thyrogen injections

pamt2
pamt2 Member Posts: 4
edited March 2014 in Thyroid Cancer #1
My husband is going for his first thyrogen injection on Monday and we don't know what to expect. He has to get 2 injections and then the radioiodine pill over a three day period. I will be going with him because we don't know if he will be sick afterwards or not. It is about a 30 min drive one way. Please let us know what to expect. Thanks

Comments

  • sunnyaz
    sunnyaz Member Posts: 582
    #2
    Thyrogen Injections
    I didn't have any problems with the injections. I had two before my scan and then two more before my treatment. The only small side effect the first time was a slight headache. I then learned and took ibuprofen about a half an hour to forty-five minutes before the injections to fight it off. Everyone reacts differently but I don't think there are many who have side effects. This injection is usually given in the glute. I didn't have any soreness from the injection either. I took the injections and went back to work all four days. Best of luck to him.
    sunnyaz
  • alapah
    alapah Member Posts: 287
    #3
    sunnyaz said:

    Thyrogen Injections
    I didn't have any problems with the injections. I had two before my scan and then two more before my treatment. The only small side effect the first time was a slight headache. I then learned and took ibuprofen about a half an hour to forty-five minutes before the injections to fight it off. Everyone reacts differently but I don't think there are many who have side effects. This injection is usually given in the glute. I didn't have any soreness from the injection either. I took the injections and went back to work all four days. Best of luck to him.
    sunnyaz

    i had no reactions either
    I seem to recall hearing that the chances of having an adverse reaction to thyrogen are rather small. It was a non event for me. I hope it is for your husband as well.
  • pamt2
    pamt2 Member Posts: 4
    #4
    sunnyaz said:

    Thyrogen Injections
    I didn't have any problems with the injections. I had two before my scan and then two more before my treatment. The only small side effect the first time was a slight headache. I then learned and took ibuprofen about a half an hour to forty-five minutes before the injections to fight it off. Everyone reacts differently but I don't think there are many who have side effects. This injection is usually given in the glute. I didn't have any soreness from the injection either. I took the injections and went back to work all four days. Best of luck to him.
    sunnyaz

    injection
    Thank you for your reply. Did you have the radioiodine pill after the 2 injections?
  • pamt2
    pamt2 Member Posts: 4
    #5
    alapah said:

    i had no reactions either
    I seem to recall hearing that the chances of having an adverse reaction to thyrogen are rather small. It was a non event for me. I hope it is for your husband as well.

    injection
    Thank you. I really appreciate it.
  • sunnyaz
    sunnyaz Member Posts: 582
    #6
    pamt2 said:

    injection
    Thank you for your reply. Did you have the radioiodine pill after the 2 injections?

    RAI after Thryogen Injections
    Yes, I had a scan dose one week and then the next week I had two more injections and the treatment dose. So I had four injections in a nine day period. I too heard that reactions are very rare. They will make him stay for thirty minutes after the first injection and as long as he doesn't have a reaction, he can leave right after the second injection the next day.
  • alapah
    alapah Member Posts: 287
    #7
    sunnyaz said:

    RAI after Thryogen Injections
    Yes, I had a scan dose one week and then the next week I had two more injections and the treatment dose. So I had four injections in a nine day period. I too heard that reactions are very rare. They will make him stay for thirty minutes after the first injection and as long as he doesn't have a reaction, he can leave right after the second injection the next day.

    If I remember correctly
    I had thyrogen shots on a Mon and Tues, blood test on Wed and then the small 'tracer' dose, followed by the scan on Friday. I ended up not getting an ablative dose afterward (though I did have a 100 mci dose months prior but off meds, not with thyrogen). I wasn't made to wait after the shots, and I drove myself to and from. It is probably not a bad idea to wait a bit if you can - or if they make you. It's interesting how every institution is different in how they handle the procedures.
  • lglegl70
    lglegl70 Member Posts: 20
    #8
    I had this three weeks ago
    I had the Thyrogen shots three weeks ago. Monday and Tuesday I had the shots. The first shot they made me wait 15 minutes before leaving. I had a slight headache and a little nausea that evening. Nothing major. The second shot was a breeze. In and out in just a few minutes and no headache or nausea. Then on Wednesday I had the RAI. It was quick...they have you take the pills and get you out of the hospital as soon as possible. I was escorted out, just in case I ran into someone I knew - they didn't want me stopping to chat. And I was not allowed to ride the elevator with anyone (except my husband). It is a 45 minute drive to get home from the hospital. I had to sit in the back seat, on the opposite side of my husband (who was driving). Once we got home, we separated and my isolation began.
  • sunnyaz
    sunnyaz Member Posts: 582
    #9
    pamt2: How is your husband?
    Just wanted to find out how your husband is doing. Did he do well with the injections and the RAI?
  • ksblack
    ksblack Member Posts: 20 Member
    #10
    Thyrogen Injections
    I did not get sick and actually I went to the appointment from work and back to work afterward and had no side effects from them. It isn't bad at all. I hope he does well and everything is okay. I did the the pill as well and that wasn't bad either.
  • nevergiveup51
    nevergiveup51 Member Posts: 40
    #11
    ksblack said:

    Thyrogen Injections
    I did not get sick and actually I went to the appointment from work and back to work afterward and had no side effects from them. It isn't bad at all. I hope he does well and everything is okay. I did the the pill as well and that wasn't bad either.

