George - are you there? Treanda kicked me good last week - question.

COBRA666

Sparkyz said:

Hi John ,
I was initialliy
Hi John ,

I was initialliy daig with FNHL stage 4 grade1-2. both hemispheres of the abdomen and in spleen and 9% in bone marrow as well as some in clavical nodes and groin area.

Had latest Ct-scan today waiting for results as I type from onc.

cheers,

Mark z

CT Report
Mark,
Be sure to share that CT report with us. Good Luck. John (FNHL-1-4A-5/10)

cookingirl

Sparkyz said:

CT-Scan next week
Hi Fran and everyone else,

I have my CT scan next week Monday the 6th. Had blood work yesterday. first time I have had a needle in my arm in 2 months. I never thought that would be such a long time. Its amazing the things we take for granted.

I know I still have some NHL in the middle of my stomach area and i can feel it but nothing like what it once was. My next maintenance is 12/9 and 10. Of course not as bad as with chemo but two long days 8-10 each. thats a long time to sit in a chair and watch deal or no deal in the Onc office but the nurses that take care of me are awesome. Plus my wife never leaves my side. We take the rituxan and water it down to half for each day and go very very slow but as I have mentioned Fran it's worth it.

Your are correct so far my age is helping but on the same note treanda +R seems to be so much better from what I have read and heard compared to R-Chop. I hope that is the same for you. And dont fool yourself Fran you are still young too!

I guess we will have to make sure we contact each other when we are both up to it after the 14th and compare notes. My prayers are for you too Fran and everyone else here.

Mark Z

Treanda - R
Hi Everyone - thanks for your nice comments. I've been off celebrating my 68th birthday for 3 days and haven't checked the site until just now. It's fun to take a few days off from thinking about cancer, and good for the spirits!

I'm anxious to hear what your CT scan showed yesterday, Mark. I'll be looking here each day so let us know ASAP. And I'll be thinking of you also on Monday the 14th Sue - know you'll be so glad to have that chemo and Prednisone behind you. I'm praying for good results with your scan too - you probably won't know before Christmas, will you?

I finished 6 Neupogen shots last Friday - hate those things. My white cell count was still too low so hoping today's labs will be better. This is my one week out of four to feel good and I have fun things with friends to do each day. Knowing next week I will be out of it for several weeks.

Hope everyone's having some happy holiday times this month. Must get busy getting candy and cookies made for my nurses and office staff. Like so many of you have said, mine are just awesome and brighten the darkest of days. Takes special people to work in an Oncologist's office! Fondly, Fran

Sparkyz

COBRA666 said:

CT Report
Mark,
Be sure to share that CT report with us. Good Luck. John (FNHL-1-4A-5/10)

CT results good stuff!! :-)
Hello everyone, The results are still great. I still have a little pressure mid abdomen but doc said CT-Scan looked great and nodes are still shrinking from Rituxan. I had my maintenance infusion of Rituxan today and I did pretty well considering. minimal back pain so i got morphine and most drugs i got pre before we started. I got serious hot flashes but again all worth it if it keeps going down. I have a full day of it tomorrow and I know Fran you will get your next round soon. I hope you do well and please keep us posted. I have to say I wish I found this website a long time ago. this website is such a blessing to keep us all positive!

cheers,

Mark Z

allmost60

Sparkyz said:

CT results good stuff!! :-)
Hello everyone, The results are still great. I still have a little pressure mid abdomen but doc said CT-Scan looked great and nodes are still shrinking from Rituxan. I had my maintenance infusion of Rituxan today and I did pretty well considering. minimal back pain so i got morphine and most drugs i got pre before we started. I got serious hot flashes but again all worth it if it keeps going down. I have a full day of it tomorrow and I know Fran you will get your next round soon. I hope you do well and please keep us posted. I have to say I wish I found this website a long time ago. this website is such a blessing to keep us all positive!

cheers,

Mark Z

So glad!
Thats great news Mark! It appears quite a few of us are coming up on scans, so good results as yours is always happy news. Thanks so much for sharing and I'll keep positive thoughts for only good news to come in your future. Take care...Sue (FNHL-2-3A-6/10)

cookingirl

Sparkyz said:

CT results good stuff!! :-)
Hello everyone, The results are still great. I still have a little pressure mid abdomen but doc said CT-Scan looked great and nodes are still shrinking from Rituxan. I had my maintenance infusion of Rituxan today and I did pretty well considering. minimal back pain so i got morphine and most drugs i got pre before we started. I got serious hot flashes but again all worth it if it keeps going down. I have a full day of it tomorrow and I know Fran you will get your next round soon. I hope you do well and please keep us posted. I have to say I wish I found this website a long time ago. this website is such a blessing to keep us all positive!

cheers,

Mark Z

Terrific News, Mark Z!
Hi - so very, very happy to hear your CT scan results were good! Such anxious days preceed those test results and what a relief that must be.

The premed drugs are lifesavers, aren't they?

