Neurontin (Gabapentin)
Has anyone ever used this? My first time trying it last night, it made me alittle dizzy, alittle sleepy, but I tell ya, it gave me the best sleep I have had in a LONG time. I was also able to be in front of the fridge, and woke up to an air conditioned room, and not be too cold, maybe a little tingle on the cold cup, but that's all I've had with the oxy so far.
I may get more side effects of course when I am disconnected from the pump tomorrow, but it be nice if I didn't have much.
Let me know who tried this..I have to take 3 times a day.
Hugsss!
~Donna
Comments
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started out to treat epilepsy
It’s a drug that started out to treat epilepsy. I took it back when I had the bad night time leg pain from the lumbosacral plexopathy thanks to chemo/rad. It did help.
You have to be careful not to just stop taking it. You have to cut from 3 to 2 times a day for a few days. Then drop to once a day for a few more.
I did not like the way it made me feel in the head. I was in kind of a brain fog. Was on it for about 3 weeks.0 -
Hi donnaKerry S said:started out to treat epilepsy
It’s a drug that started out to treat epilepsy. I took it back when I had the bad night time leg pain from the lumbosacral plexopathy thanks to chemo/rad. It did help.
You have to be careful not to just stop taking it. You have to cut from 3 to 2 times a day for a few days. Then drop to once a day for a few more.
I did not like the way it made me feel in the head. I was in kind of a brain fog. Was on it for about 3 weeks.
nope never heard of it.....hope it works for you.....just sending hugs.....
mags0 -
Neurontin
I just finished my prescription. Did nothing for me - neuropathy till driving me nuts, but for some it works well. There are at least two other things my onc wants to try (if/when he comes back from vacation), but I can't recall what are their names.
It is reported that some people respond well to glucosimine (usually taken for joint problems). It is an over the counter med and pretty cheap. I have been taking that too, but I have seen no change in the severity of neuropathy from that either.
Best of luck beating that oxi side effects. If your neuropathy is mild you have a good chance that it will go away by itself in time!0 -
gabby
My moms takes this stuff and it totally made her loopy. I also had a buddy that was injured in Iraq and they put him on it and it messed his mind up too. He finally found a doctor that said that this medication should only be prescribed for a short period of time or it makes you lulu. I definatly saw that in my mon first hand with this stuff. My buddy is off it now and doing much better. I would be very careful if I were you.0 -
I betzenmonk said:gabby
My moms takes this stuff and it totally made her loopy. I also had a buddy that was injured in Iraq and they put him on it and it messed his mind up too. He finally found a doctor that said that this medication should only be prescribed for a short period of time or it makes you lulu. I definatly saw that in my mon first hand with this stuff. My buddy is off it now and doing much better. I would be very careful if I were you.
It's stronger then Ativan, it knocks me out, but instead of just getting me to sleep, it gives me a good sleep by keeping me asleep, whereas I'm up every couple hours on Ativan. I didn't feel loopy, he wanted to give me the more then 100 mg he has me on now, and I said "no, let me just try the mild dosage" and if I wanted more he would give me a higher dosage, but I don't want to be loopy. I'll make sure if I feel funny, I'll stop.
So far with my 2nd treatment, it hasn't been too bad, I feel my thumbs lock up abit, some tingling when picking up cold cups and bottles, I'm able to stand in front of the fridge ok, though I haven't been to Walmart yet, where I hope the freezer sections don't get me. But all in all, it's been very tolerable. Just 2 more to go, he only wanted 4, I hope it stays like this...tolerable lol...
Hugsss!
~Donna0 -
Stay outShayenne said:I bet
It's stronger then Ativan, it knocks me out, but instead of just getting me to sleep, it gives me a good sleep by keeping me asleep, whereas I'm up every couple hours on Ativan. I didn't feel loopy, he wanted to give me the more then 100 mg he has me on now, and I said "no, let me just try the mild dosage" and if I wanted more he would give me a higher dosage, but I don't want to be loopy. I'll make sure if I feel funny, I'll stop.
So far with my 2nd treatment, it hasn't been too bad, I feel my thumbs lock up abit, some tingling when picking up cold cups and bottles, I'm able to stand in front of the fridge ok, though I haven't been to Walmart yet, where I hope the freezer sections don't get me. But all in all, it's been very tolerable. Just 2 more to go, he only wanted 4, I hope it stays like this...tolerable lol...
Hugsss!
~Donna
stay out of the freezer section! :)
seriously girl you are doing so well....you are one half done....well done
hugs back to you
mags0 -
Watch out with Neurontin as stopping it, if taken for awhile,Kerry S said:It could be
Donna darlin,
It could be that those of us that are a few notches towards the loopy side naturally, just get pushed the rest of the way with it. I was also stoned on percocet when I took it.
may cause problems for you. Also, maake sure it doesn't impact liver......steve0 -
Gabapentin
Hi Donna,
I was prescribed Gabapentin (100mg X 2/day) along with Hydromorphone (Dilaudid) and Naproxen to address neuropathic pain from my sacral tumour. The combination has worked well for me. I was able to function fairly well throughout.
