My mom, my best friend, my hero, my rock....

hope0310
hope0310 Member Posts: 320
edited March 2014 in Caregivers #1
Every day since August 9th, I have sat by her side. Caressed her face, talked with her, laughed with her, cried alone....

I have done her nails, helped bath her, change her, feed her, given her every minute of every day, much like she gave for me when I was a baby.

Work can wait, told them I would be back when I got back.

Hopsice has been great, we have the best nurse and CNA, social worker is great as well, although we do not need much of her services, we have great support.....my brother stepfather and I are here, constantly, soaking in every single thing we can.

Cherishing the moments, making memories, JUST BEING HERE FOR HER AND EACH OTHER.

Aug 6th, the onco said 4-6 weeks, we are well into our 5th week. Mom still eats some, communicates some, although silly at this point with the brain issues......

It breaks my heart that I will soon be losing her, but I would not trade the time we have spent together, and getting to have this time, for anything in this world....

My best to you all in your journeys...

Elysia

Comments

  • Barbara53
    Barbara53 Member Posts: 652
    #2
    what a beautiful post
    Elysia, what a beautiful post, and at the perfect moment. My mom is on the same path, but with more time, God willing. Still, she has so many things going on that I have started to get the heebie jeebies every morning, wondering if today is the day.

    My mom and I have had our ups and downs, and her illness helped us find our common ground. She's a demanding person, but now I know her well enough to forgive her weirdness over details. We've made peace.

    Thanks for sharing.
  • hope0310
    hope0310 Member Posts: 320
    #3
    Barbara53 said:

    what a beautiful post
    Elysia, what a beautiful post, and at the perfect moment. My mom is on the same path, but with more time, God willing. Still, she has so many things going on that I have started to get the heebie jeebies every morning, wondering if today is the day.

    My mom and I have had our ups and downs, and her illness helped us find our common ground. She's a demanding person, but now I know her well enough to forgive her weirdness over details. We've made peace.

    Thanks for sharing.

    Thanks Barb.....enjoy your
    Thanks Barb.....enjoy your time!! Mom was dx March 1st w/SCLC w/mets to brain, then on the 31st mets to spine.....she endured 12 rad treatments to each area, then chemo for lung and was declared in remission 1st of July....only to have in come back in her brain....she had 20 tumors originally so they had to do whole brain radiation, you can only have that once.... ; (

    Make memories, create time.....and love...
  • grandmafay
    grandmafay Member Posts: 1,633 Member
    #4
    Time Together
    You seem to have the right outlook. I lost my husband in October after a six year battle with colon cancer. I do cherish that time. We were blessed with more time than we expected and less than we would have liked. We had been married for 42 years when he passed away and had a really good marriage and friendship. Yet those last six years were very special. One son said he got to know his dad better in those last six years than in all the 30 years before that. Yes, it is a hard and sad time. Yet I have very good memories of even the last few days. Just say I love you often. Your mom will always be a part of you and you will always carry her in you heart. Take care, Fay
  • hope0310
    hope0310 Member Posts: 320
    #5
    grandmafay said:

    Time Together
    You seem to have the right outlook. I lost my husband in October after a six year battle with colon cancer. I do cherish that time. We were blessed with more time than we expected and less than we would have liked. We had been married for 42 years when he passed away and had a really good marriage and friendship. Yet those last six years were very special. One son said he got to know his dad better in those last six years than in all the 30 years before that. Yes, it is a hard and sad time. Yet I have very good memories of even the last few days. Just say I love you often. Your mom will always be a part of you and you will always carry her in you heart. Take care, Fay

    Don't Tell Me...
    Don't tell
    Don't Tell Me...







    Don't tell me that you understand, don't tell me that you know,







    Don't tell me that I will survive, how I will surely grow.







    Don't tell me this is just a test, that I am truly blessed,







    That I am chosen for this task, apart from all the rest.







    Don't come at me with answers that can only come from me,







    Don't tell me how my grief will pass, that I will soon be free.







    Don't stand in pious judgment of the bonds I must untie,







    Don't tell me how to suffer, don't tell me how to cry.







    My life is filled with selfishness, my pain is all I see,







    But I need you, I need your love, unconditionally.







    Accept me in my ups and downs, I need someone to share,







    Just hold my hand and let me cry, and say,







    "My friend, I really do care."







    Author Unknown
  • grandmafay
    grandmafay Member Posts: 1,633 Member
    #6
    hope0310 said:

    Don't Tell Me...
    Don't tell
    Don't Tell Me...







    Don't tell me that you understand, don't tell me that you know,







    Don't tell me that I will survive, how I will surely grow.







    Don't tell me this is just a test, that I am truly blessed,







    That I am chosen for this task, apart from all the rest.







    Don't come at me with answers that can only come from me,







    Don't tell me how my grief will pass, that I will soon be free.







    Don't stand in pious judgment of the bonds I must untie,







    Don't tell me how to suffer, don't tell me how to cry.







    My life is filled with selfishness, my pain is all I see,







    But I need you, I need your love, unconditionally.







    Accept me in my ups and downs, I need someone to share,







    Just hold my hand and let me cry, and say,







    "My friend, I really do care."







    Author Unknown

    Beautiful
    All I can say is: beautiful. Fay
  • PattyNC
    PattyNC Member Posts: 65
    #7
    hope0310 said:

    Don't Tell Me...
    Don't tell
    Don't Tell Me...







    Don't tell me that you understand, don't tell me that you know,







    Don't tell me that I will survive, how I will surely grow.







    Don't tell me this is just a test, that I am truly blessed,







    That I am chosen for this task, apart from all the rest.







    Don't come at me with answers that can only come from me,







    Don't tell me how my grief will pass, that I will soon be free.







    Don't stand in pious judgment of the bonds I must untie,







    Don't tell me how to suffer, don't tell me how to cry.







    My life is filled with selfishness, my pain is all I see,







    But I need you, I need your love, unconditionally.







    Accept me in my ups and downs, I need someone to share,







    Just hold my hand and let me cry, and say,







    "My friend, I really do care."







    Author Unknown

    Author Unknown (so profound)
    Isn't it amazing that some of the most beautiful poems and profound sayings sometimes come to us "author unknown."

    Hope0310 thanks for sharing & my prayers to you and your family

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