New guy

SueRelays

tpmack37 said:

Thanks again - not military
I appreciate the compliment about having spunk - but I'm not military.

I had the honor of visiting and temporarily living on a military base or two after my mother remarried into the marines. Had some fun times with some marines on Okinawa and mainland Japan. Had a chance to climb Mount Fuji, followed by a night on the town with the US Marines, and the some men from the Japanese Defense Force. (I survived!)

This reminds me I have to write an introductory page!

TIM

Hi Tim
I was diagnosed with
Hi Tim

I was diagnosed with anal caner in April 2008. Two years ago this month !!
Since going through treatment, rad and chemo for that, I've had 1/5 of my lung removed, and now this year, 1/2 of my liver. I'm 51 and never had a doctor til all this! I'm back at work this week, and feel almost NORMAL!!! It is just absolutely amazing what our bodies can go through and come back from. As someone mentioned, there are several stage IV survivors on the colonrectal boards. They encourage me, as I'm only a couple months out. This is the place for support, information and most importantly HOPE!!!

z

SueRelays said:

Hi Tim
I was diagnosed with
Hi Tim

I was diagnosed with anal caner in April 2008. Two years ago this month !!
Since going through treatment, rad and chemo for that, I've had 1/5 of my lung removed, and now this year, 1/2 of my liver. I'm 51 and never had a doctor til all this! I'm back at work this week, and feel almost NORMAL!!! It is just absolutely amazing what our bodies can go through and come back from. As someone mentioned, there are several stage IV survivors on the colonrectal boards. They encourage me, as I'm only a couple months out. This is the place for support, information and most importantly HOPE!!!

Sue
Hi Sue,

It sounds like your doing well. Well enough to go back to work, thats great. Its great that you feel almost normal. I see where you said you didn't have a dr until all this. Me too I had'nt been to the dr since 2001, and the 1st appt. I had was with the gyno on 3-09. I've certainly learned my lesson. Now I preach early prevention. I'm happy your doing so well. Lori

lemonade

tpmack37 said:

Winnie - I've been looking for you!
I heard about your case and it is strangely similar.

I also had no action at all with the lymph nodes; just the anal tumor (which was growing up into the rectum. At one point, one of the docs did describe it as strange, I wish I remembered what he said, like a vine or something).

[EDIT - oh yeah, for weeks and weeks no one ever talked about staging and said don't worry about it etc..but finally out of sheer curiosity, I pinned down my doc on the subject. She said - Stage 4; she said any cancer that jumped to another organ is stage 4 automatically]

I just finished the 6-week plan of radiation (28 days) and 2 rounds of chemo Mytamyacin(SP?);and 5FU through a pump for 5 days. Before they went in, they pumped in some steroid and some anti-nausea stuff.

I think I'm unlike many cases in that I didn't get killer diarrhea, but sort of the opposite. apparently the radiation turned my stools into very hard, round or rock-shaped....ummm Rocks! They have been the bane of my existence! Constant pain, too big to come out easily. Lots of pain, blood etc. If anyone knows anything about this, send them my way!

So, back to topic - I'm glad to meet you Winnie. Especially since the person who showed me my liver, basically patted me on the shoulder and said this was incurable, but we'll try to shrink them down and buy you some time. I'm much more hopeful having read your story and I will be taking your note to my chemo doc tomorrow.

Thanks! and thanks everyone - I'm happy to see all the postings!

constipation
I didn't have a lot of diarrhea either. I took 2 OTC stool softeners every night during treatment and afterwards for a while. The pain meds would make me constipated. You might want to try some Benefiber or Metamucil. The Benefiber didn't glob up in the glass and I drank it with orange juice.

Barbara

z

z said:

Sue
Hi Sue,

It sounds like your doing well. Well enough to go back to work, thats great. Its great that you feel almost normal. I see where you said you didn't have a dr until all this. Me too I had'nt been to the dr since 2001, and the 1st appt. I had was with the gyno on 3-09. I've certainly learned my lesson. Now I preach early prevention. I'm happy your doing so well. Lori

azkookie
This thread has all 4 survivors on it, where they are talking about their treatments for the liver.

azkookie18

z said:

azkookie
This thread has all 4 survivors on it, where they are talking about their treatments for the liver.

thank you!
thank you Z for guiding me to some positive stories, further info, and possibly some sleep as well.

azkookie18

winnipeg said:

Stanton, Hainsworth
My wish...

that EVERYONE who's Stage 4 or very worried should print and save this. I know my case is just a single piece of data, but so would it be if you saw a squirrel dance a jig. Who cares if it's only happened once so far? If it's happened before, it can happen again.

