Primary peritoneal cancer

westie66

abrub said:

I've been told to consider mine chronic
not terminal. To quote my onc "this cancer won't kill you." However, we may have to treat it again.

Glad I could clarify why the different treatments for cancers in the same locations. It gets complex explaining that you have colon cancer in your lungs or breast cancer in your eye (a friend's breast cancer metastasized to her eye.) Regardless, the treatment is for the type of cancer, not the location.

And I start "scanxiety" - my first scan in 14 months will be on July 7.

Chronic vs terminal
...and that is how I'm going to view it too!!!!!! Thanks for that. I have "scanxiety" too - my first MRi since starting on the oxaliplatin and irenotecan is July 6 (10 pm). It will take weeks to hear the results maybe. Good luck to you, good luck to me!
Cheryl

Jewlie

westie66 said:

Chronic vs terminal
...and that is how I'm going to view it too!!!!!! Thanks for that. I have "scanxiety" too - my first MRi since starting on the oxaliplatin and irenotecan is July 6 (10 pm). It will take weeks to hear the results maybe. Good luck to you, good luck to me!
Cheryl

My mom has just been diagnosed with PPC.
We got the news June 10th and she was admitted to the hospital June 14. She has had her debulking surgery June 21st!!!! This has all happened so fast that my head is spinning. Next week she will start her first round of chemo! Her surgeon has informed her that if chemo doesn't work then there is nothing else they can do for her. I'm finding this hard to believe!!!!! My parents were here visiting us when she became very ill! She had lapband surgery 3 years ago and we all thought she was having complications from that. After being admitted to the hospital in my town for the second time she had fluids removed from her abdomen and test came back possitive for cancer. After her debulking surgery her surgeon informed us it was PPC. I have never heard of this type of cancer!
At this time I'm cleaning my room and getting it ready for her! When they visit us they stay in their camper that is set up in my back yard. My mom just retired a year ago in March and was so excited to start enjoying life without work!
I don't know what to tell her except to keep possitive!!!!!!! I think that is what will help her the most right now!!!!!

westie66

Jewlie said:

My mom has just been diagnosed with PPC.
We got the news June 10th and she was admitted to the hospital June 14. She has had her debulking surgery June 21st!!!! This has all happened so fast that my head is spinning. Next week she will start her first round of chemo! Her surgeon has informed her that if chemo doesn't work then there is nothing else they can do for her. I'm finding this hard to believe!!!!! My parents were here visiting us when she became very ill! She had lapband surgery 3 years ago and we all thought she was having complications from that. After being admitted to the hospital in my town for the second time she had fluids removed from her abdomen and test came back possitive for cancer. After her debulking surgery her surgeon informed us it was PPC. I have never heard of this type of cancer!
At this time I'm cleaning my room and getting it ready for her! When they visit us they stay in their camper that is set up in my back yard. My mom just retired a year ago in March and was so excited to start enjoying life without work!
I don't know what to tell her except to keep possitive!!!!!!! I think that is what will help her the most right now!!!!!

Debulking Surgery
Hi: Wow! How wonderful she got through everything so fast!!!! Here in Canada there is only one place that does that surgery (In Calgary) but you are in hospital for 3 weeks, convalescing at home for 3 weeks, and then more convalescing for months and months! Your mom must be a wonderfully healthy strong woman - good for her! I have secondary PPC (from gallbladder) so can't comment on the prognosis but as far as I know from ladies on the ovarian site (see Tina Brown's posts), PPC is viewed as chronic with periodic removal of the fluid (ascites) and periodic chemotherapy. See my first discussion under Rare and Other Cancers to see that we may be starting a separate discussion board for this type of cancer.
With her recovery so quickly, it will be easier to stay positive! My thoughts go out to you and your mom.
Cheryl

abrub

Jewlie said:

My mom has just been diagnosed with PPC.
We got the news June 10th and she was admitted to the hospital June 14. She has had her debulking surgery June 21st!!!! This has all happened so fast that my head is spinning. Next week she will start her first round of chemo! Her surgeon has informed her that if chemo doesn't work then there is nothing else they can do for her. I'm finding this hard to believe!!!!! My parents were here visiting us when she became very ill! She had lapband surgery 3 years ago and we all thought she was having complications from that. After being admitted to the hospital in my town for the second time she had fluids removed from her abdomen and test came back possitive for cancer. After her debulking surgery her surgeon informed us it was PPC. I have never heard of this type of cancer!
At this time I'm cleaning my room and getting it ready for her! When they visit us they stay in their camper that is set up in my back yard. My mom just retired a year ago in March and was so excited to start enjoying life without work!
I don't know what to tell her except to keep possitive!!!!!!! I think that is what will help her the most right now!!!!!

Please have your mother see a specialist!
Jewlie,
Please be sure that your mother sees an expert in PPC. There are options including intra-peritoneal chemo (IP chemo) and HIPEC - Heated IP Chemo - that may be available to her. Her chemo will be dependent on the origin of the cancer.

Mine was not Primary Peritoneal Cancer; mine was metastases from the Appendix, but I had IP chemo. I go to Memorial Sloan Kettering Cancer Center in NYC.

Most important is that she sees an expert.

Wishing you the best,
Alice

AussieMaddie

abrub said:

Please have your mother see a specialist!
Jewlie,
Please be sure that your mother sees an expert in PPC. There are options including intra-peritoneal chemo (IP chemo) and HIPEC - Heated IP Chemo - that may be available to her. Her chemo will be dependent on the origin of the cancer.

Mine was not Primary Peritoneal Cancer; mine was metastases from the Appendix, but I had IP chemo. I go to Memorial Sloan Kettering Cancer Center in NYC.

Most important is that she sees an expert.

Wishing you the best,
Alice

Just pointing to new board
Hi,

have posted earlier to this thread and now browsing through similar threads that occur around the forums in order to point out, for anyone not aware of it yet, that a new board, specifically for those of us with peritoneal cancer has started up. Will be good to share our mutual experiences in the same place.

Love to all,

AussieMaddie

xxxooo