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Got a doozy for ya!

ccincin
ccincin CSN Member Posts: 82
edited March 2014 in Breast Cancer #1
Pet scan came back all clear except a 1cm hypermetabolic activity spot "in" my uterus. Funny thing is I had a hysterectomy and don't have a uterus! WTH????
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Comments

  • pinkflutterby
    pinkflutterby CSN Member Posts: 615 Member
    #2
    interestingggg

    interestingggg
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  • sal314
    sal314 CSN Member Posts: 599 Member
    #3
    Oh My Gosh!
    Ummmmm....I'd be high tailing it outta that place and looking for a new hospital and new docs! Obviously, they were looking at someone else's scans, or they don't know how the hell ot read them! Either way, I'd be really nervous and outraged! You need to ask a LOT of questions! Whew...you weren't kidding when you said you had a doozy! :(

    Sally
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  • faith_trust_and_a_little_bit_of_chemotherapy
    faith_trust_and_a_little_bit_of_chemotherapy CSN Member Posts: 319 Member
    #4
    pinkflutterby said:

    interestingggg

    interestingggg

    You mean...
    They told you that you didn't have a uterus.

    Has the check cleared the bank yet?



    This is bound to have an interesting explanation.
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  • Different Ballgame
    Different Ballgame CSN Member Posts: 868
    #5
    sal314 said:

    Oh My Gosh!
    Ummmmm....I'd be high tailing it outta that place and looking for a new hospital and new docs! Obviously, they were looking at someone else's scans, or they don't know how the hell ot read them! Either way, I'd be really nervous and outraged! You need to ask a LOT of questions! Whew...you weren't kidding when you said you had a doozy! :(

    Sally

    I Agree
    I agree with everything that Sally said. Are they trying to tell you that you grew a new uterus?

    Hugs,
    Janelle
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  • LadyParvati
    LadyParvati CSN Member Posts: 328
    #6
    sal314 said:

    Oh My Gosh!
    Ummmmm....I'd be high tailing it outta that place and looking for a new hospital and new docs! Obviously, they were looking at someone else's scans, or they don't know how the hell ot read them! Either way, I'd be really nervous and outraged! You need to ask a LOT of questions! Whew...you weren't kidding when you said you had a doozy! :(

    Sally

    I agree with Sally--it is
    I agree with Sally--it is *definitely* time for a 2nd opinion and new docs!

    and if they *were* looking at the correct scans and *do* know how to read them, maybe you need to get ready to sue somebody!

    Sheeeeesh

    Sandy
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  • Hubby
    Hubby CSN Member Posts: 325
    #7
    PET Scans
    PET scans can give a lot of false positive readings, which is why a lot of oncologists (including Donna's) don't use them.
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  • ladyg
    ladyg CSN Member Posts: 1,577
    #8
    And these are
    the people we rely on to keep us healthy. Sometimes it makes you wonder!

    Hugs,
    Georgia
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  • ccincin
    ccincin CSN Member Posts: 82
    #9
    Hubby said:

    PET Scans
    PET scans can give a lot of false positive readings, which is why a lot of oncologists (including Donna's) don't use them.

    Oncologist said
    That it could be scar tissue from hysterectomy or some endometriosis. I have a pelvic MRI Monday morning. Such craziness!!!
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  • RE
    RE CSN Member Posts: 4,591 Member
    #10
    I've heard of phantom pain
    I've heard of phantom pain but a phantom uterus??? I would want them to double check they are reading the right scan, I know I was once shown an x-ray to explain my son's upcoming knee surgery when my husband noticed it was not his e-ray....we were upset! Soooo...never hurts to see your name on the x-ray.

    RE
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  • ccincin
    ccincin CSN Member Posts: 82
    #11
    RE said:

    I've heard of phantom pain
    I've heard of phantom pain but a phantom uterus??? I would want them to double check they are reading the right scan, I know I was once shown an x-ray to explain my son's upcoming knee surgery when my husband noticed it was not his e-ray....we were upset! Soooo...never hurts to see your name on the x-ray.