I had 3 very rough weeks but celebrated my one good one this weekend by doing a 3 hour girl's trip (planned in Aug. when I thought chemo was over)with 5 friends to Jacksonville, Fl. An over night at a lovely hotel, 2 days of great meals and to see the Broadway touring Christmas show of the Rockettes. It was so very beautiful and finally got me in the Christmas spirit!

Back to chemo tomorrow and Tuesday all day so this week will be a wipeout in case you don't hear from me. Good to hear from you, George and Mark, and I agree this website keeps our spirits lifted since we're the only ones who really understand what we're going through. Prayers to each of you each day - Fran

cookingirl

Sparkyz said:

CT results good stuff!! :-)
Hello everyone, The results are still great. I still have a little pressure mid abdomen but doc said CT-Scan looked great and nodes are still shrinking from Rituxan. I had my maintenance infusion of Rituxan today and I did pretty well considering. minimal back pain so i got morphine and most drugs i got pre before we started. I got serious hot flashes but again all worth it if it keeps going down. I have a full day of it tomorrow and I know Fran you will get your next round soon. I hope you do well and please keep us posted. I have to say I wish I found this website a long time ago. this website is such a blessing to keep us all positive!

cheers,

Mark Z

Terrific News, Mark Z!
Hi - so very, very happy to hear your CT scan results were good! Such anxious days preceed those test results and what a relief that must be.

The premed drugs are lifesavers, aren't they?

I had 3 very rough weeks but celebrated my one good one this weekend by doing a 3 hour girl's trip (planned in Aug. when I thought chemo was over)with 5 friends to Jacksonville, Fl. An over night at a lovely hotel, 2 days of great meals and to see the Broadway touring Christmas show of the Rockettes. It was so very beautiful and finally got me in the Christmas spirit!

Back to chemo tomorrow and Tuesday all day so this week will be a wipeout in case you don't hear from me. Good to hear from you, George and Mark, and I agree this website keeps our spirits lifted since we're the only ones who really understand what we're going through. Prayers to each of you each day - Fran

Sparkyz

cookingirl said:

Terrific News, Mark Z!
Hi - so very, very happy to hear your CT scan results were good! Such anxious days preceed those test results and what a relief that must be.

The premed drugs are lifesavers, aren't they?

I had 3 very rough weeks but celebrated my one good one this weekend by doing a 3 hour girl's trip (planned in Aug. when I thought chemo was over)with 5 friends to Jacksonville, Fl. An over night at a lovely hotel, 2 days of great meals and to see the Broadway touring Christmas show of the Rockettes. It was so very beautiful and finally got me in the Christmas spirit!

Back to chemo tomorrow and Tuesday all day so this week will be a wipeout in case you don't hear from me. Good to hear from you, George and Mark, and I agree this website keeps our spirits lifted since we're the only ones who really understand what we're going through. Prayers to each of you each day - Fran

Thinking about Fran!
Hi Fran and everyone else. Thanks for the kind words. My wife and I are very happy about the results so far. I espescially wanted to make sure I posted today because I know its your day back in the chair today and tomorrow Fran. I wanted to give you some positive encouragement to hang in there this week. I know it's tough and sometimes it can leave a perosn feeling lonely and scared but I can tell by the way you talk that you are strong and you will get through this session. Please when you feel better in a few days let us know how it went.

I am glad you were able to celebrate your good week with friends. Hang in there this week and before you know it you will be yourself again soon! I would imagine that you are doing 6 cycles of treanda+R and if thats the case after this week you will already be a third of the way complete. Just keep focused on the getting through this week and rest up and before you know it you will be ready for another weekend out with the girls!!!

talk to you soon!

prayers and thoughts with you - Mark Z

cookingirl

Sparkyz said:

Thinking about Fran!
Hi Fran and everyone else. Thanks for the kind words. My wife and I are very happy about the results so far. I espescially wanted to make sure I posted today because I know its your day back in the chair today and tomorrow Fran. I wanted to give you some positive encouragement to hang in there this week. I know it's tough and sometimes it can leave a perosn feeling lonely and scared but I can tell by the way you talk that you are strong and you will get through this session. Please when you feel better in a few days let us know how it went.

I am glad you were able to celebrate your good week with friends. Hang in there this week and before you know it you will be yourself again soon! I would imagine that you are doing 6 cycles of treanda+R and if thats the case after this week you will already be a third of the way complete. Just keep focused on the getting through this week and rest up and before you know it you will be ready for another weekend out with the girls!!!

talk to you soon!

prayers and thoughts with you - Mark Z

Thinking About Fran
HI Mark - thanks for your very nice comments. In case you didn't read my post on another topic just now, I wasn't able to have chemo M & T this week. Showed up with our lunch, blanket, etc. ready for 7 hours in the chair, but my blood counts and Neutrophils from Friday's blood work were way too low. Disappointing to be sent instead for a Neupogen shot that day and Tuesday. But they worked - sky high counts today - they couldn't figure out how that happened in just 2 days. Doesn't matter - I'm on for tomorrow (Thurs.) and Friday. Throws Christmas plans off a bit, but can't be helped. A bigger power than us is in control and not much we can do about it.

Merry Christmas! Fran