does anyone knows how to lower liver enzymes?

renatka
renatka Member Posts: 7
edited March 2014 in Liver Cancer #1
I was diagnosed with HCC stage 3 two years ago.I had liver resection and took Nexavar month after surgery.Lately my liver enzymes are to high to take Nexavar.I also have new lesions in liver and cancer has spread to my lung.Doc said that they don't have anything else for me.Please let me know if you have any ideas.

Comments

  • Tina Blondek
    Tina Blondek Member Posts: 1,500 Member
    #2
    Welcome
    Hello Renatka and welcome to our discussion board. I was a caregiver for my dad. He passed away in March from ec with mets to the liver. My suggestion is to run and find another dr. to give you a second opinion! Where do you live? You need to get to a well known cancer center, one that specializes in liver cancer would be ideal. I live in Virginia and took my dad to UVA. We were very pleased. When one dr gives up, another one might give you another chance! Best of luck. Keep in touch.
    Tina
  • slg
    slg Member Posts: 200
    #3
    Ask your Dr. about
    Ask your Dr. about Transarterial Chemoembolization (TACE) for the lesions on the liver.
  • renatka
    renatka Member Posts: 7
    #4
    Tina Blondek said:

    Welcome
    Hello Renatka and welcome to our discussion board. I was a caregiver for my dad. He passed away in March from ec with mets to the liver. My suggestion is to run and find another dr. to give you a second opinion! Where do you live? You need to get to a well known cancer center, one that specializes in liver cancer would be ideal. I live in Virginia and took my dad to UVA. We were very pleased. When one dr gives up, another one might give you another chance! Best of luck. Keep in touch.
    Tina

    thans Tina
    There is a one problem .When I got sick I didn't have any insurence.Now I have illinois MEDICAID I'm affraid this kind of insurence is not enought.I'm now with doctors from Cook County Hospital in Chicago. :-)
  • stage4liver
    stage4liver Member Posts: 46
    #5
    slg said:

    Ask your Dr. about
    Ask your Dr. about Transarterial Chemoembolization (TACE) for the lesions on the liver.

    See if you qualify to go to
    See if you qualify to go to Northwestern, they're suppose to have a good liver program.
  • slg
    slg Member Posts: 200
    #6
    renatka said:

    thans Tina
    There is a one problem .When I got sick I didn't have any insurence.Now I have illinois MEDICAID I'm affraid this kind of insurence is not enought.I'm now with doctors from Cook County Hospital in Chicago. :-)

    Have you ever contacted your local American Cancer Society? They have all kinds of resources for help.
  • stage4liver
    stage4liver Member Posts: 46
    #7
    stage4liver said:

    See if you qualify to go to
    See if you qualify to go to Northwestern, they're suppose to have a good liver program.

    I just found out mine are
    I just found out mine are elevated as well...they wrote a script for Nadolol 20mg you might to ask your doc about it.
  • SarahD
    SarahD Member Posts: 139
    #8
    stage4liver said:

    I just found out mine are
    I just found out mine are elevated as well...they wrote a script for Nadolol 20mg you might to ask your doc about it.

    mike are begining to have
    mike are begining to have congestion in your liver from the tumors? why are your enzymes high? Nadolol is to prevent portal hypertension. How are your treatments doing?
  • stage4liver
    stage4liver Member Posts: 46
    #9
    SarahD said:

    mike are begining to have
    mike are begining to have congestion in your liver from the tumors? why are your enzymes high? Nadolol is to prevent portal hypertension. How are your treatments doing?

    Yeah I know it's also for
    Yeah I know it's also for high blood pressure which I don't have...he's an oncologist with specialization in HCC so I'm taking a half tab once a day to see what happens. I had my 3 months scans and no tumors in my liver!! But I still have a lot of mets; lungs, adrenal gland an now they found some on my abdomen wall. He wrote a script for Nexavar so now need to do some research on that...
  • SarahD
    SarahD Member Posts: 139
    #10
    stage4liver said:

    Yeah I know it's also for
    Yeah I know it's also for high blood pressure which I don't have...he's an oncologist with specialization in HCC so I'm taking a half tab once a day to see what happens. I had my 3 months scans and no tumors in my liver!! But I still have a lot of mets; lungs, adrenal gland an now they found some on my abdomen wall. He wrote a script for Nexavar so now need to do some research on that...

    Thats pretty awesome no
    Thats pretty awesome no tumors on your liver! Damn those mets! Have they given you a prognosis or are they happy with your response to treatment? My dad will be returning from syria 9/21 and we will be transfering his care to dana farber cancer institute in Boston, Ma. I believe they we will be placing him on a clinical trial that contains both nexevar and tarceva. My wedding is comming soon and I also just found I am pregnant. I dont know if this is good or bad I feel like there is too much going on to handle this as well. How come they didnt put you on nexevar before to preven further mets?
  • renatka
    renatka Member Posts: 7
    #11
    stage4liver said:

    Yeah I know it's also for
    Yeah I know it's also for high blood pressure which I don't have...he's an oncologist with specialization in HCC so I'm taking a half tab once a day to see what happens. I had my 3 months scans and no tumors in my liver!! But I still have a lot of mets; lungs, adrenal gland an now they found some on my abdomen wall. He wrote a script for Nexavar so now need to do some research on that...

    stage4liver Thanks
    I want to thank you for giving me an advice about Northwestern.I spoke with them and looks like I was misdiagnosed instead of HCC i have a Chilangiocarcinoma.As soon as they put a portacath I will start chemo.After my liver resection I was taking Nexavar for almost two years.Now I have a few nodules in liver and lungs.Good luck,let me know how nexavar work for you.

Discussion Boards