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mscolon how are you?

maglets
maglets CSN Member Posts: 2,576 Member
edited March 2014 in Colorectal Cancer #1
Mary how are you doing these days. Are you with your twin still? please forgive me Mary if I have missed a post....just thinking about you

hugs....maggie
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Comments

  • msccolon
    msccolon CSN Member Posts: 1,917 Member
    #2
    thanks for asking
    I really have been remiss in posting because the news just isn't good. I had my scope done and while he did find an ulcer in my rectum right where I feel pain, that's ALL he found. It's certainly not what's causing the bulk of my pain. We are going with our best guess that it's the lymph nodes pressing on the nerves down there. So, I was hoping to get some relief, at least a focus of where to go to get some relief, with nothing. I'm still exactly where I was before, dealing daily with pain and it's not getting better. I go to see my oncologist on the 22nd and I have asked for a referral to both pain management as well as cyberknife to do something about the nodes. If it is indeed the nodes, I don't imagine I'm going to get any real relief until we do something about the nodes. So, that's where it's at. Thank you for asking, Maggie!
    mary
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  • AnneCan
    AnneCan CSN Member Posts: 3,673 Member
    #3
    msccolon said:

    thanks for asking
    I really have been remiss in posting because the news just isn't good. I had my scope done and while he did find an ulcer in my rectum right where I feel pain, that's ALL he found. It's certainly not what's causing the bulk of my pain. We are going with our best guess that it's the lymph nodes pressing on the nerves down there. So, I was hoping to get some relief, at least a focus of where to go to get some relief, with nothing. I'm still exactly where I was before, dealing daily with pain and it's not getting better. I go to see my oncologist on the 22nd and I have asked for a referral to both pain management as well as cyberknife to do something about the nodes. If it is indeed the nodes, I don't imagine I'm going to get any real relief until we do something about the nodes. So, that's where it's at. Thank you for asking, Maggie!
    mary

    Mary
    I am so sorry you are in so much pain. I hope they figure things out soon + get you smiling!
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  • pepebcn
    pepebcn CSN Member Posts: 6,331 Member
    #4
    msccolon said:

    thanks for asking
    I really have been remiss in posting because the news just isn't good. I had my scope done and while he did find an ulcer in my rectum right where I feel pain, that's ALL he found. It's certainly not what's causing the bulk of my pain. We are going with our best guess that it's the lymph nodes pressing on the nerves down there. So, I was hoping to get some relief, at least a focus of where to go to get some relief, with nothing. I'm still exactly where I was before, dealing daily with pain and it's not getting better. I go to see my oncologist on the 22nd and I have asked for a referral to both pain management as well as cyberknife to do something about the nodes. If it is indeed the nodes, I don't imagine I'm going to get any real relief until we do something about the nodes. So, that's where it's at. Thank you for asking, Maggie!
    mary

    Mary , fill so sorry for your troubles.
    Is there any way to remove the lymph nodes or treat them? they are treating mine with radiotherapy and docs are very confident that it will work.
    Hope you find a solution very soon , I prey for that.
    Hugs Mary!
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  • maglets
    maglets CSN Member Posts: 2,576 Member
    #5
    pepebcn said:

    Mary , fill so sorry for your troubles.
    Is there any way to remove the lymph nodes or treat them? they are treating mine with radiotherapy and docs are very confident that it will work.
    Hope you find a solution very soon , I prey for that.
    Hugs Mary!

    ahh Mary
    mary i am so sorry to hear this pain has not been resolved. You are such a quiet trooper...I think about you daily ....hold my hand Mary....love you

    mags
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  • Sundanceh
    Sundanceh CSN Member Posts: 4,392 Member
    #6
    Mary:(
    I want you to get better too:)

    -Craig
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  • Lori-S
    Lori-S CSN Member Posts: 1,277 Member
    #7
    msccolon said:

    thanks for asking
    I really have been remiss in posting because the news just isn't good. I had my scope done and while he did find an ulcer in my rectum right where I feel pain, that's ALL he found. It's certainly not what's causing the bulk of my pain. We are going with our best guess that it's the lymph nodes pressing on the nerves down there. So, I was hoping to get some relief, at least a focus of where to go to get some relief, with nothing. I'm still exactly where I was before, dealing daily with pain and it's not getting better. I go to see my oncologist on the 22nd and I have asked for a referral to both pain management as well as cyberknife to do something about the nodes. If it is indeed the nodes, I don't imagine I'm going to get any real relief until we do something about the nodes. So, that's where it's at. Thank you for asking, Maggie!
    mary

