Different types of Breast Cancer
We are all united as Sisters in this battle but we are not all the same.
Susan
Comments
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You weren't told the type BC you have?Sher43009 said:I think this is way the docs
I think this is way the docs don't tell you ALL the side effects. Each of us is different and may not have the same side effects.
Sher
I'm not talking about the 'side effects' but rather the type and the aggressive nature of that type. There are different types with very different prognosis/protocol. The average % for all types of Breast Cancer for 5 year survival is 87% survival - for IBC that drops to 25% to 40% (depending on the study). Big difference!
Unfortunately - so many think that BC = BC. Sorry that's not true
Susan0 -
Sorry!
I am very sorry you have a dx of one of the more aggressive cancers. Another issues is of course, how early it/any cancer is dx'ed. I will keep you in my thoughts and prayers. hugs...alison0 -
Of course I was told.Rague said:You weren't told the type BC you have?
I'm not talking about the 'side effects' but rather the type and the aggressive nature of that type. There are different types with very different prognosis/protocol. The average % for all types of Breast Cancer for 5 year survival is 87% survival - for IBC that drops to 25% to 40% (depending on the study). Big difference!
Unfortunately - so many think that BC = BC. Sorry that's not true
Susan
Every bc is different, every treatment is different, every side effect is different. That was my point.
Sher0 -
Point is -webbwife50 said:Sorry!
I am very sorry you have a dx of one of the more aggressive cancers. Another issues is of course, how early it/any cancer is dx'ed. I will keep you in my thoughts and prayers. hugs...alison
Not all Breast Cancers are the same.
How early Dx'd is a good point - but IBC is seldom (if ever) DX'd til Stage III or IV.
This is not about ME in any way! I'm not the only IBC here (we are only between 1% and 5% of BC women) My point is do not ASSUME that that what is 'right' for 'you' is the 'norm' for all of us to experience on our fight!
Cancer is a MULTI-headed monster - no matter where it attacks. Do not assume that what you are fighting is what all fight = THAT IS THE POINT! Each of us need to do what we must - and give our experiences to others BUT not ASSUME that what was 'right' for us is 'right' for all. Not all have to fight as aggressively as I had to - THANKFULLLY.
Susan0 -
You are so right!Rague said:You weren't told the type BC you have?
I'm not talking about the 'side effects' but rather the type and the aggressive nature of that type. There are different types with very different prognosis/protocol. The average % for all types of Breast Cancer for 5 year survival is 87% survival - for IBC that drops to 25% to 40% (depending on the study). Big difference!
Unfortunately - so many think that BC = BC. Sorry that's not true
Susan
not that i sit around whining about my situation. . . i have inflammatory breast cancer and am triple negative - both extremely aggressive . . .people mean well, but comparing me to someone they know that had a lumpectomy and four chemo treatments and not understanding that what i am going through has no resemblance to what their friend went through drives me crazy!!!0 -
ThanksRague said:Point is -
Not all Breast Cancers are the same.
How early Dx'd is a good point - but IBC is seldom (if ever) DX'd til Stage III or IV.
This is not about ME in any way! I'm not the only IBC here (we are only between 1% and 5% of BC women) My point is do not ASSUME that that what is 'right' for 'you' is the 'norm' for all of us to experience on our fight!
Cancer is a MULTI-headed monster - no matter where it attacks. Do not assume that what you are fighting is what all fight = THAT IS THE POINT! Each of us need to do what we must - and give our experiences to others BUT not ASSUME that what was 'right' for us is 'right' for all. Not all have to fight as aggressively as I had to - THANKFULLLY.
Susan
Thanks for the reminder, sorry if you felt someone was trying to tell others what to do on this site. It's important to remember that a lot of different people post and read here, so we have to be careful about our communication.
Sorry to all if I have come across that way....it is never my intention.
Live as well as you can for as long as you can seof0 -
Guilt
Sue
I am always so heart stricken when I read about each individuals journey through unknown territor of the beast. And yes, it is so disturbing there are so many different types of BC without full disclosure from med profession about all the veriances of types. To have to learn from this site all the differences and challenges is quit the education. My heart goes out to you and all the others who have such a struggle. Don't ever forget you are always thought of if not personnally but as a woman fighting for your life daily.
Kathryn0 -
Types
So we have (from http://www.breastcancer.org):
Breast cancer can begin in different areas of the breast – the ducts, the lobules, or in some cases, the tissue in between. In this section, you can learn about the different types of breast cancer, including non-invasive, invasive, recurrent, and metastatic breast cancers.
DCIS – Ductal Carcinoma In Situ
IDC – Invasive Ductal Carcinoma
LCIS – Lobular Carcinoma In Situ
ILC – Invasive Lobular Carcinoma
Inflammatory Breast Cancer
Paget's Disease of the Nipple
Phyllodes Tumors of the Breast
Recurrent and Metastatic Breast Cancer
And within each of these catagories, there is er/pr/her2 positive and negative. And the wording of the pathology reports can be confusing also. Donna's initial pathology said DCIS and IDC.
But then to these types and subtypes you add in stage, grade,node involvement...you end up with a lot of variations.
Bob0 -
That's why CSN is so importantheidijez said:You are so right!
not that i sit around whining about my situation. . . i have inflammatory breast cancer and am triple negative - both extremely aggressive . . .people mean well, but comparing me to someone they know that had a lumpectomy and four chemo treatments and not understanding that what i am going through has no resemblance to what their friend went through drives me crazy!!!