My understanding is that it takes a few weeks to work. I hope it helps you.
Be well... Rob; in Vancouver0 -
Ha Ha Tina!geotina said:Donna
This sounds like a serious med so please be careful with it. Of course, if you get rid of the kids, install a stripper pole and start swinging around hubby may just ask you to double the dose.
Now seriously, please be careful with this stuff.
Tina
My kids don't want to see me nekkid! LOL....but hubby wouldn't mind the stripping pole thing, and you know Kerry, I been on the loopy side, so this drug isn't phasing me, it's kind of "fun", and Rob, I did get a lil stoned on some MJ trying to calm my nausea, I think sometimes I'm having a little too much fun experimenting with these drugs together...but I sure did sleep good these past couple nights LOL!
Hugsss!
~Donna0 -
ratsgeotina said:Donna
This sounds like a serious med so please be careful with it. Of course, if you get rid of the kids, install a stripper pole and start swinging around hubby may just ask you to double the dose.
Now seriously, please be careful with this stuff.
Tina
I thought you were serious - I had the pole installed today. What am I going to tell my wife when she gets home from visiting her sisters? Maybe I can get HER to use it. I can't do a damn thing on it because it appears gravity is extra strong near the pole, I just fall down. maybe I can install a few lights on it and tell her it is a new lamp. Darn, it goes so well with the disco ball!0 -
neurontinRickMurtagh said:Neurontin
I just finished my prescription. Did nothing for me - neuropathy till driving me nuts, but for some it works well. There are at least two other things my onc wants to try (if/when he comes back from vacation), but I can't recall what are their names.
It is reported that some people respond well to glucosimine (usually taken for joint problems). It is an over the counter med and pretty cheap. I have been taking that too, but I have seen no change in the severity of neuropathy from that either.
Best of luck beating that oxi side effects. If your neuropathy is mild you have a good chance that it will go away by itself in time!
GF good with psyche meds as she needs them. Tragedon (Sp) is also supposed to be good for nerves and sleep......My numby/tingley feet and toes bother me in longish walks, more so now in warm weather than cold but I've so far avoided asking onc for med for it as I take meds for other ailments already. Both Neurontin and Tragedon are stronger than Ativan/Xanax but talk to doc about possible liver problems. Some psyche pills affects liver.....I'll stick with Ativan for now tho I skip nite everty few days....steve0 -
Donna, I counted myself in that semi loopy groupShayenne said:Ha Ha Tina!
My kids don't want to see me nekkid! LOL....but hubby wouldn't mind the stripping pole thing, and you know Kerry, I been on the loopy side, so this drug isn't phasing me, it's kind of "fun", and Rob, I did get a lil stoned on some MJ trying to calm my nausea, I think sometimes I'm having a little too much fun experimenting with these drugs together...but I sure did sleep good these past couple nights LOL!
Hugsss!
~Donna
I counted myself in that semi loopy group0 -
Yes
Hi Donna,
I take gabapentin too. Not for cancer related neuropathy but MS. It has helped me some. It has to build up. Like start with one tablet at night for a week and the two for a week and then two at night and one at noon. They is my routin. I don't get dizzy but it does make me tired. Hope it helps you. Keep us informed. Paula0 -
LOL!Paula G. said:Yes
Hi Donna,
I take gabapentin too. Not for cancer related neuropathy but MS. It has helped me some. It has to build up. Like start with one tablet at night for a week and the two for a week and then two at night and one at noon. They is my routin. I don't get dizzy but it does make me tired. Hope it helps you. Keep us informed. Paula
Rick, you crack me up! I remember the days of even wearing those little disco mini's on my ears since they made earrings to look like them! ahhh...disco!
Yeah, the dr. wants me to take 100 mg 3 times a day Paula, and said that was a small dose, but would rather me have a bigger dose, and just wants to start me out slowly on it. I thought 100 sounded like a lot! lol...but we'll see how it works. What's weird, is that sometimes I can't touch cold, because of the oxi, yet, I can drink or eat things cold, it's very strange. I will keep you informed about it though!
Hugsss!
~Donna0 -
Donna
Seen your posts lately but was wondering how you have been doing, I hope things keep getting better for you I myself havent had the oxy yet Ill know about that next week, I got lucky in a way no chemo for 4 weeks chemo quit working so he did CT scan and pet we will decide next week, enough on me though just glad you are doing better, you are a trooper
With every thing you have went thru you still manage to give hope to others take care wishing you feeling better and better Sheri220
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