Permanent hair loss taxotere

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Comments

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #42
    I just heard about this on

    I just heard about this on the news last night!

     

    I did not take this drug-i was on tamoxifen for 5 yrs.

     

     

  • crselby
    crselby Member Posts: 441 Member
    #43
    lawsuit

    I hope you all who took Taxotare and now have permanent hair thinning or loss join the lawsuit against it.  There was Taxol that could have been given and it doesn't cause hair loss.  Lazy doctors who don't read the latest research on these drugs doomed you.  Get compensated!

  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #44
    6 years and still no hair

    It is criminal that we were not warned! And I'm sick and tired of the "your hair or your life" responses.  Of course, I'm happy to be alive, but there were other options.  AND it's all about informed consent and withholding KNOWN information by the manufacturer.  We could have chosen whether or not to take the risk.  Thank you, FDA forinvestigating this and for making the drug company list this as a KNOWN side effect.   Thank you to SOME oncologists (mine) for finally recognizing this and acknowledging that it is devastating.  Unfortunately that did not happen until 2015.  I had Taxotere in 2010.  And of course, I'm happy to be alive, but I am not happy being bald for the rest of my life.  I'm a woman and our hair is our crowning glory.  It is so unfortunate that it takes legal action to get anyone to pay attention, but in this society, that's what it takes.  I have spend thousands of dollars over the years trying various forms of snake oil, buying wigs, hats, scarves, having eye liner and brow tatoos (brows gone too and I have few eyelashes), seeing doctors, etc.  I will not go outside my house without something on my head because the small amount of hair that did come back does NOT cover my head.  Be aware and if Taxotere is recommended - ask your oncologist if this is the BEST and ONLY drug for you.   Just sayin . .

    Suzanne

  • Apaugh
    Apaugh Member Posts: 850 Member
    edited April 2017 #45
    Double Whammy said:

    6 years and still no hair

    It is criminal that we were not warned! And I'm sick and tired of the "your hair or your life" responses.  Of course, I'm happy to be alive, but there were other options.  AND it's all about informed consent and withholding KNOWN information by the manufacturer.  We could have chosen whether or not to take the risk.  Thank you, FDA forinvestigating this and for making the drug company list this as a KNOWN side effect.   Thank you to SOME oncologists (mine) for finally recognizing this and acknowledging that it is devastating.  Unfortunately that did not happen until 2015.  I had Taxotere in 2010.  And of course, I'm happy to be alive, but I am not happy being bald for the rest of my life.  I'm a woman and our hair is our crowning glory.  It is so unfortunate that it takes legal action to get anyone to pay attention, but in this society, that's what it takes.  I have spend thousands of dollars over the years trying various forms of snake oil, buying wigs, hats, scarves, having eye liner and brow tatoos (brows gone too and I have few eyelashes), seeing doctors, etc.  I will not go outside my house without something on my head because the small amount of hair that did come back does NOT cover my head.  Be aware and if Taxotere is recommended - ask your oncologist if this is the BEST and ONLY drug for you.   Just sayin . .

    Suzanne

    So sorry Suzanne

    It is not fair and it is so sad.  I had the red devil and now on the Herceptin and my hair is coming in and it is nuts how it is doing so.  I have part curl in the back that looks like an sos pad and then on up to the crown it is very thin an whispy and also on the sides.  and the top is thin, sticks straight up and it white.  and everyday parts grow and others dont.  It is a nightmare to look in the mirror.  And yes people say, oh it ijust hair, well that may be but you know what, It was my hair andd I loved my hair and now i have this wild hair and it is not who I am..  It makes me feel lost and it is a remeinder of what this damm cancer did to me.  Some days it is ok to be mad and down about it.  It is ok to greive it too.   Tomorrow I will get up and try to do better with it.  Thank goodness for ball caps and scarves.  I will hang in there a little while longer with it and if by the end of summer/early fall it has not got it together I am going to take some of these ladies advice and just buzz it off and keep it that way.   Hugs to you and hang in there.  

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