Neurosurgeon Visit Didn't Bring Good News

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  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #22
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    I don't have any advice,
    I don't have any advice, just positive thoughts for you.

    Linda
  • missrenee
    missrenee Member Posts: 2,136 Member
    #23
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    Gabe N Abby Mom said:

    I don't have any advice,
    I don't have any advice, just positive thoughts for you.

    Linda

    Judy--I'm so sorry to hear about your pain
    and the lack of an answer as to how to get rid of it. They are coming up with new treatments and remedies every day, though, so please don't lose hope. Sometimes the wackiest sounding things can work. Also, different things work on different people. With your doc's okay--try everything--even if it sounds crazy.

    I've heard it said that chronic pain is the hardest thing to treat because no one really knows exactly how you feel and what will or will not work.

    Hang in there, Judy. We're all praying and pulling for you.
    Hugs, Renee
  • Stace_aka_Pollyanna
    Stace_aka_Pollyanna Member Posts: 78
    #24
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    missrenee said:

    Judy--I'm so sorry to hear about your pain
    and the lack of an answer as to how to get rid of it. They are coming up with new treatments and remedies every day, though, so please don't lose hope. Sometimes the wackiest sounding things can work. Also, different things work on different people. With your doc's okay--try everything--even if it sounds crazy.

    I've heard it said that chronic pain is the hardest thing to treat because no one really knows exactly how you feel and what will or will not work.

    Hang in there, Judy. We're all praying and pulling for you.
    Hugs, Renee

    Jude, wish I could help... but I can send strength :)
    Have you heard of people using Botox injections to ease the pain? You might chck out this big bad web of information for details. I will definitely keep my ears and eyes open for "alternative" forms of treatment... you got a million of us Sisters searching for something to ease your pain :)

    Blessings and hugs,
    Stace
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #25
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    so sorry for your news
    I am new to site so I have not follow but I am still sending good thoughts your way!
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member
    #26
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    disneyfan2008 said:

    so sorry for your news
    I am new to site so I have not follow but I am still sending good thoughts your way!

    So sorry Judy.I hope the
    So sorry Judy.I hope the Ativan and pain killers relieve some of the pain. Chemo sure can do a lot of damage.
    God Bless,
    Hugs,
    Wanda
  • natly15
    natly15 Member Posts: 1,941
    #27
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    Judy I'm sending healing
    Judy I'm sending healing thoughts your way. That news is simply a bummer, but I want to steal some of your wonderful attitude!! You certainly have had your share, and I pray that this is it for you. Wishing you health and healing and No More pain or issues.
  • Jean 0609
    Jean 0609 Member Posts: 2,462
    #28
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    Hi Judy,
    I am so sorry to hear your news. Sending positive thoughts & prayers your way, my friend. Hugs, Jean
  • roseann4
    roseann4 Member Posts: 992 Member
    #29
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    Jean 0609 said:

    Hi Judy,
    I am so sorry to hear your news. Sending positive thoughts & prayers your way, my friend. Hugs, Jean

    Energy healing?
    I can't imagine knowing that there's nothing they can do. However, I studied energy healing a few years back and it really can work. There are practitioners who volunteer their time if money is an issue. The one I studied was called Healing Touch. You may want to check that out. Again, I so sorry to hear your news.

    Roseann
  • creampuff91344
    creampuff91344 Member Posts: 988
    #30
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    roseann4 said:

    Energy healing?
    I can't imagine knowing that there's nothing they can do. However, I studied energy healing a few years back and it really can work. There are practitioners who volunteer their time if money is an issue. The one I studied was called Healing Touch. You may want to check that out. Again, I so sorry to hear your news.