I got Carboplatin, Paclitaxel, and Xeloda for almost 8 months at 3 week intervals. My liver's been clean as a whistle ever since. Of course it ain't over 'til it's over, but in my case I have far outlasted anyone's expectations, and Hainsworth's results are impressive. Note that he only administered the treatment four times and got very good results. I had it 7 or 8 times and got a darned good result. It was hard on my platelets mainly. Reds and whites were fine. My whites tanked about 9 months after therapy started, and then I was undergoing the usual Nigro, not the original Carbo/Taxol/Xeloda. I am in 49 and not otherwise unhealthy. Female. Caucasian.

My medical oncologist:

Stanton William M D. Categories: Internal Medicine, Cardiologists. Neighborhood: Hillcrest. 4033 3rd Avenue San Diego, CA 92103. (619) 299-2570

The Hainsworth research he based my treatment on:

http://www.ncbi.nlm.nih.gov/pubmed/11505410

Hainsworth contacts from internet:

250 25th Avenue North
Nashville, TN 37203-1625
(615) 320-5090

Question, Tim. Are you military? You have the greatest spunk, usually only seen in people who think it's a great idea to get up at 5:00am...the military!

Winnie

hi
Hi Winnipeg,
I am interested in learnign more about your experience and also find out more about your doc in SD.
I can't figure out how to drop you a private message on this board so would you mind please sending me your e-mail address? My mom is in a similar boat that you're were in and I'm considering reaching out to your doc for 2nd opinion.

Thank you in advance.

mp327

azkookie18 said:

hi
Hi Winnipeg,
I am interested in learnign more about your experience and also find out more about your doc in SD.
I can't figure out how to drop you a private message on this board so would you mind please sending me your e-mail address? My mom is in a similar boat that you're were in and I'm considering reaching out to your doc for 2nd opinion.

Thank you in advance.

Here's Winnie's Dr's. name & phone number
azkookie18--

Winnie hasn't been too active on the boards lately, but I have her doctor's info and am passing it on to you. Winnie and I go back almost 2 years, this is her "miracle" doc.

Dr. William Stanton
4033 3rd. Ave., Suite 300
San Diego, CA. 92103
Phone: (619) 299-2570

I hope this helps you find appropriate and effective treatment for your mother. I'm sorry to hear of her diagnosis and will keep her in my thoughts and prayers.

Martha

Magrao

winnipeg said:

Stanton, Hainsworth
My wish...

that EVERYONE who's Stage 4 or very worried should print and save this. I know my case is just a single piece of data, but so would it be if you saw a squirrel dance a jig. Who cares if it's only happened once so far? If it's happened before, it can happen again.

I got Carboplatin, Paclitaxel, and Xeloda for almost 8 months at 3 week intervals. My liver's been clean as a whistle ever since. Of course it ain't over 'til it's over, but in my case I have far outlasted anyone's expectations, and Hainsworth's results are impressive. Note that he only administered the treatment four times and got very good results. I had it 7 or 8 times and got a darned good result. It was hard on my platelets mainly. Reds and whites were fine. My whites tanked about 9 months after therapy started, and then I was undergoing the usual Nigro, not the original Carbo/Taxol/Xeloda. I am in 49 and not otherwise unhealthy. Female. Caucasian.

My medical oncologist:

Stanton William M D. Categories: Internal Medicine, Cardiologists. Neighborhood: Hillcrest. 4033 3rd Avenue San Diego, CA 92103. (619) 299-2570

The Hainsworth research he based my treatment on:

http://www.ncbi.nlm.nih.gov/pubmed/11505410

Hainsworth contacts from internet:

250 25th Avenue North
Nashville, TN 37203-1625
(615) 320-5090

Question, Tim. Are you military? You have the greatest spunk, usually only seen in people who think it's a great idea to get up at 5:00am...the military!

Winnie

The Link Is Not Working
Hey, Winnipeg, can you please provide a healthy link to Hainsworth's guidelines?