Life After Brain Tumor
I was so happy to find this website this morning.
Thx for reading,
Jan
Comments
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stay strong
My mom is going through the same thing, brain tumor and bills- Keep your sense of humor, that is the only way to keep going0 -
Gerryboys
Hello, I am 56 years old and I too have had surgery for GBM4 on Jan.13,2009.At that time I had most of the 7.5cm tumor removed,what they could see anyway. I also had GLIO WAFERS put on the tumor. Then 6 weeks of radiation(30 treatments) and have been on Temadar ever since March of 09 My MRI's have never came back clean but the doctors all say I am doing great and that I may never have a clean MRI.By the way I still have MRI's every 2 months. My quality of life has never been the same but it has not been to bad either.I am able to drive, mow the lawn and most home repairs as well as bowl on my weekly bowling league. I also try to get out and walk daily about 3 miles and ride my bike when it's nice out in N/W Ohio. I have not been able to return to work,in fact my doctor put me on permanent disability in March 2010.You mentioned not being able to focus for long periods of time,I too have the same problem. Although it has gotten better after surgery I had a great deal of trouble focusing on a simple task. I also have trouble with short term memory. I too have trouble going from one task to another without resting or taking a nap in between task. This is probably the bigest reason for not returning to work.I know 2 other guys with the same type of tumor about the same age as I am and diaagnosed within a year of each other. One of them has since died about a month ago and the other is not doing nearly as good as I am,I have truely been blessed by God through out this whole ordeal. I asked my doctor how long I would be on the chemo and he said possibly for the rest of my life. He said as long as I am tolerating the chemo so well he would not take me off.
Take care and please respond back if you would like to know more of my story.
Rick0 -
don't give up
My father was diagnosed in 1999 with an IV GBM. He too has some of these problems. His concentration and STM are very poor, as is his peripheral vision. He no longer works and cannot drive a car, and is on long term disability. He told his MD's that he was going to be in the minority and beat their prognosis of 2 years. While it has been a long 11 years, he is still with us, which is a miracle it itself. He attributes this to a positive attitude and a belief in God. Do not give up. If my father had, he would have not seen my college graduation, or my wedding. He is currently looking forward to meeting his grandchildren (someday). Everyday living with this diagnosis is precious. Prove the statistics wrong, and keep on fighting.0 -
Good morning...rmatiasic said:don't give up
My father was diagnosed in 1999 with an IV GBM. He too has some of these problems. His concentration and STM are very poor, as is his peripheral vision. He no longer works and cannot drive a car, and is on long term disability. He told his MD's that he was going to be in the minority and beat their prognosis of 2 years. While it has been a long 11 years, he is still with us, which is a miracle it itself. He attributes this to a positive attitude and a belief in God. Do not give up. If my father had, he would have not seen my college graduation, or my wedding. He is currently looking forward to meeting his grandchildren (someday). Everyday living with this diagnosis is precious. Prove the statistics wrong, and keep on fighting.
Thank you for your posting....that is an amazing long time for your father! I had surgery 1 1/2 years ago and was diagnosed with a grade 2, but was told yesterday that I will probably need surgery again within a couple of weeks and that it appears that my tumor has upgraded to a high tumor. So, to read your father's time is optimistic to me. I am 39 and have two boys - a 16 year old and an 8 year old - and would love to see my grandkids at a later date!
Anyhow, just wanted to thank you for your posting....take care...
Michele S.0 -
A great story of a bravermatiasic said:don't give up
My father was diagnosed in 1999 with an IV GBM. He too has some of these problems. His concentration and STM are very poor, as is his peripheral vision. He no longer works and cannot drive a car, and is on long term disability. He told his MD's that he was going to be in the minority and beat their prognosis of 2 years. While it has been a long 11 years, he is still with us, which is a miracle it itself. He attributes this to a positive attitude and a belief in God. Do not give up. If my father had, he would have not seen my college graduation, or my wedding. He is currently looking forward to meeting his grandchildren (someday). Everyday living with this diagnosis is precious. Prove the statistics wrong, and keep on fighting.
A great story of a brave man. We all should maintain hope and stay encouraged. You are right - EACH day is precious!0
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