    Roseann

    Thank you all
    The news from the neurosurgeon has taken a few days to really sink in, so forgive me for not responding to some of your posts. My husband and I have really done some soul searching, and have decided that "it is what it is".....so how do we go from here. I am visiting next week with a pain management specialist, and whatever help he can offer will be gladly incorporated into our daily schedule. If this pain is going to be with me forever, then I just need to find a way to take comfort in whatever makes me feel my best every day. I have started a rigid exercise program, have decided that daily "cat naps" are in my future, and when things aren't going well, I will take time away from everyone, and just deal with the issues at hand. I know this all sounds like mumbo jumbo to all of you, but we have no choice but to accept the diagnosis. I am going to try getting off of the pain meds by using Ibuprophen and Aspirin as an alternative, but that will be a slow process. As far as the anxiety is concerned, hopefully the exercise will allow by body to unwind a bit, and hopefully the anxiety will lessen. Other than that, just keep me in your thoughts. We were so hoping that the neurosurgeon could just go in and "snip" away the pain. Since he can't, we are going to do a little snipping of our own. I will keep you posted on my progress, but in the meantime, there are those of you who face much harsher prognosis.....I will be there for you, as will everyone else on this board. That's what we do. Hugs to all, Judy
  • New Flower
    New Flower Member Posts: 4,294
    #31
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    creampuff91344 said:

    Thank you all
    The news from the neurosurgeon has taken a few days to really sink in, so forgive me for not responding to some of your posts. My husband and I have really done some soul searching, and have decided that "it is what it is".....so how do we go from here. I am visiting next week with a pain management specialist, and whatever help he can offer will be gladly incorporated into our daily schedule. If this pain is going to be with me forever, then I just need to find a way to take comfort in whatever makes me feel my best every day. I have started a rigid exercise program, have decided that daily "cat naps" are in my future, and when things aren't going well, I will take time away from everyone, and just deal with the issues at hand. I know this all sounds like mumbo jumbo to all of you, but we have no choice but to accept the diagnosis. I am going to try getting off of the pain meds by using Ibuprophen and Aspirin as an alternative, but that will be a slow process. As far as the anxiety is concerned, hopefully the exercise will allow by body to unwind a bit, and hopefully the anxiety will lessen. Other than that, just keep me in your thoughts. We were so hoping that the neurosurgeon could just go in and "snip" away the pain. Since he can't, we are going to do a little snipping of our own. I will keep you posted on my progress, but in the meantime, there are those of you who face much harsher prognosis.....I will be there for you, as will everyone else on this board. That's what we do. Hugs to all, Judy

    Judy trigger point injection
    Judy,
    I am very sorry for your medical conditions. Another treatment which was not mentioned and often could be done at acupuncturist office - trigger point injections with lidocaine.
    Wishing your program will work for you. Congratulations on your new great grandson.
    Hugs
  • Different Ballgame
    Different Ballgame Member Posts: 868
    #32
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    I am searching for information to help you
    Judy

    My heart is breaking. After reading this posting, I am searching for alternative sources that could possibly help you. Information is being mailed to me (hopefully today) regarding a fairly new treatment method for people who have neuropathy in the feet and hands. They have not done it for the face. But maybe we can learn more about this treatment and see where it can lead us to help you. I live in Chicago. I can't remember at the moment where you live. You should be hearing more from me within the week.

    Tons & Tons of Hugs,
    Janelle
  • KathiM
    KathiM Member Posts: 8,028 Member
    #33
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    My mom is dealing with pain acceptance, as well....
    I've had constant pain in my lower back for years....not cancer related...

    I bless you with what happened to me: After I realized that this pain would be with me, and nothing was wrong (like cancer), I was able to do work-arounds and different thought processes. Agreed, mine is only back...yours is in a much less favorable place....

    BIG hugs for the disappointment! But at least it is not the beast!!!

