ROLL CALL ENROLLMENT OR SIGNING BACK IN.

2»

Comments

  • Hondo
    Hondo CSN Member Posts: 6,636 Member
    #22
    Still Here
    Still having problems with low blood pressure and PET scans coming back positive, good news I am 8 years from the first treatment and 5 years from the second.

    Thanks too all for your prayers
  • staceya
    staceya CSN Member Posts: 720 Member
    #23
    Hondo said:

    Still Here
    Still having problems with low blood pressure and PET scans coming back positive, good news I am 8 years from the first treatment and 5 years from the second.

    Thanks too all for your prayers

    Stage 1 SCC dx 12/24
    Stage 1 SCC dx 12/24 (boo..)
    HPV+
    No nodes
    No mets
    No peg
    No chemo
    Did Amifostine
    35 Rads
    Small Surgery
    Finished 3/9

    Taste JUST now 75% or more back on certain foods
    Saliva Pretty good-can't tell if it the Amifostine or not
    Teeth Still there
    Weight Up 5 pounds (all in the wrong places) down 10 from baseline.
    Hair Coming back

    Things have really improved just in the last 3/4 weeks.
    Thank God for all of you on this forum..it has been a blessing!!
  • finz2lft
    finz2lft Member Posts: 43
    #24
    staceya said:

    Stage 1 SCC dx 12/24
    Stage 1 SCC dx 12/24 (boo..)
    HPV+
    No nodes
    No mets
    No peg
    No chemo
    Did Amifostine
    35 Rads
    Small Surgery
    Finished 3/9

    Taste JUST now 75% or more back on certain foods
    Saliva Pretty good-can't tell if it the Amifostine or not
    Teeth Still there
    Weight Up 5 pounds (all in the wrong places) down 10 from baseline.
    Hair Coming back

    Things have really improved just in the last 3/4 weeks.
    Thank God for all of you on this forum..it has been a blessing!!

    Roll Call 7-29-10
    STAGE 4
    LEFT LYMPH NODE
    BASE OF TONGUE
    HAVE PEG
    2 Rads fini
    1 CHEMO rini
    TRYING TO SAVE 2 SALIVA GLANDS--NO AMIFOSTINE

    FEELING OK SO FAR

    TO START TUBE FEEDING TO ADJUST BODY A COUPLE OF TIMES A DAY
  • Bigfuzzydoug
    Bigfuzzydoug CSN Member Posts: 154
    #25
    Bigfuzzydoug rolling on in!
    Doug Bernstein
    North Carolina (Lake Norman / Mooresville)
    July, 2010 diagnosis
    Laryngeal squamous cell carcinoma
    T2N0M0
    Haven't started treatment yet
  • Silver_Foxette
    Silver_Foxette Member Posts: 130
    #26
    Total Laryngectomy
    I live in Indiana...and am 55 yrs young ;)...I had vocalcord cancer , stage 2...I quit smoking 10 yrs prior to my cancer discovery... January 2009 I did 33 rounds of rads...I had to have my vocalcords,voicebox and 1/2 of my thyroid removed on June 9,2009 ...Because rads did not kill the BEAST !...Also am known as a "neck breather"...I have had trouble with swelling and leaking of liquids through my prosthesis in larynix...so I usually keep it plugged , which allows no speech ...when I am able I use a Blom Singer Button... Its been a journey indeed and am now growing into the NEW normal me :)) * I would enjoy keeping in touch with other total Laryngectomy such as myself .God bless you as you travel your journey.* I am also a 30yr cerval cancer ,stage 3,survivor .I ACTUALLY JOINED ON NOVEMBER 19, 2009 BUT HAD TO CHANGE NAME FROM "Silver Fox" TO PRESENT "Silver_Foxette". YOU MAY READ MY 'About Me' post at Silver Fox .I did not transfer info to Silver_Foxette { I do not know how to do that ;-/.....* I apologize for any confussion !
  • RushFan
    RushFan CSN Member Posts: 224 Member
    #27
    Silver_Foxette said:

    Total Laryngectomy
    I live in Indiana...and am 55 yrs young ;)...I had vocalcord cancer , stage 2...I quit smoking 10 yrs prior to my cancer discovery... January 2009 I did 33 rounds of rads...I had to have my vocalcords,voicebox and 1/2 of my thyroid removed on June 9,2009 ...Because rads did not kill the BEAST !...Also am known as a "neck breather"...I have had trouble with swelling and leaking of liquids through my prosthesis in larynix...so I usually keep it plugged , which allows no speech ...when I am able I use a Blom Singer Button... Its been a journey indeed and am now growing into the NEW normal me :)) * I would enjoy keeping in touch with other total Laryngectomy such as myself .God bless you as you travel your journey.* I am also a 30yr cerval cancer ,stage 3,survivor .I ACTUALLY JOINED ON NOVEMBER 19, 2009 BUT HAD TO CHANGE NAME FROM "Silver Fox" TO PRESENT "Silver_Foxette". YOU MAY READ MY 'About Me' post at Silver Fox .I did not transfer info to Silver_Foxette { I do not know how to do that ;-/.....* I apologize for any confussion !

    Roll Call, new to the group
    Chuck 48 yrs. old, Cypress, TX, grew up in Visalia, CA, lived in SoCal 15 yrs.
    On Jan. 14, 2010 had a suspicious lymph node removed
    Path returned positive for SCC, HPV+
    Referred to M.D. Anderson Cancer Center
    Feb. 19, 2010 had surgical biopsies of base of tongue, tonsils. Also direct laryngoscopy and cervical esophagoscopy. Also had one tooth pulled and mandibular tori removed.
    No mass found, biopsies negative.

    Final staging: T0Nx(N2b)M0. Unknown primary.

    March 15, 2010 began treatment. 33 rads, with weekly Cisplatin (7 doses)
    No PEG
    April 29, 2010 treatments completed. Lost 30 pounds.
    June 10, 2010 CT scan. All clear, no sign of C.
    August 3, 2010: back at work almost full time. Taste is 75%, salvia zero. 90% of calories coming from food, 10% from Ensure. Don't sleep well, but energy level is better each week. Consult for "turkey neck" this Friday.

    Overall...doing GREAT.

Discussion Boards