My CT results!
Comments
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Good morning Vinnyvinny59 said:ct results
Oh thats so wonderful Mary, I will be praying for you, I had my P.E.T. Scan yesterday, I'm hoping for the best, bracing for the worse! Take care Vinny
Oh thank you so much. I so know that feeling of hoping and praying for the best while at the same time needing to keep myself prepared for the worst. My family, God bless them all, don't always understand this. They say the usual things like think positive etc and of course I do but I'll be damned if I will be caught off guard. I think mentally we have to investigate our worst case scenarios to be able to cope with them if we have to. I will pray like crazy for good results for you. So hard to wait for those results. I had to wait only 4 hours yesterday but it felt like a year. Of course I only had the 4 hours to mentally prepare too because once I got up from the CT table it was a brand new game....like OK you have my pictures signed, sealed and delivered and there's nothing I can do but hope! It is tough but so are you and I know you get it...the mental gymnastics that are so very hard to describe and so exhausting. It's such a huge part of this disease and can probably only be understood by those that have done it. I hope and pray that none of my family or yours ever has to understand it. Mary0 -
So happymerrywinner said:Good morning Vinny
Oh thank you so much. I so know that feeling of hoping and praying for the best while at the same time needing to keep myself prepared for the worst. My family, God bless them all, don't always understand this. They say the usual things like think positive etc and of course I do but I'll be damned if I will be caught off guard. I think mentally we have to investigate our worst case scenarios to be able to cope with them if we have to. I will pray like crazy for good results for you. So hard to wait for those results. I had to wait only 4 hours yesterday but it felt like a year. Of course I only had the 4 hours to mentally prepare too because once I got up from the CT table it was a brand new game....like OK you have my pictures signed, sealed and delivered and there's nothing I can do but hope! It is tough but so are you and I know you get it...the mental gymnastics that are so very hard to describe and so exhausting. It's such a huge part of this disease and can probably only be understood by those that have done it. I hope and pray that none of my family or yours ever has to understand it. Mary
I am so glad you got great news! Congratulations................WOO HOO!!!!0 -
thanksmerrywinner said:Good morning Vinny
Oh thank you so much. I so know that feeling of hoping and praying for the best while at the same time needing to keep myself prepared for the worst. My family, God bless them all, don't always understand this. They say the usual things like think positive etc and of course I do but I'll be damned if I will be caught off guard. I think mentally we have to investigate our worst case scenarios to be able to cope with them if we have to. I will pray like crazy for good results for you. So hard to wait for those results. I had to wait only 4 hours yesterday but it felt like a year. Of course I only had the 4 hours to mentally prepare too because once I got up from the CT table it was a brand new game....like OK you have my pictures signed, sealed and delivered and there's nothing I can do but hope! It is tough but so are you and I know you get it...the mental gymnastics that are so very hard to describe and so exhausting. It's such a huge part of this disease and can probably only be understood by those that have done it. I hope and pray that none of my family or yours ever has to understand it. Mary
So well put,I wil be ready either way!0 -
My CT Scan Results
Mary,
Been praying for you and am so happy for your good news. Wow, that is wonderful re your bloodwork all being back to normal already. You are one healthy specimen now girl. How good that must feel after such a long road of different treatments. I will be going to Rochester Monday, August 30 for my first bloodwork - almost five weeks. Don't know what to expect, at first I had so many side effects, I was worried, but now am just tired. Am anxious to see where I stand right now.
Stay healthy and thanks for all your support to all of us.
Britta0 -
WOO HOO is right!dixiegirl said:So happy
I am so glad you got great news! Congratulations................WOO HOO!!!!
Thank you so much. I have a 4 month pass, I'll take it.0 -
only optionvinny59 said:thanks
So well put,I wil be ready either way!
That's all you can do and it will be enough.0 -
Thank you so much!britta said:My CT Scan Results
Mary,
Been praying for you and am so happy for your good news. Wow, that is wonderful re your bloodwork all being back to normal already. You are one healthy specimen now girl. How good that must feel after such a long road of different treatments. I will be going to Rochester Monday, August 30 for my first bloodwork - almost five weeks. Don't know what to expect, at first I had so many side effects, I was worried, but now am just tired. Am anxious to see where I stand right now.
Stay healthy and thanks for all your support to all of us.
Britta
And I will be praying for you too. It will be so good to see where you are at. I was tired for a long time. I started to notice improvement at the 6 to 8 week mark, a little at a time. I asked him if after having Zevalin, were my future options limited? He said not at all and in some cases could be used again. He mentioned,just in chatting, another drug that is showing lots of promise to use in place of Rituxan. It is called Bendamustine(sp?). I believe it has been around awhile being used for other things and they now know that it works just as well for some types of Lymphoma but has far less side effects long term and is better tolerated. So as far as the future for us all there is always going to be something. But for now I will wait here happily in the present. He also said he now has Zevalin patients hitting their 10 year mark. As I sit here happily in the present I want to be one of those in the future!! God Bless. Mary0 -
Thank you!forme said:GREAT !!
Hi Mary,
Great news! Keep that remission going. You will find that as time goes by, so does the length of time between checks. Congrats to you..
Lisha
And I sure hope so. You hang in there too and God bless. Mary0 -
YES!YES!YES!forme said:GREAT !!
Hi Mary,
Great news! Keep that remission going. You will find that as time goes by, so does the length of time between checks. Congrats to you..