    Hugs, Kathi
  • Brooklynchele
    Brooklynchele Member Posts: 123
    #34
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    creampuff91344 said:

    Thank you all
    The news from the neurosurgeon has taken a few days to really sink in, so forgive me for not responding to some of your posts. My husband and I have really done some soul searching, and have decided that "it is what it is".....so how do we go from here. I am visiting next week with a pain management specialist, and whatever help he can offer will be gladly incorporated into our daily schedule. If this pain is going to be with me forever, then I just need to find a way to take comfort in whatever makes me feel my best every day. I have started a rigid exercise program, have decided that daily "cat naps" are in my future, and when things aren't going well, I will take time away from everyone, and just deal with the issues at hand. I know this all sounds like mumbo jumbo to all of you, but we have no choice but to accept the diagnosis. I am going to try getting off of the pain meds by using Ibuprophen and Aspirin as an alternative, but that will be a slow process. As far as the anxiety is concerned, hopefully the exercise will allow by body to unwind a bit, and hopefully the anxiety will lessen. Other than that, just keep me in your thoughts. We were so hoping that the neurosurgeon could just go in and "snip" away the pain. Since he can't, we are going to do a little snipping of our own. I will keep you posted on my progress, but in the meantime, there are those of you who face much harsher prognosis.....I will be there for you, as will everyone else on this board. That's what we do. Hugs to all, Judy

    I wish
    there was something I could do or say to help. Please know that my thoughts are with you. And hang on to hope - new drugs are coming out all the time, perhaps another neurologist can recommend something to help.
    Hugs!
    Michele
  • weazer
    weazer Member Posts: 440
    #35
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    KathiM said:

    My mom is dealing with pain acceptance, as well....
    I've had constant pain in my lower back for years....not cancer related...

    I bless you with what happened to me: After I realized that this pain would be with me, and nothing was wrong (like cancer), I was able to do work-arounds and different thought processes. Agreed, mine is only back...yours is in a much less favorable place....

    BIG hugs for the disappointment! But at least it is not the beast!!!

    Hugs, Kathi

    Sorry Judy
    I was so hoping that you would get some answers that would be easy to manage.
    Sending lots of well wishes your way.

    Karie
  • sgamtd
    sgamtd Member Posts: 124
    #36
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    creampuff91344 said:

    Thank you all
    The news from the neurosurgeon has taken a few days to really sink in, so forgive me for not responding to some of your posts. My husband and I have really done some soul searching, and have decided that "it is what it is".....so how do we go from here. I am visiting next week with a pain management specialist, and whatever help he can offer will be gladly incorporated into our daily schedule. If this pain is going to be with me forever, then I just need to find a way to take comfort in whatever makes me feel my best every day. I have started a rigid exercise program, have decided that daily "cat naps" are in my future, and when things aren't going well, I will take time away from everyone, and just deal with the issues at hand. I know this all sounds like mumbo jumbo to all of you, but we have no choice but to accept the diagnosis. I am going to try getting off of the pain meds by using Ibuprophen and Aspirin as an alternative, but that will be a slow process. As far as the anxiety is concerned, hopefully the exercise will allow by body to unwind a bit, and hopefully the anxiety will lessen. Other than that, just keep me in your thoughts. We were so hoping that the neurosurgeon could just go in and "snip" away the pain. Since he can't, we are going to do a little snipping of our own. I will keep you posted on my progress, but in the meantime, there are those of you who face much harsher prognosis.....I will be there for you, as will everyone else on this board. That's what we do. Hugs to all, Judy

    pain
    Aww, Judy, so sorry to read that the jaw pain is something they feel nothing can be done about. I have been away from the boards for a while, first long road trip visiting family and friends, wonderful time, last year when diagnosed I wondered if I'd ever see them all again, then my husband falls down, hurt all over, then heart problem and back pain visits him as well,so now ongoing testing, treatments for him, he has many new meds with s/e's, so we have switched roles for the time being, I am the caregiver so my visits here have been next to none. Living with cronic pain is hard, I see it every day in my husbands eyes, and I think chosing to go for pain management therapy is a good choice and next step for you.
    Wishing you all the best, and looking forward to a real good progress report from you.
    your friend
    sgamtd

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