    RE

    Went straight there
    To imaging center' got dictation notes and it's def mine minus uterus. Has my mastectomy, lymph dissection and right implant intact. Only odd thing is uterus part! Going to ob tomorrow to get copies of hyst pics!
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  • jo jo
    jo jo CSN Member Posts: 1,175 Member
    #12
    ccincin said:

    Went straight there
    To imaging center' got dictation notes and it's def mine minus uterus. Has my mastectomy, lymph dissection and right implant intact. Only odd thing is uterus part! Going to ob tomorrow to get copies of hyst pics!

    Oh CC...thats just a little
    Oh CC...thats just a little on the scary side...are you sure they are real doctors cuz maybe your doc was an escaped convict possing as a doctor to get away from the cops...LOL?
    Sorry thats the only thing i could come up with on something so bizzar!
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  • jo jo
    jo jo CSN Member Posts: 1,175 Member
    #13
    Bumping cuz of spammer

    Bumping cuz of spammer
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  • ms.sunshine
    ms.sunshine CSN Member Posts: 707 Member
    #14
    jo jo said:

    Bumping cuz of spammer

    Bumping cuz of spammer

    Doozy is right
    You better hope that a magical baby doesn't appear. Doctors gotta love them. I'm sure it is scar tissue, but you would think they could tell.
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  • Cat64
    Cat64 CSN Member Posts: 1,192 Member
    #15
    Wow!
    That is a doozy! And here I thought it was crazy that I had a pregnancy test done even though I had a hysterectomy over 12 years ago!
    I too have learned that PetScans aren't always "reliable". I had a spot on my stomach, had to have more tests done to rule out Stomach Cancer, all because I was bloated from eating cheese with my high-protein breakfast!
    However, it still sounds like you just got the news of NED, so Congratulations!!
    ♥ Cat
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  • warrrior3
    warrrior3 CSN Member Posts: 92
    #16
    So weird
    what did they say when you told them you didn't have a uterus? My breast surgeon also did not want to do a PET since they pick up too many hot spots.
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  • disneyfan2008
    disneyfan2008 CSN Member Posts: 6,583 Member
    #17
    scary in deed
    what did they say when you told them you don't have ONE?
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  • smalldoggroomer
    smalldoggroomer CSN Member Posts: 1,184
    #18
    Holly cow, I would want a
    Holly cow, I would want a explanation NOW. And a new Dr NOW. Even if they have looked at the wrong picture or report How the hell did this happen. Scary very scary. I would RUN fast.
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  • cahjah75
    cahjah75 CSN Member Posts: 2,631
    #19
    Does
    your dr have an explanation????????? I had an endometrial biopsy and ovarian/pelvic MRI and ultrasound prior to bilateral mastectomy because I was experiencing spotting and I'm 11 yrs post menopause. All turned out ok but I never had a hysterectomy. I hope it's only scar tissue the PET scan picked up on........
    {{hugs}} Char
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  • dee1962
    dee1962 CSN Member Posts: 99
    #20
    smalldoggroomer said:

    Holly cow, I would want a
    Holly cow, I would want a explanation NOW. And a new Dr NOW. Even if they have looked at the wrong picture or report How the hell did this happen. Scary very scary. I would RUN fast.

    OMG ....check in to this
    OMG ....check in to this right away and i;ll be praying for you....
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  • VickiSam
    VickiSam CSN Member Posts: 9,079 Member
    #21
    dee1962 said:

    OMG ....check in to this
    OMG ....check in to this right away and i;ll be praying for you....

    This is INSANE .. and we wonder why
    so many people refuse to go to doctor's!!!!

    Run, walk .. drive to OBGYN -)

    Please let us know what happens --- Werido-rama

    Strength and Courage

    Vicki Sam
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