Lisha
You made my day Mary! Makes me feel strong for battle next week after hearing you are still in remission! I'm sooooo very happy for you. Hope you will celebrate this wonderful news!
Love...Sue0 -
Thank you Sueallmost60 said:YES!YES!YES!
You made my day Mary! Makes me feel strong for battle next week after hearing you are still in remission! I'm sooooo very happy for you. Hope you will celebrate this wonderful news!
Love...Sue
It means so much to hear from everyone. After spending two years enmeshed in this battle I sincerely want everyone to know that it can be done and there is freedom, at least for short periods of time, in the beginning. As I said somewhere else, I have a four month pass and I will take it. I will be praying like crazy for you too. Good luck in the upcoming week. Oh, to get started and have some of it behind you, it will be a good feeling. God bless, Mary0 -
Good newsmerrywinner said:Thank you Sue
It means so much to hear from everyone. After spending two years enmeshed in this battle I sincerely want everyone to know that it can be done and there is freedom, at least for short periods of time, in the beginning. As I said somewhere else, I have a four month pass and I will take it. I will be praying like crazy for you too. Good luck in the upcoming week. Oh, to get started and have some of it behind you, it will be a good feeling. God bless, Mary
Mary, I am so happy to hear of the good news - this brings me a lot more hope for myself!!
Liz0 -
Great to knowmerrywinner said:Thank you so much!
And I will be praying for you too. It will be so good to see where you are at. I was tired for a long time. I started to notice improvement at the 6 to 8 week mark, a little at a time. I asked him if after having Zevalin, were my future options limited? He said not at all and in some cases could be used again. He mentioned,just in chatting, another drug that is showing lots of promise to use in place of Rituxan. It is called Bendamustine(sp?). I believe it has been around awhile being used for other things and they now know that it works just as well for some types of Lymphoma but has far less side effects long term and is better tolerated. So as far as the future for us all there is always going to be something. But for now I will wait here happily in the present. He also said he now has Zevalin patients hitting their 10 year mark. As I sit here happily in the present I want to be one of those in the future!! God Bless. Mary
I am glad you asked. Makes me feel much better. God I hope someday to make the 10 year point! Sounds awesome.0 -
Goodtruckingalong said:Good news
Mary, I am so happy to hear of the good news - this brings me a lot more hope for myself!!
Liz
Thank you and I wish you all the best. If we can all add a little hope to the mix there just may be enough to go around. Mary0 -
10 yearsdixiegirl said:Great to know
I am glad you asked. Makes me feel much better. God I hope someday to make the 10 year point! Sounds awesome.
I know right? We all deserve it. Take care.0 -
I'm so elated for you!! WOW,merrywinner said:Thank you so much!
And I will be praying for you too. It will be so good to see where you are at. I was tired for a long time. I started to notice improvement at the 6 to 8 week mark, a little at a time. I asked him if after having Zevalin, were my future options limited? He said not at all and in some cases could be used again. He mentioned,just in chatting, another drug that is showing lots of promise to use in place of Rituxan. It is called Bendamustine(sp?). I believe it has been around awhile being used for other things and they now know that it works just as well for some types of Lymphoma but has far less side effects long term and is better tolerated. So as far as the future for us all there is always going to be something. But for now I will wait here happily in the present. He also said he now has Zevalin patients hitting their 10 year mark. As I sit here happily in the present I want to be one of those in the future!! God Bless. Mary
I'm so elated for you!! WOW, ten years, that is so awesome. Hope I recover as fast as you did. I kind of worried about waiting so long for a blood count, but I guess they're pretty good at estimating when it will go down. Yours didn't stay down long, did it? Wasn't it just a week or two? I pray for you and everyone that we will all have a cure someday.0 -
Tahnks againbritta said:I'm so elated for you!! WOW,
I'm so elated for you!! WOW, ten years, that is so awesome. Hope I recover as fast as you did. I kind of worried about waiting so long for a blood count, but I guess they're pretty good at estimating when it will go down. Yours didn't stay down long, did it? Wasn't it just a week or two? I pray for you and everyone that we will all have a cure someday.
Your memory is excellent. My blood work started sliding out of range about week 2 or 3 and peaked during week 4. By the time I had my first followup at the 6 week mark they were normal. I am fortunate in that I can tell when my counts are low or struggling to recover because my legs ache really bad when I walk or exert any energy. For awhile I thought I would have that forever but suddenly one day just gone and hasn't returned. All the way through Chemo and the Zevalin I had this so it became my gauge. Good luck tomorrow and please let me know how it turns out. Mary0 -
Good Newsmerrywinner said:Good
Thank you and I wish you all the best. If we can all add a little hope to the mix there just may be enough to go around. Mary
Mary,
I'm so very happy, glad, and estatic that all went well for you on Friday. Remission is such a wonderful word, and continued remission is even better. I know how stressful these tests and doctors appts are, so with the great news you must have been soaring with happiness this weekend.
To continuing good news for all of us.
Leslie0 -
Good Newsyesyes2 said:Good News
Mary,
I'm so very happy, glad, and estatic that all went well for you on Friday. Remission is such a wonderful word, and continued remission is even better. I know how stressful these tests and doctors appts are, so with the great news you must have been soaring with happiness this weekend.
To continuing good news for all of us.
Leslie
Mary,
So glad to hear your Good News! Everyday brings something new. Hope that you and your family celebrate the news in style.
Dave0
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