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Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

JAMIE HAS -MYXOID LIPOSARCOMA-

jamie-d
jamie-d CSN Member Posts: 7
edited March 2014 in Lesbians Talk About Cancer #1
I AM FEELING SO CONFUSED AND I'M NOT EVEN SURE THIS HAS HIT ME YET "CANCER" I HAD A TUMOR REMOVED ON MAY19TH, LEFT LEG IN MY MUSCLE. NOW I AM GOING FOR A BONE TEST AND I DIDN,T ASK MY DOC W SHE WAS LOOKING FOR OTHER THAN CANCER. I JUST FEEL SO BESIDE MYSELF.. EVERYTHING HAS BEEN HAPPENING SO FAST, I HAD NO CHEMO, AND SHOULD I HAVE? NOW AFTER SURGERY I AM IN SO MUCH PAIN, MY LEG MUSCLES FEEL LIKE THEY GET VERY TIGHT AND ALSO MY BACK N STUMACH... SIGNED, THE NEW GIRL
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  • wendybia
    wendybia CSN Member Posts: 73
    #2
    hey new girl
    i'm sorry but i don't know anything about your type of cancer. my best advice would be to look things up on acs and write down questions for your doc. i had mastectomy 12/09, they sent one of my tumors out for a test and said i only had a 1% chance of recurrence so no chemo for me just hormone therapy...cancer doesn't always mean chemo especially since it's so bad for you....trust you docs and take lots of deep breaths...it does get easier...wendy
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  • u4art
    u4art CSN Member Posts: 52
    #3
    wendybia said:

    hey new girl
    i'm sorry but i don't know anything about your type of cancer. my best advice would be to look things up on acs and write down questions for your doc. i had mastectomy 12/09, they sent one of my tumors out for a test and said i only had a 1% chance of recurrence so no chemo for me just hormone therapy...cancer doesn't always mean chemo especially since it's so bad for you....trust you docs and take lots of deep breaths...it does get easier...wendy

    liposarcoma
    I was diagnosed with a liposarcoma tumor in the upper left thigh in 1997.
    I had 2 surgeries to achieve clean margins.
    ...it did not mets to the lungs
    ....mine was likely not a real sarcoma, but a "subcutaneous pseudosarcomatous fibromatosis"
    ....there is NO effective chemo or radiation treatment for a sarcoma

    ....the following is a link to be best sarcoma site
    http://www.sarcomaalliance.org/bulletinboard.shtml

    .... Good luck ...

    ....Art
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