primary peritoneal carcinoma
Comments
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Primary Peritoneal Cancer
My mother was diagnosed with poorly differentiated fallopian tube cancer, in addition to hodgekins lymphoma, in 2007. She had a partial hysterectomy which confirmed the fallopian tube diagnosis...then 6 months of taxol and carboplatin...6 months of ABVD...and in Nov of 2008, she underwent a completed hysterectomy which showed no signs of malignancy. She is monitored every 3 months and unfortunately a catscan revealed that the cancer has returned to the peritoneal cavity. Her CA-125 is normal and has always been normal, however, the doctor does not paint a hopeful prognosis, as they are saying it is a stage 4. We are taking it a day at a time and will be meeting with the Doctor to determine if a biopsy is necessary or just start chemo based on the cat scan and her clinical history. They have found several nodules on the lining of the peritonuem and I have been told time is of the essence and chemo should be started sooner, than later. I am confident that with God's grace she will be fine, but am wondering if there is anyone who has this illness, but never experienced an elevated CA-125. Also, it is hopeful to read that you have been in remission for over 10 years. May you continue to be blessed and a source of inspiration to all.0 -
I have PPCGeeko said:Primary Peritoneal Cancer
My mother was diagnosed with poorly differentiated fallopian tube cancer, in addition to hodgekins lymphoma, in 2007. She had a partial hysterectomy which confirmed the fallopian tube diagnosis...then 6 months of taxol and carboplatin...6 months of ABVD...and in Nov of 2008, she underwent a completed hysterectomy which showed no signs of malignancy. She is monitored every 3 months and unfortunately a catscan revealed that the cancer has returned to the peritoneal cavity. Her CA-125 is normal and has always been normal, however, the doctor does not paint a hopeful prognosis, as they are saying it is a stage 4. We are taking it a day at a time and will be meeting with the Doctor to determine if a biopsy is necessary or just start chemo based on the cat scan and her clinical history. They have found several nodules on the lining of the peritonuem and I have been told time is of the essence and chemo should be started sooner, than later. I am confident that with God's grace she will be fine, but am wondering if there is anyone who has this illness, but never experienced an elevated CA-125. Also, it is hopeful to read that you have been in remission for over 10 years. May you continue to be blessed and a source of inspiration to all.
Hiya
I am a regular on these boards, but I have PPC & not ovca. I was diagnosed Nov 09 after I had bloating and an uncomfortable feeling of fullness. I also had fluid in my pleural cavity which caused severe breathing difficulties. I had a CT scan which showed that all my internal organs are clear (including my ovaries) but I have nodules or cancer cells in my peritoneum so PPC was diagnosed. I have stage IV because of the fluid around my lungs. My doctor called it "malignant plueral effusion"
I have just finished 6 rounds of chemo - carboplatinn & taxol. My CA 125 was 1119 before chemo & is now 65. I didn't have surgery because the cancer cells were too wide spread and small. The doctor said it was like "a sheet"
I am now on a waiting game. I will have another CT scan next month and a CA 125 in June. It is really encouraging to hear you are 11 in remission, eventhough you are living with a chronic condition, you are still living. What inspiration I have a friend who I have met since I was diagnosed who is 2 1/2 in remission and she has had no problems since she finished chemo.
I wish you both well and keep posting on these boards.
Tina0 -
Primary Peritoneal Cancer/Ovarian
Hi,
I appreciate your comments and your story of hope. My mother was diagnosed with fallopian tube cancer that spread to the peritoneal lining in 2007 and was in remission up until now. According to a Catscan it has spread, however, all of her blood work is normal. Her CA 125 is 25 and has never been abnormal. I pray that it goes into remission again, but can't imagine how you have handled having conisitent chemotherapy for the past 10 years. What else have they treated you with and have they changed the type of chemo? Does the cancer build a resistance? Thank you, Margaret0 -
PPcTina Brown said:I have PPC
Hiya
I am a regular on these boards, but I have PPC & not ovca. I was diagnosed Nov 09 after I had bloating and an uncomfortable feeling of fullness. I also had fluid in my pleural cavity which caused severe breathing difficulties. I had a CT scan which showed that all my internal organs are clear (including my ovaries) but I have nodules or cancer cells in my peritoneum so PPC was diagnosed. I have stage IV because of the fluid around my lungs. My doctor called it "malignant plueral effusion"
I have just finished 6 rounds of chemo - carboplatinn & taxol. My CA 125 was 1119 before chemo & is now 65. I didn't have surgery because the cancer cells were too wide spread and small. The doctor said it was like "a sheet"
I am now on a waiting game. I will have another CT scan next month and a CA 125 in June. It is really encouraging to hear you are 11 in remission, eventhough you are living with a chronic condition, you are still living. What inspiration I have a friend who I have met since I was diagnosed who is 2 1/2 in remission and she has had no problems since she finished chemo.
I wish you both well and keep posting on these boards.
Tina
thank you for your response. My mother's CA-125 is 25, however, they have informed me that it does not matter, the cancer is still out of remission. I will pray for you and hope that your cancer goes into and stays in remission. The doctors are hard and fast with their outlook, however, I believe with the right mindset and faith, anything is possible. God Bless you and I will keep you posted. Margaret0 -
Primary Peritoneal Carcinoma
G-moma-66
I am so glad that you are a 11 yr survivor. I was diagnosed with PPC in May of 2009, had surgery in Aug. 09 followed by Hyperthermic intraperitoneal chemo. I really haven't heard from anyone who has had this type of chemo treatment so I really don't know if this type of chemo is better than IV chemo or what, but I was told given my age at diag. (37) it would give me a better long term prognosis. I am having some symptoms now and am due for a pet/ct on the 24th. Thank you for giving me the extra hope for many more years to come.0
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