reoccurance tyroid cancer
I see from what i'm reading i'm no rare case it's happened to quite a few people out there.
I just want to hear how you all are dealing with this it's driving me crazy.
Comments
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Did they test your Lymph nodes for the B-RAF mutation gene? Maybe you should ask your doctor about this. This gene makes it less likely for you to uptake and respond to RAI. It also makes the cancer more aggressive. About 50% of people have it. I tested positive for the gene after my Lymph node dissection. Total Thyroidectomy in November of 2009 then Lymphectomy in June 2010. Mine was Papillary cancer and although they say it is very curable, the mutation gene makes it much more difficult to treat. I wish I had known about the Alcohol Ablation before my second surgery if it's even available where I live. I would check into it especially if you test positive for the B-RAF.0
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thanks i'm going to havesunnyaz said:Did they test your Lymph nodes for the B-RAF mutation gene? Maybe you should ask your doctor about this. This gene makes it less likely for you to uptake and respond to RAI. It also makes the cancer more aggressive. About 50% of people have it. I tested positive for the gene after my Lymph node dissection. Total Thyroidectomy in November of 2009 then Lymphectomy in June 2010. Mine was Papillary cancer and although they say it is very curable, the mutation gene makes it much more difficult to treat. I wish I had known about the Alcohol Ablation before my second surgery if it's even available where I live. I would check into it especially if you test positive for the B-RAF.
thanks i'm going to have them check into that B-RAF gene ...
i have an appointment with an ENT surgeon on the 27th of october ....sounds like ill be back in the OR again by the second week in november i sure hope it's after opening day of deer season.
The doctors did say they won't do the radiation again due to my body is unresponsive to the procedure.So i begged my surgeon to try one more time with the neck discection due to i don't have the funds to drive 600 miles for the consult and then a week later would be the procedure. and all the follow up appointments.
I just find it so weird they say it's not hereditary, but my dad has had it, my twin sister, my older sister and now me...now tell me it's not something thats hereditary0
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