Neck cramps
Comments
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Welcome Aboard
I just wanted to welcome you to our part of the forum...I didn't go through what you did. I had tonsil cancer and a lymph node (primary and secondary), STG III, SCC HPV+ (Tonsillectomy, chemo and radiation).
While I didn't have the surgery that you went through. I did have a collar bone dislocated several years ago, and surgically repaired. I know for several years that I needed to try and exercise it, maintain a full range of motion, etc.. If I didn't, I'd get the same or similar symptoms as you are having. Not sure if that's the case with you or not. But have you been to or seen a rehabilitation professional, or did they set you up any kind or physical therapist?
It would talk to your medical professionals and get there take on your situation, especially the surgeon.
I'm sure someone on here as had a similar experience or can offer you firsthand knowledge.
Again, welcome to the forum....
Best,
John0 -
Thanks John. I did 6 monthsSkiffin16 said:Welcome Aboard
I just wanted to welcome you to our part of the forum...I didn't go through what you did. I had tonsil cancer and a lymph node (primary and secondary), STG III, SCC HPV+ (Tonsillectomy, chemo and radiation).
While I didn't have the surgery that you went through. I did have a collar bone dislocated several years ago, and surgically repaired. I know for several years that I needed to try and exercise it, maintain a full range of motion, etc.. If I didn't, I'd get the same or similar symptoms as you are having. Not sure if that's the case with you or not. But have you been to or seen a rehabilitation professional, or did they set you up any kind or physical therapist?
It would talk to your medical professionals and get there take on your situation, especially the surgeon.
I'm sure someone on here as had a similar experience or can offer you firsthand knowledge.
Again, welcome to the forum....
Best,
John
Thanks John. I did 6 months of PT and continue to do daily exercises for my neck and shoulder. My surgeon did recommend PT again.0 -
A little pain alsoliveagain said:Thanks John. I did 6 months
Thanks John. I did 6 months of PT and continue to do daily exercises for my neck and shoulder. My surgeon did recommend PT again.
I had a right neck disection last November with 9 nodes removed and yes I still get some pain in the area. I don't get spasms but minor intermittent pain. I think the pain may be more from the radiation than anything else. Radiation causes fibrosis which is a hardening and tighting of the skin. Also a contributing factor in the spasms might be nerves that were cut during the operation. The spasm may be a good sign that some regenerating is occuring. Personally I think we will have constant reminders in this area for the rest of our lives. Some here advocate acupuncture for temporary relief. You might also find a lymphedema massage therapist in your area and go for a couple of seesions and learn some of the techniques to do on your own. You might also benefit from almost superficial massage in the area stimulating blood flow and warmth. Check out a Tai Chi massage for the head and neck area.0 -
Me, toowboaz said:5 years out
I still get cramps when I yawn, look hard down and to the left and sometimes when I stretch. It's just part of my "new normal", just like biting my cheek, tongue and lips (OUCH!).
Wayne
L'hermittes Sign is still with me, too- 18-months, post-treatment, mostly on the side of my neck that got the most rads, and had the tumors.
kcass0 -
CrampsKent Cass said:Me, too
L'hermittes Sign is still with me, too- 18-months, post-treatment, mostly on the side of my neck that got the most rads, and had the tumors.
kcass
In addition to the chemo and rads, I had a modified radical neck dissection in January '09. I've noticed recently that sometimes, if I turn my head in just the right (wrong) way, I feel a cramp coming on in the right side of my neck.
It goes away if I quickly turn my head in another direction. It doesn't happen often, maybe once every week or two. Not a big deal, though.
--Jim in Delaware0
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