Started the new trial

chicoturner

Hi everyone, I just got home from 4 days in SF where I started the new clinical trial. It was a long 4 days at time, and yet we were able to do some relaxing walks too! I can't say enough about how pleasant the research teams are at UCSF. The trial consists of a dose of pills each day. I had lots of EKG's, electrocartiogram, and blood work done, over and over. I also have to check my blood sugars each day prior to taking the meds. I will go back next week to check in and the following week for another long day of testing followed by a 2nd day of blood work. It seems like a lot of to-do but, on the other hand, it's the big chance. One of the Dr. there game me this web site to check on other trials or just get info. I was amazed at the trials being done. Check it out! ClinicalTrials.gov
Thanks for your support everyone, and I will keep you posted. Jean

Jaylo969

Wishing for good results
Good luck with the trial Jean. I will be thinking of you and hoping for the very best results.
Best wishes.

-Pat

Annabelle41415

Great
Just think that this is wonderful that you are able to participate in this new trial. Sounds like you have had your days filled with much to do, but all in all taking in the breaks that you get. You are in my prayers daily. Do you have diabetes? Just asking because you said that you have to have your blood sugars taken. Is there a special IV they give you instead? Sorry for all the questions, just trying to grasp your treatment. Whatever, I'm hoping the best for you and wishing you continued improvement.

Kim

tootsie1

hope it goes well
Hi, Jean.

I'm praying this trial will work out beautifully for you.

*hugs*
Gail

pepebcn

tootsie1 said:

hope it goes well
Hi, Jean.

I'm praying this trial will work out beautifully for you.

*hugs*
Gail

jean
this is going to be the one you will see!
Cheer up!

AnneCan

You are off to a great start!
Hi Jean,

I am so happy you have the first leg of this trial over. It does sound like a lot of work, but you are worth it. I am glad you had some time to walk around. My husband + I were in San Francisco 2 years ago + had the most amazing time. It is a beautiful city; I would love to go back. Good luck with this trial!

chicoturner

Annabelle41415 said:

Great
Just think that this is wonderful that you are able to participate in this new trial. Sounds like you have had your days filled with much to do, but all in all taking in the breaks that you get. You are in my prayers daily. Do you have diabetes? Just asking because you said that you have to have your blood sugars taken. Is there a special IV they give you instead? Sorry for all the questions, just trying to grasp your treatment. Whatever, I'm hoping the best for you and wishing you continued improvement.

Kim

Kim, no diabetes, but I
Kim, no diabetes, but I guess this drug can affect blood sugars or at least it has potential to do that. It's interesting all that they cover in starting a drug trial, however, it is a bit intimidating! I noticed with the last trial and now this one, they never hand me the meds and say it is time to take them, instead, they set them down and say you can take them if you like.....I understand that it is very much a volunteer situation, but it does give me a crazy feeling! Thanks for you encouragement. Jean

Lori-S

Jean
I am happy that you were accepted in the trial. Good luck to you!

Kathleen808

Jean
Jean,
It sounds like they are getting a real good read on your overall health and they will have a good eye on you. I am hoping and praying that this drug is the one for you. Obviously it has shown progress and it can be the one. I am thinking of you Jean it is your time for great results.

With aloha,
Kathleen

newperson

hope it works wonder for you
Jean, Hope this trial is the right one that will give you the best result. Hang in there. My best wishes to you. - Lucy

Fight for my love

Best wishes and best luck to
Best wishes and best luck to you with the trial,hope for great result.

sasjourney

Good luck!
Jean,

Good luck with the new trial. Keep us posted on how you are doing. You are in my prayers that this will be the treatment to give you NED.

Hugs,
Sara

Annabelle41415

chicoturner said:

Kim, no diabetes, but I
Kim, no diabetes, but I guess this drug can affect blood sugars or at least it has potential to do that. It's interesting all that they cover in starting a drug trial, however, it is a bit intimidating! I noticed with the last trial and now this one, they never hand me the meds and say it is time to take them, instead, they set them down and say you can take them if you like.....I understand that it is very much a volunteer situation, but it does give me a crazy feeling! Thanks for you encouragement. Jean

Blood sugar levels
Yes that is what happened to me too. Mine were so off during chemo. They would be down so low one week and way up the next. Don't like the situation that you are in that "they" make you decide if you want to take them or not. That makes me kind of nervous, maybe like they should say "you should take it." Guess because you are on trial it is your call but still that would make me so nervous. Geez what do you do? My heart goes out to you and thank you for doing a trial as this will lead others to a better future. God Bless.

Hugs! Kim