    Thyogen Injections
    Hi, everyone. Hoping someone can help. Was diagnosed with Papillary thyroid cancer with 10% tall Cell, spread to 4 lymph nodes. Did RAI May 8th and now I have to 6 month full body scan. Question is my doctor wants me to get the thyogen injections on December 6 and 7 and I heard it is better to do the low iodine diet while being off sythroid. You get a better reading from the scan. I am trying to get my physician to allow me to do this but they are fighting me and saying no. They do it this way and that's it. What do you thing?

    Debby
  • lagonzo68
    lagonzo68 Member Posts: 1
    #12
    nevergiveup51 said:

    Thyogen Injections
    Hi, everyone. Hoping someone can help. Was diagnosed with Papillary thyroid cancer with 10% tall Cell, spread to 4 lymph nodes. Did RAI May 8th and now I have to 6 month full body scan. Question is my doctor wants me to get the thyogen injections on December 6 and 7 and I heard it is better to do the low iodine diet while being off sythroid. You get a better reading from the scan. I am trying to get my physician to allow me to do this but they are fighting me and saying no. They do it this way and that's it. What do you thing?

    Debby

    Hi Debby,
    I also was
    Hi Debby,
    I also was diagnosed with Papillary thyroid cancer in Feb. 10. I did my radiation treatment at the end of April and prepped for it by doing the low iodine diet and getting off synthroid. I have a scan scheduled on Dec. 15th and my Dr. wants me to go through the same process. I had heard about the injections and really pushed my Dr. to give them to me this time around. Oddly enough, she was adamant that I do it the same way. I am not looking forward to it because I got very sick to my stomach toward the end of the two weeks, in addition to being very tired. With the holidays coming up, it's really not the time to be feeling so badly.

    I also didn't like my Dr. I swore I was going to change Dr.s, but I couldn't get anyone to refer me to someone better. The other Endo's do not have a good reputation. She, apparently, does. She doesn't answer questions or explain things very well. I really wanted to try to find a Dr. who would allow me to do the injections. It's my understanding that it depends on the stage of cancer it is. Mine was stage III because it spread to the lymph nodes in my neck.

    As for it being the "best cancer" to have, I have heard that over and over again. Although I agree that no cancer is good, I feel blessed that it is very treatable and that chemo is not involved...at least in our case. I lost a friend to stomach cancer this past Thanksgiving and another friend to Breast Cancer during the summer. For the most part, I don't feel like I've missed a beat. My friends didn't have it so lucky. They were in and out of the hospital for about a year and they felt like death. I think people say that it's the "best cancer" to have because they are trying to cheer you up. When I think of it that way, it helps keep my spirits lifted. However, it is still very scary and I am nervous about the results of my upcoming scan. I wanted to wait for the results until after the new year, but my Dr. insisted that I come in on Dec. 20th. She even opened up her appointment calendar just so she could see me (I guess the office is not seeing patients after the 16th). Good luck with everything. I wish you the best.
  • eileen21
    eileen21 Member Posts: 1
    edited August 2017 #13
    Hello, I had my thyroid

    Hello, I had my thyroid removed. I had 2 iodone shots yesterday and today. Tomorrow I will take the radioactive capsule tomorrow. I have to be in isolation for a week.. Anyone experience this....SO NERVOUS

  • tonadachi
    tonadachi Member Posts: 1
    #14
    Thyrogen and thyroid cancer

    Hi, Eileen21 (and everybody else)

    I have an exon 11 mutation.  Had stomach removed due to a rare sarcoma in 2011.  Now have papillary thyroid cancer, aggressive due to multiple foci (multiple cancerous nodes on the thyroid).  Am going through low iodine diet starting Monday (September 10) and will do radioactive iodine on September 25th.  

    Cancer can kiss my ****!

  • alapah
    alapah Member Posts: 287
    edited September 2017 #15
    tonadachi said:

    Thyrogen and thyroid cancer

    Hi, Eileen21 (and everybody else)

    I have an exon 11 mutation.  Had stomach removed due to a rare sarcoma in 2011.  Now have papillary thyroid cancer, aggressive due to multiple foci (multiple cancerous nodes on the thyroid).  Am going through low iodine diet starting Monday (September 10) and will do radioactive iodine on September 25th.  

    Cancer can kiss my ****!

    Low Iodine Cookbook available

    Thyca.org has a free dowloadable low iodine cookbook available on their website. I found it to be really helpful. It includes a single pager that you can carry with you which has the main do's and dont's.

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