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Need answers for my sister

cookie97
cookie97 CSN Member Posts: 200
edited March 2014 in Ovarian Cancer #1
Hi ladies, I'm not part of this group I actually have IDC stage IV and post on those sites. However my older sister just had a hysterectomy and was told that she is pre-cancerous. I always thought that you have cancer or you don't. Right now her surgeon is recommending the "We'll check you again in 5 years approach." That just doesn't seem right to me.
Any thoughts, Ideas or suggestions ladies? Any info at this point would be greatfully appreciated?
She's 57 this year and otherwise healthy as a horse.

Peace and Love to you all,
Edie
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Comments

  • Barbara53
    Barbara53 CSN Member Posts: 652
    #2
    get a baseline CA125
    Edie,
    As always, you're going to have to trust your sister's doctors on this one, but one thing she should do as soon as the inflammation from surgery subsides (8 weeks?) is get her CA125 measured. It's an ovarian cancer blood marker in which the normal range is 2-25, but some women have an above-average "normal" or baseline. It's one of the few things that can be monitored non-invasively, and could prove to be very useful in the future.

    Chances her doctors will do this when they discharge her after follow-up, but she should ask and make sure it gets done.
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  • mopar
    mopar CSN Member Posts: 1,972 Member
    #3
    HI, EDIE
    I totally understand your concerns. See if you sister can get a second opinion from a gynecologic/oncologist. He/she could read the reports and evaluate her. I agree that she should also get a CA125. Maybe they did one before the surgery? My regular gynecologist did a CA125 without me even realizing it, and it's a good thing - that's when he referred me to the oncologist. 'Wait 5 years' is a concern to me, especially if they are calling it 'pre-cancerous'. Anyway, just my thoughts, and I hope it helps.

    Sending good thoughts and prayers.
    Monika
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  • cookie97
    cookie97 CSN Member Posts: 200
    #4
    Thanks ladies
    Ladies thank you soooo much i will call my sister tonight and see if she already knows these numbers. She gave me a whole list of things that i didn't understand, but I'll take your suggestion and get back with you all tomorrow.
    Thanks for listening and your prompt responses.

    Peace and Love to us all,
    Edie
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  • leesag
    leesag CSN Member Posts: 621 Member
    #5
    cookie97 said:

    Thanks ladies
    Ladies thank you soooo much i will call my sister tonight and see if she already knows these numbers. She gave me a whole list of things that i didn't understand, but I'll take your suggestion and get back with you all tomorrow.
    Thanks for listening and your prompt responses.

    Peace and Love to us all,
    Edie

    Hi Edie,
    Unless your
    Hi Edie,

    Unless your sister's surgeon was a gynecologic oncologist, I STRONGLY recommend a second opinion!

    I had abnormal bleeding a year before my diagnosis and my gyn did the D&C but didn't look at my ovaries. I wish he had!

    Leesa
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