MMMT

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  • armyjjg8790
    armyjjg8790 Member Posts: 2
    edited September 2016 #22
    brissance said:

    Soo Sorry

    Lots in that question.  Many have recurrences and spreading and live long lives.  The disease can become like a chronic disease, similar to a disease like diabetes.  The down side is they often continue treatment and monitoring for the rest of their lives but there is a rest of their life.  It is not necessarily a death sentence.  Get more info as to where it has spread and what the suggested treatment will be.  Some of the ladies here are very knowledgeable in this area. They are dealing with the issue as we speak.  So I understand the initial panic, each of us have been there during this journey.  But recurrence and spread are a stage of the disease and so often can be treated.  Have faith.  I am sure one of the ladies will be able to give you more and better info.  God bless. Patty

     

    MMMT

    Are there any survivors 5years or more? I've just started this journey.  Diagnosis, March 1, of this year.  I've had a total hysterectomy with lymph nodes, some were positive. 93%uterus was cancerous, cervix and pelvic were affected. I was staged with Caecinosarcoma ,stage 3C1, grade 3. I have successfully finished six rounds of chemo and gained 14 pounds. I will be going through radiation soon. I'm so afraid about a recurrence which both my oncologist have told be would most likely happen with me.

  • Kvdyson
    Kvdyson Member Posts: 790 Member
    #23
    armyjjg8790 said:

    MMMT

    Are there any survivors 5years or more? I've just started this journey.  Diagnosis, March 1, of this year.  I've had a total hysterectomy with lymph nodes, some were positive. 93%uterus was cancerous, cervix and pelvic were affected. I was staged with Caecinosarcoma ,stage 3C1, grade 3. I have successfully finished six rounds of chemo and gained 14 pounds. I will be going through radiation soon. I'm so afraid about a recurrence which both my oncologist have told be would most likely happen with me.

    5-year survivors

    Armyjjg8790, yes, there are posters here who have MMMT and are 5-year survivors. There are also some on the Facebook and Yahoo MMMT groups. Congrats to you on completing front-line treatment. Don't worry about the weight gain at this time. That can be dealt with once you have reached NED. At this time, just stay focused on eating well so that your body can heal from treatment and fight off any recurrence. Please consider starting a new post if you have any questions or would like to share your journey with us. We hope that we can help support you! Wishing you strength and peace, Kim

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