Need some prayers for my dad...

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tgarris3
tgarris3 Member Posts: 23
edited March 2014 in Colorectal Cancer #1
I have posted before about my dad w/Stage 4... Well the beginning of the year his CEA was 1.6 now it is 5.6, but his CT in July still showed a decrease in size of the tumors, but the doc is wanting to rescan after 2 treatments, but it was increasing prior to the scan and it still showed decrease... Any thoughts???

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  • pepebcn
    pepebcn Member Posts: 6,331 Member
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    last year whilst switched to folfox cea was going up
    but mets were in real and big regression! not cea on proper
    levels until operated 0.6!
    have feith and you will see!
    hope been useful!
    Pepe
  • tgarris3
    tgarris3 Member Posts: 23
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    pepebcn said:

    last year whilst switched to folfox cea was going up
    but mets were in real and big regression! not cea on proper
    levels until operated 0.6!
    have feith and you will see!
    hope been useful!
    Pepe

    thanks so much.. I am a
    thanks so much.. I am a worry wart!!! That is why I come chat with you guys!
  • ktlcs
    ktlcs Member Posts: 358
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    tgarris3 said:

    thanks so much.. I am a
    thanks so much.. I am a worry wart!!! That is why I come chat with you guys!

    How long
    How long has he been in treatment? Sometimes the CEA levels rise at the beginning of treatment as a large number of dead cells are released into the bloodstream and then the levels begin to drop again. If he is early in treatment this could be a reason for a rise in CEA.


    K
  • dorookie
    dorookie Member Posts: 1,731 Member
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    On the way
    Sending prayers for your dad and your whole family...

    HUGS
    Beth
  • tgarris3
    tgarris3 Member Posts: 23
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    ktlcs said:

    How long
    How long has he been in treatment? Sometimes the CEA levels rise at the beginning of treatment as a large number of dead cells are released into the bloodstream and then the levels begin to drop again. If he is early in treatment this could be a reason for a rise in CEA.


    K

    he has been taking chemo
    he has been taking chemo everyother week for over a yr... 2 scans ago the mets were stable the last scan was noticeable shrinking from over a 2cm to 1.something.. I am hoping the new shrinkage is causing cea to increase.. fingers crossed... in the begginning his CEA was over 450..
  • pepebcn
    pepebcn Member Posts: 6,331 Member
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    dorookie said:

    On the way
    Sending prayers for your dad and your whole family...

    HUGS
    Beth

    shrinking!!!!
    that is the important!!! huge new!!!
    best to your dad.
  • CherylHutch
    CherylHutch Member Posts: 1,375 Member
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    No need to panic at this point
    Ok, I'm no doctor, nor do I play one on TV or on the Support Boards. I'm not sure I'm following your information here and I don't know the history of your father's journey, so I'm just taking a wild guess at what you have said above ;)

    If I understand this right, your dad has been on chemo treatments for a year or so... pretty consistently. Around the beginning of the year, his CEA was a nice 1.6 reading, but now, in August, it is 5.6 which indicates an upwards trend. Since he has been on chemo consistently for over a year, it's not as if he was starting a new chemo plan or had been on a break and started the chemo again. According to his scans, they are showing that the tumours you know about are decreasing, shrinking in size (this is a good thing), yet the CEA is still going up.

    Now, you say the doctor wants to rescan after 2 treatments... but you didn't say what kind of scan he/she wants to do. Is this a CT scan of the tumours they know about or is this a PET scan, which would be scanning the whole body from neck to knees on the molecular level? Those are two totally different scans that can give totally different information. If he wants to do a CT scan, then my "guess" (keeping in mind, everything I say here is purely speculation and guessing on my part), is that he wants to get a clear picture of how these tumours that you already know about are really doing, with just two more treatments since the last scan. If it is a PET scan, then he/she is wanting to check the whole body to see if there is any kind of indication of fast growing cell activity anywhere in the body. This would include the tumours you already know about, but he would be checking to see if the rising CEA is indicating there is some cell activity elsewhere in the body.

    At this stage, there is nothing to panic over because other than the tumours you already know about and they seem to be being stable or shrinking, you don't have anything else to worry about. IF there is some new growth somewhere else (and this is a big IF), then it might be something as simple as redoing the kind of chemo he's getting to add something that will go after the new growth. Or maybe there is some other kind of treatment. But one can't even begin to start discussing treatments, surgeries, or any other possibilities until one knows what they are dealing with. For all we know, if he does get a PET scan, they might find nothing else, and all this uproar is over a CEA reading which isn't the most reliable marker for everyone.

    So... no panic. Calm down. Have a nice cuppa 'tea and just take it one step at a time. Each time he has a scan, a blood test, or anything else, that's all it is... one step to add more info that the doctors can analyze and determine what the best treatment is :)

    Cheryl
  • tgarris3
    tgarris3 Member Posts: 23
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    No need to panic at this point
    Ok, I'm no doctor, nor do I play one on TV or on the Support Boards. I'm not sure I'm following your information here and I don't know the history of your father's journey, so I'm just taking a wild guess at what you have said above ;)

    If I understand this right, your dad has been on chemo treatments for a year or so... pretty consistently. Around the beginning of the year, his CEA was a nice 1.6 reading, but now, in August, it is 5.6 which indicates an upwards trend. Since he has been on chemo consistently for over a year, it's not as if he was starting a new chemo plan or had been on a break and started the chemo again. According to his scans, they are showing that the tumours you know about are decreasing, shrinking in size (this is a good thing), yet the CEA is still going up.

    Now, you say the doctor wants to rescan after 2 treatments... but you didn't say what kind of scan he/she wants to do. Is this a CT scan of the tumours they know about or is this a PET scan, which would be scanning the whole body from neck to knees on the molecular level? Those are two totally different scans that can give totally different information. If he wants to do a CT scan, then my "guess" (keeping in mind, everything I say here is purely speculation and guessing on my part), is that he wants to get a clear picture of how these tumours that you already know about are really doing, with just two more treatments since the last scan. If it is a PET scan, then he/she is wanting to check the whole body to see if there is any kind of indication of fast growing cell activity anywhere in the body. This would include the tumours you already know about, but he would be checking to see if the rising CEA is indicating there is some cell activity elsewhere in the body.

    At this stage, there is nothing to panic over because other than the tumours you already know about and they seem to be being stable or shrinking, you don't have anything else to worry about. IF there is some new growth somewhere else (and this is a big IF), then it might be something as simple as redoing the kind of chemo he's getting to add something that will go after the new growth. Or maybe there is some other kind of treatment. But one can't even begin to start discussing treatments, surgeries, or any other possibilities until one knows what they are dealing with. For all we know, if he does get a PET scan, they might find nothing else, and all this uproar is over a CEA reading which isn't the most reliable marker for everyone.

    So... no panic. Calm down. Have a nice cuppa 'tea and just take it one step at a time. Each time he has a scan, a blood test, or anything else, that's all it is... one step to add more info that the doctors can analyze and determine what the best treatment is :)

    Cheryl

    They are doing another CT..

    They are doing another CT..