That's why I love this site....I think everyone means well and really cares when they reply, so I assume (and hope) that noone is intentionally minimizing anyone's situation. This site and our replies can educate us on the different types, treatments and experiences that we all have. Renay0 -
Very well put Bob. There areHubby said:Types
So we have (from http://www.breastcancer.org):
Breast cancer can begin in different areas of the breast – the ducts, the lobules, or in some cases, the tissue in between. In this section, you can learn about the different types of breast cancer, including non-invasive, invasive, recurrent, and metastatic breast cancers.
DCIS – Ductal Carcinoma In Situ
IDC – Invasive Ductal Carcinoma
LCIS – Lobular Carcinoma In Situ
ILC – Invasive Lobular Carcinoma
Inflammatory Breast Cancer
Paget's Disease of the Nipple
Phyllodes Tumors of the Breast
Recurrent and Metastatic Breast Cancer
And within each of these catagories, there is er/pr/her2 positive and negative. And the wording of the pathology reports can be confusing also. Donna's initial pathology said DCIS and IDC.
But then to these types and subtypes you add in stage, grade,node involvement...you end up with a lot of variations.
Bob
Very well put Bob. There are also the T's. T standing for tumor.for instance mine was T2. Then there's the N's. N standing for node. Mine was N2a. So to break it down.
I had Stage 3A invasive ductal T2-N2a.
Hope this also helps.
the number that follows the T and N's are the size of tumor and how many nodes were infected.0 -
Doing great!ladybug22 said:Rague
May i ask how are you doin?.Are you clean. I had I B C i am going on three years cleans as of right now.hug and love to you and all
I just started another thread - I saw Surgeon's PA today for 1 year post surgery appt. I'm definately riding NED (I can't ddance but I'm a better than average horsewoman LOL).
Susan0 -
doing gretRague said:Doing great!
I just started another thread - I saw Surgeon's PA today for 1 year post surgery appt. I'm definately riding NED (I can't ddance but I'm a better than average horsewoman LOL).
Susan
keep up the good work.You can dance every day. hugs and love 2 you0 -
Ladybug,ladybug22 said:doing gret
keep up the good work.You can dance every day. hugs and love 2 you
I love your photo!
Ladybug,
I love your photo!0 -
LighthouseLighthouse_7 said:Ladybug,
I love your photo!
Ladybug,
I love your photo!
thanks i made that i used pink lights and a childs noodle they use in a pool.0 -
BC .Rague said:You weren't told the type BC you have?
I'm not talking about the 'side effects' but rather the type and the aggressive nature of that type. There are different types with very different prognosis/protocol. The average % for all types of Breast Cancer for 5 year survival is 87% survival - for IBC that drops to 25% to 40% (depending on the study). Big difference!
Unfortunately - so many think that BC = BC. Sorry that's not true
Susan
Susan, I have followed your posts and I have thought and prayed for you as I know you are going through a tough fight.
God Bless
Hugs
Annette0 -
There is a difference Bob between recurrent & Metastatic BC aka as stage IV. Recurrence can happen in the axilla, the nodes above and under the collar bone or behind the breast bone and they are not considered stage IV. These are still curable.Hubby said:Types
So we have (from http://www.breastcancer.org):
Breast cancer can begin in different areas of the breast – the ducts, the lobules, or in some cases, the tissue in between. In this section, you can learn about the different types of breast cancer, including non-invasive, invasive, recurrent, and metastatic breast cancers.
DCIS – Ductal Carcinoma In Situ
IDC – Invasive Ductal Carcinoma
LCIS – Lobular Carcinoma In Situ
ILC – Invasive Lobular Carcinoma
Inflammatory Breast Cancer
Paget's Disease of the Nipple
Phyllodes Tumors of the Breast
Recurrent and Metastatic Breast Cancer
And within each of these catagories, there is er/pr/her2 positive and negative. And the wording of the pathology reports can be confusing also. Donna's initial pathology said DCIS and IDC.
But then to these types and subtypes you add in stage, grade,node involvement...you end up with a lot of variations.
Bob
Stage IV is when bc cells go to another organ, lungs, liver, brain, bones and etc., these are not curable at this point in time.
SIROD0 -
Earlywebbwife50 said:Sorry!
I am very sorry you have a dx of one of the more aggressive cancers. Another issues is of course, how early it/any cancer is dx'ed. I will keep you in my thoughts and prayers. hugs...alison
Breast cancer is all about luck. Stage 0 and one can still find themselves with widespread, lung, liver, bone metastasis in less than a year.
I have been online for many years (1997) participating on breast cancer boards, forums and etc. In my years doing this, I have seen women with large tumors 8cm many nodes positive to never have a recurrence or become stage IV. I have seen stage 0 become a person's worst nightmare. There is no pattern on how one's breast cancer will turn out.
A majority of women or men who are dx early to on a whole have a better outcome, but it is no guarantee.
One would think if you found your mets early while it's small would prolong your life. Again there is no guarantee.
This is why all the hype for pink ribbon month doesn't in any way equate to "CURE". There is still so much to learn about the disease called breast cancer. Scientist are still in the 1st grade trying to understand the fundamentals.
SIROD0
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