non hodgkin's indolent lymphoma

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  • miss maggie
    miss maggie Member Posts: 929
    #22
    COBRA666 said:

    follicular
    Maggie, No follicular is the the type. You can have other types and still be indolent. It seems follicular is the most common of the indolent ones. John

    indolent follicular
    Hi John, Thanks for your speedy reply. All the times I have seen my oncologist, she has never mentioned follicular. Just the DX I have posted to you. Maggie
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #23
    miss maggie said:

    indolent follicular
    Hi John, Thanks for your speedy reply. All the times I have seen my oncologist, she has never mentioned follicular. Just the DX I have posted to you. Maggie

    follicular
    Maggie,
    What they do is take a sample of the cells and put them on a slide and examine it under the microscope. The type of cell they see gives it its name. There are so many configurations of cells,but going by what they see determines the type. Some are indolent and some are aggressive. I am sure you know the indolent type are slow growers and the aggressive are fast and have to be dealt with immediately. Hope this helps. John
    There is a heck of a lot I don't know and thats when you will see me on here asking a lot of questions trying to find answers. This board is full of valuble info.
  • Richsterr
    Richsterr Member Posts: 34 Member
    #24
    onlytoday said:

    life
    John,
    One of the oncs that I saw was emphatic about the strides made in cancer research over the past 15 years. He also said that the stats are outdated and that we can look forward to a 15-18 year life expectancy at this point but by the time we get 5-10 years into it they will come up with other treatments. He told me that the treatment can wear us down making us more suseptible to other problems down the road but that the nhl won't end our lives, unless we refuse treatment. He said that in his opinion the researchers are winning the war on cancer and NHL is one area where they are making tremendous progress. Hope this helps. It made me feel better when I heard it.

    Question
    Am I interperting what you said is that you can outlive the disease. If you get proper treatment can you keep going until something else happens? I would like to know the answer to that please.

    Richard
  • merrywinner
    merrywinner Member Posts: 626 Member
    #25
    Richsterr said:

    Question
    Am I interperting what you said is that you can outlive the disease. If you get proper treatment can you keep going until something else happens? I would like to know the answer to that please.

    Richard

    Sorry who was the question for?
    I hope it wasn't for me!! LOL. Yes one could be treated successfully for a long time and just because we have a Lymphoma diagnosis it does not exclude us from other cancers,heart disease,strokes etc. In other words I have Lymphoma but in today's world with all of the research etc. it is not a given that I will die from it. Certainly there is that chance but not nearly as strong as with other forms of cancer. Please don't think that I am in any way minimizing the seriousness of this disease. I know better. The key is it's treatable and for that I thank my lucky stars. Mary
  • MoppyGene
    MoppyGene Member Posts: 17 Member
    #26
    COBRA666 said:

    NHL question
    Richard,
    I see you been on those websites.Don't get me wrong I am not putting them down because they can be good for statistics. I have read the same thing and I have read other stats as well. I went from website to website when I was first diagnosed back in April. It all had my head in a spin. I didn't know what to believe. I was even confused to what I had anymore. I found several of the sites were outdated and some I never found when they were printed. I do not know of anyone who has survived anytime when nhl, because I don't even know of anybody that has it except the people here on this site. I know that statement sounds morbid, but its true,I don't know of one person personally that has lymphoma other than people on this site. I am sure there are other people on this site can give you a more straight forward answer. To be honest with you I would like to know the answer to that myself. John
    MERRY WHERE ARE YOU? NEED A LTTLE HELP HERE!!!!

    Indolent Non-Hodgkins Follicular Lymphoma
    After undergoing Retuxan infusion and oral treatment all of 2009 I've concluded statistics may work for some but I don't see how. My cancer blog reads like a mystery novel authored by a robot but when I go back and read my test results and oncology evaluations I am convinced it's up to me to manage my case armed with knowledge and determination. Second opinions??? Nah! Not for me. I'd have no way of knowing which doctor's opinion is most accurate. When I am fatigued, not hungry or sick at heart cancer and I debate the cause....age vs cancer. We battle it out every day. Cancer just won't take 'no' for an answer. My age may accept 'no' for an answer but my brain won't.

    I am in remission as of September 9, 2010.
  • allmost60
    allmost60 Member Posts: 3,178 Member
    #27
    MoppyGene said:

    Indolent Non-Hodgkins Follicular Lymphoma
    After undergoing Retuxan infusion and oral treatment all of 2009 I've concluded statistics may work for some but I don't see how. My cancer blog reads like a mystery novel authored by a robot but when I go back and read my test results and oncology evaluations I am convinced it's up to me to manage my case armed with knowledge and determination. Second opinions??? Nah! Not for me. I'd have no way of knowing which doctor's opinion is most accurate. When I am fatigued, not hungry or sick at heart cancer and I debate the cause....age vs cancer. We battle it out every day. Cancer just won't take 'no' for an answer. My age may accept 'no' for an answer but my brain won't.

    I am in remission as of September 9, 2010.

    Happy for you!
    That is great news! It gives hope to those of us that are just now starting our treatment. I often wonder if I'm up for this battle, but I guess it's better this cancer reared it's ugly head now, while I'm in good health and in my late 50's, instead of later on in life. I've learned to take it one day at a time. I'll keep positive thoughts for your remission to last for many years to come.
    Love...Sue
  • MoppyGene
    MoppyGene Member Posts: 17 Member
    #28
    allmost60 said:

    Happy for you!
    That is great news! It gives hope to those of us that are just now starting our treatment. I often wonder if I'm up for this battle, but I guess it's better this cancer reared it's ugly head now, while I'm in good health and in my late 50's, instead of later on in life. I've learned to take it one day at a time. I'll keep positive thoughts for your remission to last for many years to come.
    Love...Sue

    Thank you, Sue
    Thanks for the thumbs up and positive thoughts, Sue. Cancer caught me completely by surprise on the sundown side of 50: learning to take one day at a time was very difficult for me to master in my busy life. I am comforted by 'And the light shineth in darkness; and the darkness comprehended it not.
    John 1:5"
    Best to you and yours.....Gene(va)

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