mscolon how are you?

maglets

Mary how are you doing these days. Are you with your twin still? please forgive me Mary if I have missed a post....just thinking about you

hugs....maggie

msccolon

thanks for asking
I really have been remiss in posting because the news just isn't good. I had my scope done and while he did find an ulcer in my rectum right where I feel pain, that's ALL he found. It's certainly not what's causing the bulk of my pain. We are going with our best guess that it's the lymph nodes pressing on the nerves down there. So, I was hoping to get some relief, at least a focus of where to go to get some relief, with nothing. I'm still exactly where I was before, dealing daily with pain and it's not getting better. I go to see my oncologist on the 22nd and I have asked for a referral to both pain management as well as cyberknife to do something about the nodes. If it is indeed the nodes, I don't imagine I'm going to get any real relief until we do something about the nodes. So, that's where it's at. Thank you for asking, Maggie!
mary

AnneCan

msccolon said:

thanks for asking
I really have been remiss in posting because the news just isn't good. I had my scope done and while he did find an ulcer in my rectum right where I feel pain, that's ALL he found. It's certainly not what's causing the bulk of my pain. We are going with our best guess that it's the lymph nodes pressing on the nerves down there. So, I was hoping to get some relief, at least a focus of where to go to get some relief, with nothing. I'm still exactly where I was before, dealing daily with pain and it's not getting better. I go to see my oncologist on the 22nd and I have asked for a referral to both pain management as well as cyberknife to do something about the nodes. If it is indeed the nodes, I don't imagine I'm going to get any real relief until we do something about the nodes. So, that's where it's at. Thank you for asking, Maggie!
mary

Mary
I am so sorry you are in so much pain. I hope they figure things out soon + get you smiling!

pepebcn

msccolon said:

thanks for asking
I really have been remiss in posting because the news just isn't good. I had my scope done and while he did find an ulcer in my rectum right where I feel pain, that's ALL he found. It's certainly not what's causing the bulk of my pain. We are going with our best guess that it's the lymph nodes pressing on the nerves down there. So, I was hoping to get some relief, at least a focus of where to go to get some relief, with nothing. I'm still exactly where I was before, dealing daily with pain and it's not getting better. I go to see my oncologist on the 22nd and I have asked for a referral to both pain management as well as cyberknife to do something about the nodes. If it is indeed the nodes, I don't imagine I'm going to get any real relief until we do something about the nodes. So, that's where it's at. Thank you for asking, Maggie!
mary

Mary , fill so sorry for your troubles.
Is there any way to remove the lymph nodes or treat them? they are treating mine with radiotherapy and docs are very confident that it will work.
Hope you find a solution very soon , I prey for that.
Hugs Mary!

maglets

pepebcn said:

Mary , fill so sorry for your troubles.
Is there any way to remove the lymph nodes or treat them? they are treating mine with radiotherapy and docs are very confident that it will work.
Hope you find a solution very soon , I prey for that.
Hugs Mary!

ahh Mary
mary i am so sorry to hear this pain has not been resolved. You are such a quiet trooper...I think about you daily ....hold my hand Mary....love you

mags

Sundanceh

Mary:(
I want you to get better too:)

-Craig

Lori-S

msccolon said:

thanks for asking
I really have been remiss in posting because the news just isn't good. I had my scope done and while he did find an ulcer in my rectum right where I feel pain, that's ALL he found. It's certainly not what's causing the bulk of my pain. We are going with our best guess that it's the lymph nodes pressing on the nerves down there. So, I was hoping to get some relief, at least a focus of where to go to get some relief, with nothing. I'm still exactly where I was before, dealing daily with pain and it's not getting better. I go to see my oncologist on the 22nd and I have asked for a referral to both pain management as well as cyberknife to do something about the nodes. If it is indeed the nodes, I don't imagine I'm going to get any real relief until we do something about the nodes. So, that's where it's at. Thank you for asking, Maggie!
mary

Mary
I sure hope they figure something out soon. Being in pain is not a good place to be. Sorry you are feeling poorly.

Annabelle41415

msccolon said:

thanks for asking
I really have been remiss in posting because the news just isn't good. I had my scope done and while he did find an ulcer in my rectum right where I feel pain, that's ALL he found. It's certainly not what's causing the bulk of my pain. We are going with our best guess that it's the lymph nodes pressing on the nerves down there. So, I was hoping to get some relief, at least a focus of where to go to get some relief, with nothing. I'm still exactly where I was before, dealing daily with pain and it's not getting better. I go to see my oncologist on the 22nd and I have asked for a referral to both pain management as well as cyberknife to do something about the nodes. If it is indeed the nodes, I don't imagine I'm going to get any real relief until we do something about the nodes. So, that's where it's at. Thank you for asking, Maggie!
mary

Pain
So sorry to hear that you are in so much pain and it hasn't been relieved yet. Trying to get answers to things sometimes are so frustrating as you are hurting and doctors just don't understand it. My hope and prayers are for you finding a solution to this and you being more comfortable.

Kim

tootsie1

msccolon said:

thanks for asking
I really have been remiss in posting because the news just isn't good. I had my scope done and while he did find an ulcer in my rectum right where I feel pain, that's ALL he found. It's certainly not what's causing the bulk of my pain. We are going with our best guess that it's the lymph nodes pressing on the nerves down there. So, I was hoping to get some relief, at least a focus of where to go to get some relief, with nothing. I'm still exactly where I was before, dealing daily with pain and it's not getting better. I go to see my oncologist on the 22nd and I have asked for a referral to both pain management as well as cyberknife to do something about the nodes. If it is indeed the nodes, I don't imagine I'm going to get any real relief until we do something about the nodes. So, that's where it's at. Thank you for asking, Maggie!
mary

Pain
So sorry about the pain! I really hope you can get some relief!

*hugs*
Gail

Luv2lunch

Mary,
We pray you will get
Mary,
We pray you will get some relief soon. I'm sorry you are in pain.
Love,
Linda and Ellie

msccolon

pepebcn said:

Mary , fill so sorry for your troubles.
Is there any way to remove the lymph nodes or treat them? they are treating mine with radiotherapy and docs are very confident that it will work.
Hope you find a solution very soon , I prey for that.
Hugs Mary!

radiotherapy
yes, that's what I'm going to look into next. I'm hoping that will do the trick!
mary

msccolon

msccolon said:

thanks for asking
I really have been remiss in posting because the news just isn't good. I had my scope done and while he did find an ulcer in my rectum right where I feel pain, that's ALL he found. It's certainly not what's causing the bulk of my pain. We are going with our best guess that it's the lymph nodes pressing on the nerves down there. So, I was hoping to get some relief, at least a focus of where to go to get some relief, with nothing. I'm still exactly where I was before, dealing daily with pain and it's not getting better. I go to see my oncologist on the 22nd and I have asked for a referral to both pain management as well as cyberknife to do something about the nodes. If it is indeed the nodes, I don't imagine I'm going to get any real relief until we do something about the nodes. So, that's where it's at. Thank you for asking, Maggie!
mary

thank you
thank you everyone for your thoughts and prayers. Something's got to give! Today's been a good day!
mary

maglets

msccolon said:

thank you
thank you everyone for your thoughts and prayers. Something's got to give! Today's been a good day!
mary

good
good good .....a good day is a good thing.....unlike repetition....oh well maybe that's good too

mags