Thyrogen v. going off meds
Comments
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the cursed LID
yes alot of us have done this.
most of us remember the Low Iodine diet involved as well
i started to run out of energy and got some brain fog while i was off my meds prior to radiation theropy.
assumeing you are on synthroid or the like (and not cytomel) it will be alot longer time off the meds 4-6 weeks from what i hear. so if you remember what it was like when you steped off cytomel and tripple the time thats about what you should expect from what i have been told from others in your situation.0 -
hypo off meds vs Thyrogen
For the ablation dose of I-131 I went off meds. By the time I got the dose my TSH was around 100. Being hypo seems to affect individuals in different ways. Some have a really hard time with lethargy, depression, weight gain, etc. I was mostly ok though my vision did get funky by the end (a little ghosting - my eyes weren't able to track together properly when i looked off to the sides). Thyrogen is expensive and, in some parts of the country, it is hard to get right now (where i live it seems to be no problem). It's hard to say how you will do but personally, I think doing it by going off meds is preferable if your system can take it and it causes no debilitating side effects.0 -
going off meds
I went off meds. Go on an low iodine diet. You can learn about this at Thyca.org. Basically its a healthy fresh food diet. No canned or prepared foods. If they let you use Cytomel--that helps. Fatigue is the major drawback as I'm sure you know. Take care and I hope you scan goes well.0 -
going off medsflowergirl52 said:going off meds
I went off meds. Go on an low iodine diet. You can learn about this at Thyca.org. Basically its a healthy fresh food diet. No canned or prepared foods. If they let you use Cytomel--that helps. Fatigue is the major drawback as I'm sure you know. Take care and I hope you scan goes well.
I am just starting the LID and going off my synthroid. My oncologist said he feels going off the meds is the better way to go and may improve the chances of the RAI being absorbed by my Hurthle cell cancer. Hurthle cell doesn't respond as well to RAI as other thyroid cancers do - only 7% to 15% positive results, but there aren't many other options in my case. My endo was going to use the thyrogen injections instead, but I have opted to go off the meds in hopes of improving the chances of RAI uptake.0 -
be prepared to be exhaustedAliceP said:going off meds
I am just starting the LID and going off my synthroid. My oncologist said he feels going off the meds is the better way to go and may improve the chances of the RAI being absorbed by my Hurthle cell cancer. Hurthle cell doesn't respond as well to RAI as other thyroid cancers do - only 7% to 15% positive results, but there aren't many other options in my case. My endo was going to use the thyrogen injections instead, but I have opted to go off the meds in hopes of improving the chances of RAI uptake.
be prepared to be exhausted being off meds the first time i was off i ended up in the hospital the next time i used the shots best thing i could have done might want to consider it I think its well worth it0
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