    Mary
    I sure hope they figure something out soon. Being in pain is not a good place to be. Sorry you are feeling poorly.
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  • Annabelle41415
    Annabelle41415 CSN Member Posts: 6,752 Member
    #8
    msccolon said:

    thanks for asking
    I really have been remiss in posting because the news just isn't good. I had my scope done and while he did find an ulcer in my rectum right where I feel pain, that's ALL he found. It's certainly not what's causing the bulk of my pain. We are going with our best guess that it's the lymph nodes pressing on the nerves down there. So, I was hoping to get some relief, at least a focus of where to go to get some relief, with nothing. I'm still exactly where I was before, dealing daily with pain and it's not getting better. I go to see my oncologist on the 22nd and I have asked for a referral to both pain management as well as cyberknife to do something about the nodes. If it is indeed the nodes, I don't imagine I'm going to get any real relief until we do something about the nodes. So, that's where it's at. Thank you for asking, Maggie!
    mary

    Pain
    So sorry to hear that you are in so much pain and it hasn't been relieved yet. Trying to get answers to things sometimes are so frustrating as you are hurting and doctors just don't understand it. My hope and prayers are for you finding a solution to this and you being more comfortable.

    Kim
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  • tootsie1
    tootsie1 CSN Member Posts: 5,044 Member
    #9
    msccolon said:

    thanks for asking
    I really have been remiss in posting because the news just isn't good. I had my scope done and while he did find an ulcer in my rectum right where I feel pain, that's ALL he found. It's certainly not what's causing the bulk of my pain. We are going with our best guess that it's the lymph nodes pressing on the nerves down there. So, I was hoping to get some relief, at least a focus of where to go to get some relief, with nothing. I'm still exactly where I was before, dealing daily with pain and it's not getting better. I go to see my oncologist on the 22nd and I have asked for a referral to both pain management as well as cyberknife to do something about the nodes. If it is indeed the nodes, I don't imagine I'm going to get any real relief until we do something about the nodes. So, that's where it's at. Thank you for asking, Maggie!
    mary

    Pain
    So sorry about the pain! I really hope you can get some relief!

    *hugs*
    Gail
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  • Luv2lunch
    Luv2lunch CSN Member Posts: 270
    #10
    Mary,
    We pray you will get
    Mary,
    We pray you will get some relief soon. I'm sorry you are in pain.
    Love,
    Linda and Ellie
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  • msccolon
    msccolon CSN Member Posts: 1,917 Member
    #11
    pepebcn said:

    Mary , fill so sorry for your troubles.
    Is there any way to remove the lymph nodes or treat them? they are treating mine with radiotherapy and docs are very confident that it will work.
    Hope you find a solution very soon , I prey for that.
    Hugs Mary!

    radiotherapy
    yes, that's what I'm going to look into next. I'm hoping that will do the trick!
    mary
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  • msccolon
    msccolon CSN Member Posts: 1,917 Member
    #12
    msccolon said:

    thanks for asking
    I really have been remiss in posting because the news just isn't good. I had my scope done and while he did find an ulcer in my rectum right where I feel pain, that's ALL he found. It's certainly not what's causing the bulk of my pain. We are going with our best guess that it's the lymph nodes pressing on the nerves down there. So, I was hoping to get some relief, at least a focus of where to go to get some relief, with nothing. I'm still exactly where I was before, dealing daily with pain and it's not getting better. I go to see my oncologist on the 22nd and I have asked for a referral to both pain management as well as cyberknife to do something about the nodes. If it is indeed the nodes, I don't imagine I'm going to get any real relief until we do something about the nodes. So, that's where it's at. Thank you for asking, Maggie!
    mary

    thank you
    thank you everyone for your thoughts and prayers. Something's got to give! Today's been a good day!
    mary
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  • maglets
    maglets CSN Member Posts: 2,576 Member
    #13
    msccolon said:

    thank you
    thank you everyone for your thoughts and prayers. Something's got to give! Today's been a good day!
    mary

    good
    good good .....a good day is a good thing.....unlike repetition....oh well maybe that's good too

    mags
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