Tongue cancer

Shanito
Shanito Member Posts: 4
edited March 2014 in Head and Neck Cancer #1
Hello to all I hope everyone is doing some what well. I am 25 years old, and in April of 2010 I got diagnosis with tongue cancer. I don't know what stage of what the correct name of the cancer is or shall I say was. On July 16,2010 I had my sergury to have part of my right tounge removed, along with the removal of my right lymph node. The doctors ws not sure if it infact did spread to the lymph nodes. Any how after the sergury was over I found that they had giving me a Tracheotomy only for breathing perposses, but the other big thing that scared me was that they had inplanted a metal plate in my jaw. They did'nt tell me that they were going to open my jaw. I am very upset at that but I am so thankful that the cancer I was told was fully removed. So they say I am cancer free. I dont know how much longer is my recovery. I do hope it's fast and healty.

Comments

  • Hal61
    Hal61 Member Posts: 655
    #2
    Hi Shanito, welcome to the site. I'm very glad to hear your cancer was removed, and hope with you that your recovery will be fast and healthy. Are you going to receive any further treatment Shanito? Any radiatioin treatments, or chemotherapy? If your doctors are satisfied no further treatment is needed, then your recovery will be faster. I'm not sure what the plate in your jaw was for. It would be good to ask your doctor about that, and also ask about a PET or CT scan to check the area for any activity in the lymph glands. Let us know what your doctors have planned for you, and very best of luck in your recovery.

    best, Hal
  • Pam M
    Pam M Member Posts: 2,196
    #3
    Welcome
    Good to hear the cancer's gone - sorry it was there in the first place. I'm with Hal - I would surely ask for details on what made the jaw plate necessary. I hope you have a speedy and boring recovery. Keep us posted. Be well.
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #4
    Hal61 said:

    Hi Shanito, welcome to the site. I'm very glad to hear your cancer was removed, and hope with you that your recovery will be fast and healthy. Are you going to receive any further treatment Shanito? Any radiatioin treatments, or chemotherapy? If your doctors are satisfied no further treatment is needed, then your recovery will be faster. I'm not sure what the plate in your jaw was for. It would be good to ask your doctor about that, and also ask about a PET or CT scan to check the area for any activity in the lymph glands. Let us know what your doctors have planned for you, and very best of luck in your recovery.

    best, Hal

    WELCOME SHANITO JAW PLATE
    Shanito, my primary site was thought to originally be located at the BOT. The site has since been changed to te Right Tonsil. My Surgeon told me when we thought it was BOT that if there was not sufficient room to use a surgical scope or robitic instrumaents, it may require him breaking my jaw in 1-2 places to get to where the cancer was. I am guessing that is what happened to you. I was also told a plate and screws might be required to repair the jaw.

    I see my Surgeon this Thursday to see if the cancer is HPV+ and to set a date for my surgery.

    How are you recovering from the surgery? Any thing you can tell me about what to expect after the surgery is appreciated.

    BEST!!!

    Mike
  • Shanito
    Shanito Member Posts: 4
    #5
    Pam M said:

    Welcome
    Good to hear the cancer's gone - sorry it was there in the first place. I'm with Hal - I would surely ask for details on what made the jaw plate necessary. I hope you have a speedy and boring recovery. Keep us posted. Be well.

    THANKS
    Thank you all for the support. Im very confused still all I know is that the DR told me that he had removed all of the cancer off my tounge. so yea im cancer free. on 8/2/2010 I get to see the DR. I have alot of questions ready to ask him. Most of all im so scared that the cancer going to come back. I stop smoking, and drinking. But my heart just wont relax im always panicing. Im going crazy and I need alot of mental help. I have 6 kids I dont no if I mentionso yea thats why Im so worried. Please help me.
  • Shanito
    Shanito Member Posts: 4
    #6
    luv4lacrosse said:

    WELCOME SHANITO JAW PLATE
    Shanito, my primary site was thought to originally be located at the BOT. The site has since been changed to te Right Tonsil. My Surgeon told me when we thought it was BOT that if there was not sufficient room to use a surgical scope or robitic instrumaents, it may require him breaking my jaw in 1-2 places to get to where the cancer was. I am guessing that is what happened to you. I was also told a plate and screws might be required to repair the jaw.

    I see my Surgeon this Thursday to see if the cancer is HPV+ and to set a date for my surgery.

    How are you recovering from the surgery? Any thing you can tell me about what to expect after the surgery is appreciated.

    BEST!!!

    Mike

    after
    Well after surgery i really dont remember anything. 'but i went home 1 week later. with very lil pain. my face is alil disfigured but nathing i cant live with. Where are you getting your surgrey done at. I had mine done at Herahey medical center.
  • denistd
    denistd Member Posts: 597
    #7
    Shanito said:

    THANKS
    Thank you all for the support. Im very confused still all I know is that the DR told me that he had removed all of the cancer off my tounge. so yea im cancer free. on 8/2/2010 I get to see the DR. I have alot of questions ready to ask him. Most of all im so scared that the cancer going to come back. I stop smoking, and drinking. But my heart just wont relax im always panicing. Im going crazy and I need alot of mental help. I have 6 kids I dont no if I mentionso yea thats why Im so worried. Please help me.

    Tongue cancer
    Hi Shanito, I did not have tongue cancer I had laryngeal cancer, I had radiation and chemo last May-June, and have so far, been good to go. have a pet scan in September. I was treated at Hershey medical Center too, who was your doctor? Believe me, they are great there, I had a Dr. Goldenberg, outstanding doc but a little rough around the edges, matter of fact and thorough, he is the ENT, as I did not have surgery he just follows up with me on scopes etc. The main doctor for me is a Dr. Mackley the radio guy. If you do have Goldenberg be just as thorough as him and ask every question.
  • Shanito
    Shanito Member Posts: 4
    #8
    denistd said:

    Tongue cancer
    Hi Shanito, I did not have tongue cancer I had laryngeal cancer, I had radiation and chemo last May-June, and have so far, been good to go. have a pet scan in September. I was treated at Hershey medical Center too, who was your doctor? Believe me, they are great there, I had a Dr. Goldenberg, outstanding doc but a little rough around the edges, matter of fact and thorough, he is the ENT, as I did not have surgery he just follows up with me on scopes etc. The main doctor for me is a Dr. Mackley the radio guy. If you do have Goldenberg be just as thorough as him and ask every question.

    Denistd
    OMG! I too have DR. Goldenburg. yea hes great he has made my tongue look soo normal.he's thinkin about treatment for me, but im soo scared i dont want to get sick. The plastic surgen that did a flap on my forearm left me messed me up i have no feeling in my arm and it's painful at time. people say i should get an law sutie but I just really want to be normal. so are you clear of cancer? if so great. I have to wait for five years to be clear.

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