Has anyone else had these problems?

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Comments

  • handl1983
    handl1983 Member Posts: 37
    #22
    oldejack said:

    head and neck post tx problems
    howdy ya'll!!

    yeppers listen to joe he's been thru it.
    i'm almost 8 years post myself(i feel kinda like an 8 year old boy saying "7 and 3/4 years"), had 5 cisplatin plus 35 rads spread over 7 weeks. no feeding tube but then i lost 70 lbs during tx and only about 10-15 of that was flab. i recommend going for way more than 1500 calories a day, you burn more than that just making new blood cells. and i personally prefer chocolate/peanut butter/banana shakes. throw in a good scoop of powdered protein and he can sip to his hearts content.
    sounds strange but for my dad it was a "steak shake" that worked, pureed and thinned with beef stock and a little gravy for texture. to each his own.
    on the subject of teeth, yep they slowly rot away, i've lost a lot of strength in the enamel as well as losing one tooth and some jawbone over the years.
    chlorhexidine mouthwash helps some, i just wish it came in another flavor than mint!!!

    remember playing good old-fashioned pinball?
    no matter how well you play eventually you run out of balls to play. the game is over and yet. ..
    kathunk!!
    its a free play, you "matched"!!
    w00h00 another round!!!!

    oldejack

    Hey oldejack!
    You
    Hey oldejack!
    You certainly have "been around the block!" Herb is now trying to throw back pancakes with lots of butter and syrup! It takes awhile, but he does it! I do use powdered protein, peanut butter and bananas. I have never heard of a steak shake though-thats great!!! We dont eat red meat, but maybe a chicken shake?????
    I am glad to hear you are doing well! It give all of us hope......
    Lori
  • handl1983
    handl1983 Member Posts: 37
    #23
    oldejack said:

    head and neck post tx problems
    howdy ya'll!!

    yeppers listen to joe he's been thru it.
    i'm almost 8 years post myself(i feel kinda like an 8 year old boy saying "7 and 3/4 years"), had 5 cisplatin plus 35 rads spread over 7 weeks. no feeding tube but then i lost 70 lbs during tx and only about 10-15 of that was flab. i recommend going for way more than 1500 calories a day, you burn more than that just making new blood cells. and i personally prefer chocolate/peanut butter/banana shakes. throw in a good scoop of powdered protein and he can sip to his hearts content.
    sounds strange but for my dad it was a "steak shake" that worked, pureed and thinned with beef stock and a little gravy for texture. to each his own.
    on the subject of teeth, yep they slowly rot away, i've lost a lot of strength in the enamel as well as losing one tooth and some jawbone over the years.
    chlorhexidine mouthwash helps some, i just wish it came in another flavor than mint!!!

    remember playing good old-fashioned pinball?
    no matter how well you play eventually you run out of balls to play. the game is over and yet. ..
    kathunk!!
    its a free play, you "matched"!!
    w00h00 another round!!!!

    oldejack

    Hey oldejack!
    You
    Hey oldejack!
    You certainly have "been around the block!" Herb is now trying to throw back pancakes with lots of butter and syrup! It takes awhile, but he does it! I do use powdered protein, peanut butter and bananas. I have never heard of a steak shake though-thats great!!! We dont eat red meat, but maybe a chicken shake?????
    I am glad to hear you are doing well! It give all of us hope......
    Lori
  • Glenna M
    Glenna M Member Posts: 1,576
    #24
    Landranger25 said:

    Whoa!
    Kent, you have me confused with another poster. I am only 5 months post and my teeth are doing fairly well. I have had not had to have any pulled but did break the corner off of a molar back in January as well as suffering 2 small cavities. (after having gone decades with nothing needed but the cleaning and checking) I use Sensodyne Pro-Namel toothpaste on the advice of my dentist as well as Biotene mouthwash for my dry mouth. Mouth/teeth care was stressed as very important by radiation Doctor as well as Cancer center nurses. I have not missed a checkup due to my treatment and have tried to follow advice that was given. I am so sorry for those of you having problems. I have read the posts of those having problems and of needing teeth pulled prior to treatment and wondered why I was fortunate enough to avoid this. Only time will tell what effects this will have on my teeth. I will hope for the best. Good luck to all.

    Mike

    Good teeth
    Hi Mike, I also saw my dentist before radiation and was told that my teeth should survive treatment. I think the reason so many others have had to get theirs pulled is they may have had problems with their teeth prior to treatment (old fillings, cavities, periodontal disease,etc)

    I'm six month post treatment now and so far no problems, I hope that continues as I have read from others here that having dental work done can cause problems.

    I use Biotene toothpaste but I use the baking soda, water and salt as a mouth rinse as I find the Biotene mouthwash still burns my mouth and tongue.

    Continued good health to you and everyone else on this site.

    Stay strong and keep smiling,
    Glenna

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