they take the results and enter them on a computer system... one that the doctor can then access when you go in for an appt. They call up your chart, which the most recent have been added by someone from the lab. I'm guessing that someone did a typo when doing the data entry. It could have been 5.47, or 4.57... when it's a typo, it could have been anything.

    The fact the onc isn't too concerned, I wouldn't let it worry you either. I have never heard of CEA jumping that high in that short of a time. Anyone who does have it up there, it's usually because they were already in the upper 400s or so. But seriously, the more I think of it, the more I think that you would have had some kind of symptoms to explain that rise.

    I think you will get a phone call telling you everything is within normal range... but do let us know!!!

    Cheryl
  • Lori-S
    Lori-S Member Posts: 1,277 Member
    #6
    Granny
    Wow that is such a large jump, it seems like it must be a mistake. I will say a prayer for you and hope that the retest comes back better than this test. HUGS
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #7
    Test
    Yes, it does sound like something went wrong with that test. Sounds like your doctor is thinking the same thing especially when he scheduled you for a six month check up. He must not be concerned at all. Must be a big mistake. Keep us posted.

    Kim
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #8
    Crazy
    Goodness! That is a huge jump, and I agree it must be a mistake. Certainly you would have felt unwell in some way, or something would have shown in your checkups. Can't wait to hear about the phone call saying it was a mistake!

    *hugs*
    Gail
  • grannyc
    grannyc Member Posts: 63
    #9
    tootsie1 said:

    Crazy
    Goodness! That is a huge jump, and I agree it must be a mistake. Certainly you would have felt unwell in some way, or something would have shown in your checkups. Can't wait to hear about the phone call saying it was a mistake!

    *hugs*
    Gail

    CEA still elevated
    oncologist just called and my CEA is still high...he didn't say how high and I forgot to ask because I was schocked as I thought the level being elevated was a lab mistake...anyway he is going to schedule a PET scan and said we will go from there.

    I will keep you all posted. please say a prayer for me
  • Nana b
    Nana b Member Posts: 3,030 Member
    #10
    grannyc said:

    CEA still elevated
    oncologist just called and my CEA is still high...he didn't say how high and I forgot to ask because I was schocked as I thought the level being elevated was a lab mistake...anyway he is going to schedule a PET scan and said we will go from there.

    I will keep you all posted. please say a prayer for me

    I will! hang in
    I will! hang in there...

    Hugs, Raquel
  • lesvanb
    lesvanb Member Posts: 905
    #11
    grannyc said:

    CEA still elevated
    oncologist just called and my CEA is still high...he didn't say how high and I forgot to ask because I was schocked as I thought the level being elevated was a lab mistake...anyway he is going to schedule a PET scan and said we will go from there.

    I will keep you all posted. please say a prayer for me

    I second what Raquel said
    I will! hang in there. Best course of action I've been hanging onto lately.

    all the best, Leslie
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #12
    grannyc said:

    CEA still elevated
    oncologist just called and my CEA is still high...he didn't say how high and I forgot to ask because I was schocked as I thought the level being elevated was a lab mistake...anyway he is going to schedule a PET scan and said we will go from there.

    I will keep you all posted. please say a prayer for me

    grannyc
    Sorry about that; please keep us posted.
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #13
    Nana b said:

    I will! hang in
    I will! hang in there...

    Hugs, Raquel

    Prayers
    You got it. Hoping for the best.

    Kim
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #14
    grannyc said:

    CEA still elevated
    oncologist just called and my CEA is still high...he didn't say how high and I forgot to ask because I was schocked as I thought the level being elevated was a lab mistake...anyway he is going to schedule a PET scan and said we will go from there.

    I will keep you all posted. please say a prayer for me

    Prayer
    Keeping good thoughts and sending a prayer or two you way hun.
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    #15
    I'm here too with prayer's
    I'm here too with prayer's and all things good I can send your way.

    Gail
  • mommyof2kds
    mommyof2kds Member Posts: 519
    #16
    plh4gail said:

    I'm here too with prayer's
    I'm here too with prayer's and all things good I can send your way.

    Gail

    thinking of you. Hang in
    thinking of you. Hang in there, I know it must be a stressful time for you.. HUGS.
  • lisa42
    lisa42 Member Posts: 3,625 Member
    #17
    grannyc said:

    CEA still elevated
    oncologist just called and my CEA is still high...he didn't say how high and I forgot to ask because I was schocked as I thought the level being elevated was a lab mistake...anyway he is going to schedule a PET scan and said we will go from there.

    I will keep you all posted. please say a prayer for me

    you bet
    Prayers being said on your behalf for peace of mind for you and for clear answers to be discovered soon. I hope and pray that whatever the reason for the CEA spike is not nearly as bad as you are fearing it might be- again, praying for that peace to come to you...

    Hugs,
    Lisa
  • Lori-S
    Lori-S Member Posts: 1,277 Member
    #18
    grannyc said:

    CEA still elevated
    oncologist just called and my CEA is still high...he didn't say how high and I forgot to ask because I was schocked as I thought the level being elevated was a lab mistake...anyway he is going to schedule a PET scan and said we will go from there.

    I will keep you all posted. please say a prayer for me

    Saying
    a special prayer for you.
  • snommintj
    snommintj Member Posts: 601
    #19
    mommyof2kds said:

    thinking of you. Hang in
    thinking of you. Hang in there, I know it must be a stressful time for you.. HUGS.

    547
    me too! last week. I've been 350-800 for about the last year or so. I've been 10000 before so i guess all is well!
  • bruins1971
    bruins1971 Member Posts: 227
    #20
    Heavenly Father
    Lord tonight I come to you on behalf of my sister Grannyc who is in need of your love and compassion at this time. Father please give her the peace of mind while she awaits this petscan. Then we pray that the scan will be good and show nothing to be worried about.

    Prayers from Dallas,
    Bobby
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #21
    grannyc said:

    CEA still elevated
    oncologist just called and my CEA is still high...he didn't say how high and I forgot to ask because I was schocked as I thought the level being elevated was a lab mistake...anyway he is going to schedule a PET scan and said we will go from there.

    I will keep you all posted. please say a prayer for me

    Prayers coming
    Praying for you!

    *hugs*
    Gail

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